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New Massachusetts Task Force: Disabilities in Higher Ed by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I am on a Task Force headed up by State Rep Tom Sannicandro and Dr. Dana Mohler-Faria, President of Bridgewater State University. The Task Force is having four hearings (t ... Read on »
Housing Workshop!! by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum This is a terrific organization founded by friend and mentor Cathy Boyle. If you live anywhere near Framingham, Massachusetts and you want to know about housing for someon ... Read on »
Autism Parents: Get Thee to Concord Mass 10/24/13 by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum If you can get to Concord Massachusetts tonight 10/24, to Minuteman Arc (see below), and you are seeking info on putting together a home for your adult child with developm ... Read on »
Help families finance adult autism housing by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Here is a plea for action that came my way via autism advocate Cathy Boyle, who founded a wonderful organization called Autism Housing Pathways . I have edited a little bi ... Read on »
Renaissance Rebirth by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum People ask me where do I get the energy to do this and that. I truly do not understand this question and it makes me feel like I’m a little bit of a freak. But you know wh ... Read on »
The waiting is the hardest part by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I keep going to an image of Nat from yesterday when he was home visiting, of him sitting on the couch across from me, watching. Waiting. He was waiting to be told what wou ... Read on »
Autism Mommy Swami Q & A: Age-Appropriate? by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Dear Swami, My son W will be turning 13 in January. He has limited communication skills and in many ways is like a younger child.  He probably falls in the moderate to ... Read on »
The Radical Right is Wrong by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Because of House Republican behavior in forging ahead with this particular shutdown, our very democracy is now at stake. This is not how our country’s checks and balances ... Read on »
My Latest WBUR/NPR “Cognoscenti” Column by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I write for our NPR affiliate station, WBUR, and last week 9/25, this piece was published. Read on »
Max & Nat and Separation by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum This piece of mine was published in the Jewish Advocate today, October 2: My two sons I t’s the New Year, and autumn, and all of this usually hits me right in the ... Read on »
Stuff I notice could be done better in this world now that I’m almost 51 by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum 1) If you must jaywalk, do not read your phone and go really slowly at the same time. 2) If someone clearly lets you in ahead of them, wave or smile at them. 3) If ... Read on »
Necessity is why this mother invents by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I found myself almost going back in time today as I thought about Nat and reading. I want him to read more. I have wanted that for ages. Reading was in his IEP year after ... Read on »
John & Ben, two menschen by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum We went to a party at Nat’s house. It was all the families plus John, the manager. It’s weird calling him “John, the manager,” because he is so much more. I take pride in th ... Read on »
A Great Idea: Respite Worker Registry by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Finding caregivers and respite workers is perhaps the most difficult task for anyone with a serious disability. Anyone reading this blog probably knows what goes into f ... Read on »
Emergence by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum A lot happened for me 2005-2006. I started this blog, and began to hear from other people who understood. Some bad stuff happened too, things I can barely talk about or th ... Read on »
No Milestone Unturned by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum When Nat was a baby, one of his favorite toys was one he got when he turned a year old. It was a “kitchen,” but it really was a small oven-toaster-microwave in one solid c ... Read on »
College Essays vs. Being a Person by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Here is a Tumblr post from Max, who appears to have found his own compass and knows where to go. I am always learning from that boy.   Read on »
Time for Advocacy by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Here is a message I’m passing on from the Arc of the US. If you are or have a disabled family member, you are likely going to have to use some of the services provided by ... Read on »
Heart Burn by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum For Nat’s entire life I have worried about the fact that he cannot communicate well enough to tell me he is sick. Many autism parents face this and do not know what to do. ... Read on »