Susan's Posts - Wellsphere

Turkey Day One Day Late by Susan Patient Expert

Posted in: Blog Posts in Children's Health Normally one of my favorite things about the holidays is taking pictures. But I was so busy cooking this year that I only took a few and this is about the best of them, but yo ... Read on »

Happy Thanksgiving! by Susan Patient Expert

Posted in: Blog Posts in Children's Health I wish I was writing some thoughtful words about what I'm thankful for, there are plenty of things, but no I am prepping vegetables and cleaning my house because I'm CRAZY.... ... Read on »

My Towel Drawer?! by Susan Patient Expert

Posted in: Blog Posts in Children's Health Did I mention that Ainsley turned three? And that now she is starting to act three?! At least it wasn't the pasta and rice drawer above it. UH OH! I'd better get some drawer ... Read on »

Rascally Girl by Susan Patient Expert

Posted in: Blog Posts in Children's Health Did I mention that Ainsley turned three? And now she is starting to act 3?! On Saturdays I sit in bed and have coffee and Ainsley sits with me looking at books but she often i ... Read on »

Surgery Cancelled by Susan Patient Expert

Posted in: Blog Posts in Children's Health Why oh why can things never go as planned?! After Ainsley's surgery (tonsillectomy/adenoidectomy/laryngoscopy/chest and head CT/possible vocal cord lasering) was cancelled in ... Read on »

H1N1 - We had it! by Susan Patient Expert

Posted in: Blog Posts in Children's Health We had it. Here's what the CDC says about H1N1(formerly known as swine flu): How do I know if I have the flu? You may have the flu if you have some or all of these symptoms: ... Read on »

Pumpkin Carving by Susan Patient Expert

Posted in: Blog Posts in Children's Health We usually go to a friend's for her annual pumpkin carving party which is always a lot of fun but this year opted to do it at home. We still had fun doing it at home and liste ... Read on »

We Have A New Surgery Date! by Susan Patient Expert

Posted in: Blog Posts in Children's Health Yea! After about 24 phone calls to the cranio-facial surgery scheduler over the past 2 months I finally got the call back with a date! JANUARY 7th! The kids will be on winter ... Read on »

First Week At Her New School by Susan Patient Expert

Posted in: Blog Posts in Children's Health It's been non-stop around here. The day after Ainsley's 3rd birthday she started at her new preschool. It is a developmental preschool inside an elementary school that has gre ... Read on »

Ear Infection, Flu Shots & More New Stuff by Susan Patient Expert

Posted in: Blog Posts in Children's Health We've been sick. It happens every year a few weeks after school starts. It seemed like a very mild cold that has teased us by looking like it was going away just to flare up a ... Read on »

Whew! We Did the IEP! by Susan Patient Expert

Posted in: Blog Posts in Children's Health I freqently tell people about the amazing tracheostomy support group I belong to. The moms (and a few dads and guys) on there are amazing! I have learned SO much from them ove ... Read on »

Orthopedic Follow Up by Susan Patient Expert

Posted in: Blog Posts in Children's Health Ainsley had so much fun bouncing this light up eye ball. We're pretty thrilled that she's learned to throw a ball. The current x-ray of Ainsley's hips. Wednesday we had an ... Read on »

First Ever Emergency Trach Change by Susan Patient Expert

Posted in: Blog Posts in Children's Health When you have a child with a tracheostomy you have to always be prepared for an emergency. Everywhere Ainsley goes we always have to have a suction machine to clear the airway ... Read on »

Videoflouroscopic Swallow Study by Susan Patient Expert

Posted in: Blog Posts in Children's Health Not too happy. Even with bubbles. The x-ray video screen. The black is aspiration of thin liquid. Ainsley's has always been protected from truly aspirating food and/or liqu ... Read on »

Hugs and Kisses by Susan Patient Expert

Posted in: Blog Posts in Children's Health First I apologize for being MIA. You all know I was planning Evie's Harry Potter birthday party. It was so fabulous that I decided to make a blog about it. I know many of you ... Read on »

Good Things Come To Those Who Procrastinate by Susan Patient Expert

Posted in: Blog Posts in Children's Health A friend and I recently had a conversation about taking/making time for our self's. I can hear all you moms out there snicker. Yes...this is a common challenge for moms. This ... Read on »

Surgery Cancelled by Susan Patient Expert

Posted in: Blog Posts in Children's Health Perhaps I'll elaborate later but wanted to get the word out that Ainsley's tonsillectomy/adenoidectomy/vocal cord lasering surgery was cancelled today. Her surgeon is out sick ... Read on »

Ballet Class by Susan Patient Expert

Posted in: Blog Posts in Children's Health Today was a beautiful day in Seattle. This year we decided to switch Evie's ballet studio and thankfully I was able to get her a spot. It was really a matter of convenience si ... Read on »

The Problem With Driving by Susan Patient Expert

Posted in: Blog Posts in Children's Health The problem with driving a child with a tracheostomy is that I cannot suction the trach if I am driving. If I cannot suction the trach when Ainsley needs it she struggles to b ... Read on »

10 Eager Bites by Susan Patient Expert

Posted in: Blog Posts in Children's Health Wooh oo! I think we're making progress. The number of bites is still pretty low at 10 bitty bites but she seemed more eager to eat today. That is an improvement. I really thin ... Read on »

Susan

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