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Make Yourself Heard by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I’ve been doing my Swami gig live these days and recently sat down with a woman I’ve known forever (forever in autism years means since diagnosis). She is stuck between a ... Read on »
What is Missing in the Autism Picture by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Around 14 years ago we were invited to a holiday dinner with the family of one of Max’s friends. I think I had just had Benj, because I had that new baby feeling of not qu ... Read on »
Self-indulgent, self-hating, offensive blog post by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I still think about It sometimes. My brain cells loop alot, rather than moving forward and outward. But I wonder if I get this out on “paper” if it will make the shitty th ... Read on »
Disability, Disorder, Disease — Or Difference? by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I’ve been spending a lot of time with Nat — not unusual — and everything’s been going pretty well. But there are a lot of moments where I have to sigh and remind myself “t ... Read on »
Nat’s first visit to an adult primary care physician by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I took Nat to an adult primary care physician today — my own — for his annual checkup. We have loved our pediatrician for almost 20 years. She grew up with us.  I learned ... Read on »
My Latest Column: Mental Illness, Social Stigma, and Evil by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum My column for the “Cognoscenti” blog on WBUR (Boston’s NPR affiliate) is about mental illness, social stigma, and evil . Read on »
Dignity and the Day Program by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I am in love with Nat’s Day Program provider, ASA (Autism Services Association) . I went to their 50 year celebration today, and I was surrounded by ASA clients and staff. ... Read on »
Empathy by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum So Nat was hurt yesterday by one of his roommates. The roommate had had a meltdown and punched Nat in the chest and also hit the staff person and the other roommate. I was ... Read on »
What I’m learning by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I wish I knew, I wish I knew What makes me me what makes you you. — Cat Stevens Yesterday I was, of course, riding a bike (stationary this time, because it was rai ... Read on »
If you are a Massachusetts resident… by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum This is your chance to effect services for people with developmental disabilities!!  Go to the capwiz application here and contact your state rep about supporting and cosp ... Read on »
Not Your Average MIL by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Here is a piece I wrote for WBUR/NPR’s Cognoscenti column, about my mother-in-law Eleanor – whom I now cherish. Read on »
A Boston-Area Event About Work & Disability by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Michael Weiner is a friend and mentor of mine. He is a special needs financial planner who knows pretty much everything families in transition and beyond 22 need to know a ... Read on »
Red Tape Rant by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Nat had a strange rash today. I got the call from his caregiver, who also sent me photos of the rash via text. I immediately remembered the shingles Nat had a few years ba ... Read on »
The Dreaded Cycles by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Nat’s anxiety has returned. Or should I say, Nat is anxious these days? With someone who doesn’t have autism, I would say the latter. With Nat I say that his anxiety has r ... Read on »
Autism Mommy Swami: Braces by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Dear Swami, What advice do you have regarding getting braces put on?   My son is almost 13, has minimal language and will not understand why his teeth will have ... Read on »
Dealing with what comes up on a walk with Nat by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I got the the following article from Sunday Stilwell at Extreme Parenthood , and it really stirred up some stuff for me. We really have so many of these “odd souls” flyin ... Read on »
Old Deval Had to Fund…E-O-H-H-S by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Here’s a parody I came up with while riding my bike today. Inspired by budget difficulties for our state agencies under EOHHS (Executive Office of Health and Human Service ... Read on »
Tim Shriver: Next Pope Should Be a Mystic by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Once again, my friend and mentor Tim Shriver (Chair of Special Olympics) hits one out of the park, with this brilliant Washington Post oped ! Read on »
Why Job Training Matters for Students w Autism by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum You can read my latest piece on autism and job training in Education Week, right here . Read on »
A Mother’s Dream by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum A few days ago, I dreamed Nat could speak– I mean, really talk, not just the hesitant monosyllabic speech he uses. In the dream, I was riding in an elevator with Nat and a ... Read on »