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Waiting for the light to go on by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum This morning while driving I realized I was behind a van, one of those tall white ones, that transport either school kids with disabilities, or adults in day programs. The ... Read on »
Breaking News: Congress Aiming At SSDI by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum This information below comes directly from the Arc of the United States. The new Congress is now stealthily pushing to reduce Social Security Disability Insurance benefits ... Read on »
I am Nat’s Ghostwriter by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Nat’s going home now. It’s always a blue-tinged moment for me when he leaves. I never fail to wonder if he is doing what he really wants in life. Is Self-Determination an ... Read on »
What Matters Most by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum H ere is a piece I wrote about an event I attended on December 9 at the John F Kennedy Library in Boston, for Tim Shriver to talk about his new book, Fully Alive: Discover ... Read on »
Fragile Talking by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Warm sunny Sunday Come sit, my darling You are yellow and blue but not afraid, not sad Together we dent the couch, sinking in You’re so close, I breathe yo ... Read on »
PLEASE HELP: MISSING by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Kaleb Gaudinier, Missing from Clinical Support Options Respite in Florence, Massachusetts. He weighs only 110-115 lbs. and is in a fragile state of starvation and dehydrat ... Read on »
Self-Determination Should Precede Integration by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum “We should all have equal rights. We need a place to live, too. Not just typical people…any number of people that you wish.” A developmentally disabled client of Jewish Fa ... Read on »
Massachusetts: DDS changing Medicaid-based rules by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum If you live in Massachusetts near Wellesley, or Westfield, PLEASE consider attending this hearing! Maybe work it out so that your autistic adult family member/loved one at ... Read on »
The Circle of Friends by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I was in the lobby when those first notes from “Circle of Life” broke through at the autism-friendly Autism Speaks-supported Lion King at the Boston Opera House. I was sta ... Read on »
My Facebook Troubles by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Okay, and here is my latest Washington Post Oped , about my troubles with Facebook. It’s all true, bro. Yeah, it’s already up on FB, too. Read on »
The Untapped Potential: Autistic Adults by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Here is where you can find my latest piece for WBUR-FM’s “Cognoscenti” column , a propos to President Obama’s recent authorization of $450,000,000 in grant money to commu ... Read on »
Can you feel the love on October 11? by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Family-friendly Broadway is nothing new, and its success is no surprise. But autism-friendly Broadway is a stroke of marketing genius. Billed as “judgment-free, ” these sh ... Read on »
Great News About the ABLE Act! by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum This article is from the Disability Scoop, by Michelle Diament . If you are a person with a disability and you have Medicaid benefits, the bipartisan ABLE Act would allow ... Read on »
The Stealth Mommer by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum I decided to be the Stealth Mommer today. I was so anxious as I drove to Nat’s workplace. But I told myself there was no need to worry, that I would not let him see me. He ... Read on »
Love nat by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Today Nat wanted to do some Facebooking. The way we do that is I have him look at the column of all the people who are logged on at the moment — the green dots show him — ... Read on »
The Heartbreaking Quiet by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Nat comes home every weekend. He is quiet. Sometimes he’s “activated” as his psychopharmacologist says — I hate that. It is such an inhumane way to describe someone. He’s ... Read on »
Our Journey Into Shared Living by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Here is an essay I wrote for our service provider’s newsletter, about Shared Living for Nat. Enjoy! Read on »
New Development for Disabled Housing Mortgages! by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Valuable home-purchasing information for anyone in the country with a developmental disability looking for a possible low percentage down mortgage. I received this informa ... Read on »
Thinking About Autism Housing? by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum Another great resource for Massachusetts autism adult housing: Housing 101 Workshops you can set up for your own organization. Autism Housing Pathways will bring their wor ... Read on »
Massachusetts Families: Terrific Opportunity by Susan S. Patient Expert Posted in: Blog Posts in Autism & Autism Spectrum If you are a  Massachusetts resident living with a developmental disability, or if you are a Massachusetts family with a loved one with this diagnosis, pay heed! Especiall ... Read on »