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Sue J. Patient Expert

Wilmington, Delaware
I have had Chronic Fatigue Syndrome (CFS) since March 2002. Both of my sons, ages 10 and 14, have... Full Bio
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Movie Monday 10/15 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Still struggling a bit here.  Craig finally went back to school today, three weeks after his knee surgery!  I know I said the same thing last Monday, but that was short-live ... Read on »
Fall 2012 CFSAC Videos, Day 2 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome So, scroll down to see the video clips form Day 1 of the recent CFSAC meeting in Washington, DC.  And here are the clips from Day 2 Day 2 Opening Remarks and Agency Updates ... Read on »
Video Clips of CFSAC Meeting, Day 1 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Last week (was it only just last week?), I attended the Fall 2012 CFS Advisory Committee Meeting at the Department of Health and Human Services.  I was only able to be there ... Read on »
The Daily Battle by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I was thinking (again) today about how every single thing I do every single day is such a struggle and requires such a huge effort of will.  No one else - not even the peopl ... Read on »
Movie Monday 10/8 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Well, we had another loooong week with Craig stuck at home, trying to recover from his knee surgery.  He finally returned to school today - woohoo!!  Not sure if he will mak ... Read on »
Today's the Day I'm Not Doing Anything by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Don't you just love Bruno Mars' The Lazy Song?  It could be an anthem for ME/CFS (without "lazy" in the name of course), and it perfectly describes how I am feeling today ... Read on »
CFSAC Meeting - My Testimony by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome The U.S. Department of Health and Human Services' CFS Advisory Committee (CFSAC) will be meeting tomorrow and the next day, October 3-4, 2012, in Washington, DC. I will b ... Read on »
Movie Monday 10/1 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Still struggling here.  I am feeling better, but our son is still in bad shape from his knee surgery last week .  He felt better on Saturday - enough to manage without the p ... Read on »
Respected and Beloved CFS Advocate Dies by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I have written here before about Dr. Rich Van Konynenburg's Simplified Methylation Protocol .  This tireless researcher devoted years of his life to taking a complex treatme ... Read on »
One Day At a Time by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Once again, sorry for being absent so much lately.  It has been a difficult week, and I have had no time or energy for blogging (so, also sorry I haven't been visiting blogs ... Read on »
Mourning Losses by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I have had ME/CFS for ten years now.  You would think that I would be past all the disappointments and be done mourning the life I once had, that I would have adjusted by no ... Read on »
Hitting the Wall and Craving Comfort by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I hit the wall last night during a book group meeting and had to abruptly leave in the middle of our discussion.  I literally ran to my car, feeling as if I would fall apart ... Read on »
Movie Monday 9/17 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Now that school has started and Ken and Craig have to get up so early (not me!), we don't have much time for movies, but Ken and I did watch one this weekend Crazy Stupid ... Read on »
Gluten-Free/Dairy-Free Diet Update by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Well, it has now been 7 weeks since my son, Jamie, and I started a gluten-free and dairy-free (and oat-free) diet, on the advice of a biochemist/dietician we have been con ... Read on »
Movie Monday 9/10 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome  I am determined to try to stay on top of my blogging this week!  So here is my Monday post...on Monday! Woohoo!  I am so proud of myself. For those interested, here is a ... Read on »
Update on College Life with CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Oh, man...it's been ages since I've posted anything here AGAIN.  Sorry about that.  Even though the kids have been back to school, I have still been overloaded, battling a c ... Read on »
Movie Tuesday 9/4 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Whoa, a whole week slipped by without a post - and Movie Monday is now Movie Tuesday...almost Wednesday.  Sorry for the absence. Jamie started college last week and Craig ... Read on »
Living a Cautious Life by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome As anyone who has lived with ME/CFS for any length of time comes to understand, the most effective way to manage this complex, debilitating illness is also the most difficul ... Read on »
Movie Monday 8/20 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Sorry I missed Movie Monday - and everything else! - last week.  One more week of insanely crazy busy and then hopefully things will slow down to just normal crazy busy. ... Read on »
Quick Update and Good News! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Sorry I haven't been posting much - far too busy this week for even a Movie Monday post - I will try to catch up next week.  This morning I need to bake a gluten-free/dairy- ... Read on »