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Sue J. Patient Expert

Wilmington, Delaware
I have had Chronic Fatigue Syndrome (CFS) since March 2002. Both of my sons, ages 10 and 14, have... Full Bio
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How My Son Went From Couchbound to College by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I guess that post title is a bit misleading because the honest truth is that we really don't know exactly what caused such a miraculous improvement in our son that allowed h ... Read on »
Movie Monday 4/15 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Another busy week here but kind of a strange weekend. My husband went to visit his father in Oklahoma, so we missed having him around this weekend (and missed being able to ... Read on »
ME/CFS Charity Volleyball Fundraiser by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Want an opportunity to help ME/CFS research from your couch or bed? This lovely young woman from George Washington University whose aunt has CFS has set up a charity voll ... Read on »
Movie Monday 4/8 (on Tuesday) by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I really tried to get to this post yesterday, but severe allergies have me down this week. We went from snow 2 weeks ago and temperatures in the 20's one morning last week t ... Read on »
Last Day to Register for Attending OR VIEWING FDA Meeting by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Oops - I almost missed this. If you want to watch the webcast of the upcoming FDA meeting from home, you need to register online by midnight TONIGHT! Use this link to reg ... Read on »
Two Ways to Help ME/CFS Treatment Move Forward by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome On April 25-26, the U.S. Food & Drug Administration (FDA) will be holding its first-ever FDA Workshop on Drug Development for Chronic Fatigue Syndrome (CFS) and Myalgic Ench ... Read on »
Post-Event Crash by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome As most of you know, I have generally been better in recent years, thanks mainly to beta blockers and Imunovir . I have more good days and fewer bad days. I can take walks a ... Read on »
Movie Monday 3/18 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We had a long and tiring weekend. My dad and his wife were visiting, and we spent all day Saturday at my uncle's funeral nearby. Visiting hours in the morning, church servic ... Read on »
Exciting New ME/CFS Research Looks At Infections by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I am way behind in reading up on recent ME/CFS research, just like I am behind in everything else these days! So, this update was posted on Phoenix Rising back in February, ... Read on »
Movie Monday 3/11 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Craig finally went back to school on Friday!!  Hurray! Even better, he didn't crash afterward, worked on make-up work all weekend, and went to school today, too! He seems ba ... Read on »
Movie Monday 3/4 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Yet another long week of being mostly housebound with my son, but we are finally seeing signs of improvement. He did perk up a bit, starting on Friday, and had a decent week ... Read on »
Eleven Years Ago Today by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Eleven years ago today, I woke up with an incredibly sore throat, feeling achy all over, and thought I had caught a virus. You all know how that story ends. It is still a ... Read on »
New ME/CFS Website Offers Support by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I have still been tied up taking care of my son, with little time for any writing or blogging, but I wanted to take a moment to tell you about a new ME/CFS website that ... Read on »
Movie Monday 2/25 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome My son, Craig, is still pretty much incapacitated - knee surgery and a second sinus infection have triggered a severe CFS flare-up, way beyond what he usually experiences, s ... Read on »
Post-Surgery Recovery by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome My son is the one who had surgery a week ago, but both he and I have been trying to recover this week. It's been a rough month here, especially for him. Our 15-year old s ... Read on »
Happy Mardi Gras! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome It's Fat Tuesday - Happy Mardi Gras, everyone! We used to live in New Orleans, so we celebrate Mardi Gras in high style here at our house. Since CFS, we have had to s ... Read on »
Movie Monday 2/11 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We had a very busy week and weekend, culminating in our annual Mardi Gras party Saturday evening. In the old days, we'd have over 50 people here! It's a much smaller affair ... Read on »
Second Successful LDN Study for Fibromyalgia by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Great news! Stanford University has finished its second study on treating fibromyalgia with low-dose naltrexone , with very good results and no side effects reported. ... Read on »
Movie Monday 2/4 (on Tuesday) by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Oops...I seem to have missed Monday....and almost Tuesday, too! I had 4 back-to-back appointments yesterday so had no online time at all. Whew, long day. And another one tod ... Read on »
New ME/CFS Treatment: Manual Physical Therapy by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome A series of articles was recently posted on the Research 1st website (a highly recommended source for the latest news in ME/CFS research) that prompted me to tell you a bit ... Read on »