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If We Didn’t Have a Hammer by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum My friend and fellow autism advocate Michael Forbes Wilcox has a fascinating mind that many of my readers would like.  Michael was diagnosed with autism/Asperger’s in his ... Read on »
Getting Others To See by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Sometimes it feels like it’s all autism, all the time for me. Most of the time that takes the shape of advocacy work of one sort or another. Yesterday I was filmed along w ... Read on »
My Housing Workshop by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum What: Advocates is joining forces with Massachusetts Families Organizing For Change to present their popular event series, A Full Life Ahead, at our Life Skills & Learni ... Read on »
Important Massachusetts Legislation by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Here it is. The legislation that will help you, family members and self advocates in Massachusetts who either have children with developmental disabilities or are developm ... Read on »
Good Autism Housing Takes Good Legislation: H.3364 by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Today at the Massachusetts State House there was a hearing on bill H. 3364, “An Act to promote housing creation for persons with disabilities.” The hearing room was full — ... Read on »
Autism Mommy Swami: Planning Ahead for Housing by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Dear Autism Mommy Swami: How do you get started on finding a place for your adult child to live? How do you begin to feel comfortable that he will be treated well? Is ... Read on »
I’d Like To Teach the World To Stim — in Perfect Harmony by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum The other day I had an email from an NYU sophomore asking if she could interview me for her Oral History class project. She wanted to know about mothering a child with aut ... Read on »
Them And “Her” by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Probably one of the biggest joys I’ve found in being a mother is my children’s ability to surprise me. I experienced this while talking to my middle son Max the other day ... Read on »
Yes, In My Backyard! YIMBY! by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Dear Readers, If you live in Newton, Mass, please sign the attached petition. Don’t let the neighbors NIMBY their way out of this wonderful new housing project! See be ... Read on »
What I Would/Should Ask Nat by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I often feel troubled by not understanding Nat and his state of mind.  I do not believe in my heart that what you see is always what you get. I wish I could. People say, “ ... Read on »
Ode to Rock Star and Autistic Man, Scott Lentine by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I have written about poet, autistic, and fellow advocacy traveler Scott Lentine, but I am moved to write again. I heard Scott on the radio today, and I was smiling ear to ... Read on »
Welcome to the Autistic Community by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum The Arc of the US’s Autism Now Center has partnered with the Autism Self-Advocacy Network (ASAN) and has written an excellent booklet, “Welcome to the Autistic Community!” ... Read on »
Wretches and Jabberers by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum “Dispel the darkness around us wretches. Take us for real people. Don’t sideline us.” –Tracy Thresher, “Wretches and Jabberers” The other night I had the opportunity t ... Read on »
Touching the Sky by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Yesterday I climbed a mountain on a bike.  I hired a guide, Brian from Santa Barbara Fitness Tours, and together we planned our trek. Brian was a young man in his late 20′ ... Read on »
Must Read: The Story of Beautiful Girl by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I just finished reading Rachel Simon’s The Story of Beautiful Girl , about Lynnie, a young woman with intellectual disabilities who is an inmate in an institution for the ... Read on »
What if Nat Woke Up, Cured? by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I wrote this more than ten years ago, and it can be found in my first book, Making Peace With Autism: One Family’s Story of Struggle, Discovery, and Unexpected Gifts. (T ... Read on »
What’s Wright and Wrong about Autism Speaks by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Tonight I attended a debut of the John Block documentary for Autism Speaks, “Sounding the Alarm.” Mass General Lurie Center for Autism hosted. The film was mostly what I e ... Read on »
My Column on the Autism Speaks-ASAN Rift by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Here is my latest Cognoscenti column, about the rift in the autism community that can be loosely characterized as being between autism parents and self advocates, or, Aut ... Read on »
Autism Mommy Swami: Your Marriage by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum The Swami had another email recently from a mom who, among other things, wanted to know how to keep her marriage strong in the face of some very difficult family challenge ... Read on »
Autism Mommy Swami: Aggression?? by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum The Swami had an email today from a lovely mom whose young tween was going through some difficulties with acting out aggressively. She wants to help him with whatever is b ... Read on »