Health knowledge made personal

Sue J. Patient Expert

Wilmington, Delaware
I have had Chronic Fatigue Syndrome (CFS) since March 2002. Both of my sons, ages 10 and 14, have... Full Bio
› Share page:

Posts

Sort by: Most recent | Name
Movie Monday 3/18 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We had a long and tiring weekend. My dad and his wife were visiting, and we spent all day Saturday at my uncle's funeral nearby. Visiting hours in the morning, church servic ... Read on »
Exciting New ME/CFS Research Looks At Infections by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I am way behind in reading up on recent ME/CFS research, just like I am behind in everything else these days! So, this update was posted on Phoenix Rising back in February, ... Read on »
Movie Monday 3/11 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Craig finally went back to school on Friday!!  Hurray! Even better, he didn't crash afterward, worked on make-up work all weekend, and went to school today, too! He seems ba ... Read on »
Movie Monday 3/4 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Yet another long week of being mostly housebound with my son, but we are finally seeing signs of improvement. He did perk up a bit, starting on Friday, and had a decent week ... Read on »
Eleven Years Ago Today by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Eleven years ago today, I woke up with an incredibly sore throat, feeling achy all over, and thought I had caught a virus. You all know how that story ends. It is still a ... Read on »
New ME/CFS Website Offers Support by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I have still been tied up taking care of my son, with little time for any writing or blogging, but I wanted to take a moment to tell you about a new ME/CFS website that ... Read on »
Movie Monday 2/25 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome My son, Craig, is still pretty much incapacitated - knee surgery and a second sinus infection have triggered a severe CFS flare-up, way beyond what he usually experiences, s ... Read on »
Post-Surgery Recovery by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome My son is the one who had surgery a week ago, but both he and I have been trying to recover this week. It's been a rough month here, especially for him. Our 15-year old s ... Read on »
Happy Mardi Gras! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome It's Fat Tuesday - Happy Mardi Gras, everyone! We used to live in New Orleans, so we celebrate Mardi Gras in high style here at our house. Since CFS, we have had to s ... Read on »
Movie Monday 2/11 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We had a very busy week and weekend, culminating in our annual Mardi Gras party Saturday evening. In the old days, we'd have over 50 people here! It's a much smaller affair ... Read on »
Second Successful LDN Study for Fibromyalgia by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Great news! Stanford University has finished its second study on treating fibromyalgia with low-dose naltrexone , with very good results and no side effects reported. ... Read on »
Movie Monday 2/4 (on Tuesday) by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Oops...I seem to have missed Monday....and almost Tuesday, too! I had 4 back-to-back appointments yesterday so had no online time at all. Whew, long day. And another one tod ... Read on »
New ME/CFS Treatment: Manual Physical Therapy by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome A series of articles was recently posted on the Research 1st website (a highly recommended source for the latest news in ME/CFS research) that prompted me to tell you a bit ... Read on »
Approved for Social Security Disability by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome People keep asking me whether I have heard back yet, since my final hearing on Social Security disability back in December. Yes, my letter came in the mail a couple of w ... Read on »
Movie Monday 1/28 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome It's been a while since I wrote a Movie Monday post because I can't get my family to watch any movies with me! They have all been into various TV shows On Demand, on Amazon ... Read on »
My Health Goals for 2013 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I haven't been posting much here lately. For us, the hectic holiday season seems to last right through February. We make it through Christmas and New Year, then quickly move ... Read on »
More on Exercise and CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome For those who are interested in hearing more on the subject of safe exercise for ME/CFS patients, Jennie Spotila has once again written an excellent and comprehensive post o ... Read on »
Dr. Klimas's Exercise Program for CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome On Monday, the CDC hosted the second in a series of phone conferences with ME/CFS patients, PCOCA: Patient Centered Outreach and Communication Activity. I wasn't able to par ... Read on »
Misunderstandings and Misperceptions by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I called my mother on Monday of this week. I was feeling pretty crashed (I really shouldn't make phone calls in the afternoon, my low time of day) and perhaps a bit cranky.  ... Read on »
Movie Monday 1/7 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We had a busy week, traveling back from Oklahoma and getting back into our normal routine. So not a lot of time for movies, though we fit in two On New Year's Eve, at m ... Read on »