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Susie Patient Expert

I'm Susie, 23. I've been married 3 years to Matt, 25. We have Oceana who is 2 1/2 and Joshua who was born 7 Jan 2008. Joshua had an encephalocele - a neural tube defect - that has left a hole in his skull. His brain grew out through the back of the skull into a membrane-covered sack. We thought it... Full Bio
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Joshua's 5th Birthday by Susie Patient Expert Posted in: Blog Posts in Brain Health 5 years. Half a decade. How did this happen 'Shua? How could you possibly be 5? Sweet boy, words fail me. I love you so much and I wish you were here. I wish it every ti ... Read on »
I was reading back through the ... by Susie Patient Expert Posted in: Blog Posts in Brain Health I was reading back through the blog this morning and came across these words , posted originally in March of 2009 right before Naomi was born. Hard to imagine life with Naom ... Read on »
Cora Rose - Birth Story by Susie Patient Expert Posted in: Blog Posts in Brain Health It's already been 12 weeks since Cora was born, so I thought it was high time I wrote out what I remember of her birth story before I forgot it. I should have expec ... Read on »
I took down my Moby back wrap ... by Susie Patient Expert Posted in: Blog Posts in Brain Health I took down my Moby back wrap tutorial months ago because it's not considered safe by Moby anymore. There are plenty of YT tutorials out there, but I was sick of all the att ... Read on »
A few thoughts for you tonight by Susie Patient Expert Posted in: Blog Posts in Brain Health "Is everything sad going to come untrue?" - Samwise Gamgee, LOTR, Tolkein "Then I saw a new heaven and a new earth; for the first heaven and the first earth passed away, ... Read on »
Cora Rose by Susie Patient Expert Posted in: Blog Posts in Brain Health My "little" beauty arrived Monday, April  9th at 4:52pm. She weighed a very surprising 8lb. 15oz, and is 21in long. By far my biggest.... a whopping 13oz bigge ... Read on »
Cleaning house, getting bigger, and waiting. by Susie Patient Expert Posted in: Blog Posts in Brain Health Hi all - I thought I should probably do a quick update before baby's photos show up. Sooner? Later? Sometime between now and mid-April. I'm certainly hoping she comes closer ... Read on »
Trucks, trains, dirt, and noise by Susie Patient Expert Posted in: Blog Posts in Brain Health Oh how I wish for trucks, trains, dirt, and noise. Joshua, it's your 4th birthday today. You would have been fully of energy, loud, rough and tumble. E ... Read on »
Christmas Day by Susie Patient Expert Posted in: Blog Posts in Brain Health Our little girls gave us until just around 8am to sleep. Thanks to a late Christmas Eve service. They really loved their new sleeping bags Momma made. Nao ... Read on »
Naomi according to FB statuses by Susie Patient Expert Posted in: Blog Posts in Brain Health ‎"Naomi, get your bumbum off the table." "I not bumbum on da table. I have undies!" "It's still rude, even with undies." Bye bye penny. We'll see you in a few d ... Read on »
The wane in blogging by Susie Patient Expert Posted in: Blog Posts in Brain Health In the past when I've neglected my blog, I'd run back and apologize. I'm sorry I left you! I'm really here still! Here are the reasons for my absence... But the truth ... Read on »
Etsy Sale by Susie Patient Expert Posted in: Blog Posts in Brain Health I tried going out to Kohls and Bed, Bath, and Beyond at midnight on Black Friday, came home to sleep for 2 hours, and then went back out to KMart and Joann Fabric ... Read on »
The Big Reveal by Susie Patient Expert Posted in: Blog Posts in Brain Health Our little one is doing great. Healthy, with no defects, no issues. Nothing to report. The doctor (high risk, maternal fetal medicine) said, "We don't need to see you again. ... Read on »
Recently by Susie Patient Expert Posted in: Blog Posts in Brain Health Has it really been almost 2 months since I've put any photos of the girls up here? It's ok, you can yell at me. Here's a few photos from recently. ... Read on »
An exercise in bravery by Susie Patient Expert Posted in: Blog Posts in Brain Health I remember the first year Matt and I were married. It was an interesting year. Matt worked 30 hours a week and went to school full time. He built stairs. ... Read on »
Not so long ago... by Susie Patient Expert Posted in: Blog Posts in Brain Health Once upon a time I didn't understand. Once upon a time I was ignorant to the sorrows of the world. Once upon a time I had no idea. When I was jus ... Read on »
The truth of the matter by Susie Patient Expert Posted in: Blog Posts in Brain Health .... is that tonight instead of cleaning my kitchen and folding laundry, I pinned puffy sleeves on a bodice and watched a documentary on Netflix. .... is that tonigh ... Read on »