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Sue J. Patient Expert

Wilmington, Delaware
I have had Chronic Fatigue Syndrome (CFS) since March 2002. Both of my sons, ages 10 and 14, have... Full Bio
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Hitting the Wall and Craving Comfort by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I hit the wall last night during a book group meeting and had to abruptly leave in the middle of our discussion.  I literally ran to my car, feeling as if I would fall apart ... Read on »
Movie Monday 9/17 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Now that school has started and Ken and Craig have to get up so early (not me!), we don't have much time for movies, but Ken and I did watch one this weekend Crazy Stupid ... Read on »
Gluten-Free/Dairy-Free Diet Update by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Well, it has now been 7 weeks since my son, Jamie, and I started a gluten-free and dairy-free (and oat-free) diet, on the advice of a biochemist/dietician we have been con ... Read on »
Movie Monday 9/10 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome  I am determined to try to stay on top of my blogging this week!  So here is my Monday post...on Monday! Woohoo!  I am so proud of myself. For those interested, here is a ... Read on »
Update on College Life with CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Oh, man...it's been ages since I've posted anything here AGAIN.  Sorry about that.  Even though the kids have been back to school, I have still been overloaded, battling a c ... Read on »
Movie Tuesday 9/4 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Whoa, a whole week slipped by without a post - and Movie Monday is now Movie Tuesday...almost Wednesday.  Sorry for the absence. Jamie started college last week and Craig ... Read on »
Living a Cautious Life by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome As anyone who has lived with ME/CFS for any length of time comes to understand, the most effective way to manage this complex, debilitating illness is also the most difficul ... Read on »
Movie Monday 8/20 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Sorry I missed Movie Monday - and everything else! - last week.  One more week of insanely crazy busy and then hopefully things will slow down to just normal crazy busy. ... Read on »
Quick Update and Good News! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Sorry I haven't been posting much - far too busy this week for even a Movie Monday post - I will try to catch up next week.  This morning I need to bake a gluten-free/dairy- ... Read on »
Feeling Cranky by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I was trying to think of a clever title for today's post then decided to just go with the straight truth.  I am in an awful mood this morning, feeling run-down, worn out, si ... Read on »
Movie Tuesday 8/7 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Somehow Monday slipped away with no time for a CFS Blog post. We are all doing a bit better this week - thank you all for the wonderful supportive comments and encouragem ... Read on »
Yummy Gluten-Free/Dairy-Free Pancakes by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Success!  Jamie sat down at the breakfast table this morning, put a bite of pancake into his mouth and said, "It's a winner!"  Developing a recipe for gluten-free/dairy-free ... Read on »
Grieving Losses and Moving On…Again by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Yesterday was an emotional rollercoaster for our family.  On second thought, that’s not an accurate analogy because there were no ups, just downs.  We finally had our muc ... Read on »
Movie Monday 7/30 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Well, my week of quiet solitude is over!  We drove to pick up the kids on Saturday - everyone was totally exhausted from their week of sailing (including my mom and her husb ... Read on »
New Diet Countdown! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Our new gluten-free, dairy-free diet begins with dinner tomorrow, when our kids will return home from a week with their grandparents.  I am worried about how this will ... Read on »
Getting Ready to Go Gluten-Free by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome So, after 10 years of living with ME/CFS in our household (10 for me, and 8 for each of our sons), we are embarking on a new CFS adventure:  Jamie and I are going to try goi ... Read on »
Movie Monday 7/23 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Ahhhhh...what's that sound?  It's silence.  Our sons are off for a week on their grandparents' sailboat, along with their cousin, and Ken and I are enjoying a little down ti ... Read on »
Movie Monday 7/16 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Wow, what a week!  It has been insanely busy here, mostly with nonstop medical appointments for my kids.  We're trying to fit everything in while school is out, plus meet de ... Read on »
Helping Family Understand ME/CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome A friend e-mailed me earlier this week about how she was both looking forward to and dreading a vacation with extended family.  She said her family just didn’t understand ... Read on »
Movie Monday 7/9 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Whew, when can I go back on vacation?  It's been so hectic and busy since we came back.  I miss those vacation days with no stress, no responsibilities, no obligations...ahh ... Read on »