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Sue J. Patient Expert

Wilmington, Delaware
I have had Chronic Fatigue Syndrome (CFS) since March 2002. Both of my sons, ages 10 and 14, have... Full Bio
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Young People with ME/CFS - the Long Road to Independence by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome By the time most kids hit 18, they are more than ready to leave home and get out on their own. In many cases, they've been struggling to gain independence for years already, ... Read on »
Movie Monday 9/17 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome A day late (again) - my schedule has gotten very busy now that soccer season has begun for my son. I normally set aside afternoons (after my nap) for blogging activities, bu ... Read on »
Comprehensive ME/CFS Research Initiative at Stanford by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Cort Johnson has done it again - written a fascinating, complete overview on his blog of a critical initiative going on in the ME/CFS world. You can read the full article he ... Read on »
Movie Tuesday 9/3 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I wanted to resume my Movie Monday feature this week, then Monday quietly slipped by with the holiday weekend and the kids back home - oops! But, Ken and I did have plenty o ... Read on »
Finding Joy in Everyday Moments by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Sunset over Lake Ontario - Selkirk Shores State Park, NY As I mentioned in my recent vacation post, I struggle with trying to lessen the stress of my everyd ... Read on »
Vacation and Re-Entry by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome One of my favorite things in Maine - the beautiful coastline! I am finally back home and back online. Sorry it has taken me a while to return to my blog, bu ... Read on »
Leave of Absence - August by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Just wanted to post a quick note so that no one worries about me! We have a crazy busy month coming up, with vacation (yes, we get to go!) and all the exhausting prep tha ... Read on »
Movie Monday 7/29 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome So, our sons were gone all last week, sailing with their grandparents off the coast of Rhode Island, along with their cousins. I really needed the time to myself, though the ... Read on »
Listening To Your Body by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome As most people with ME/CFS quickly learn, listening to your body is probably the most important thing you can do to improve your quality of life and prevent constant, unpred ... Read on »
Movie Monday 7/22 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I have missed several Movie Mondays in a row, so I will do a quickie catch-up today. We saw a few movies as a family recently, including one in the theater! And this weekend ... Read on »
Up and Down and All Around by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Whew, I feel like I've been through the spin cycle a few times. Sorry I haven't posted here in a while. This summer generally has just been so busy and exhausting for me - t ... Read on »
Just. So. Exhausted. by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I had good intentions this week to write a couple of in-depth blog posts, but I am still struggling - every day - just to get through the day and do all the necessary stuff ... Read on »
Disappointed, Again by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I had a great plan for today. First, this week is supposed to be my Anti-Procrastination/Catch-up Week - I decided on Sunday to set aside this week to get all the things don ... Read on »
May 2013 CFSAC Meeting Videos Posted by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome CFSAC has posted videos from its most recent meeting, held on May 22 - 23, 2013. Here are all the links (copied from an e-mail, so I don't know what the formatting will look ... Read on »
Mixed Feeling About Reunions by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I've been on an emotional rollercoaster lately. The silly reason? A bunch of my old friends are all going to our college reunion this summer. One friend started a Facebook e ... Read on »
Movie Monday by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Well, we made it through the first week of Craig's post-op recovery. As I mentioned in my last post, he is doing great - much better than expected - and avoided a CFS crash ... Read on »
Post-Op Recovery by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Well, I think I am finally recovered from my son's surgery - ha ha. I know that sounds strange (maybe not to you guys), but the two-day ordeal at the hospital took a lot out ... Read on »
Movie Monday 6/10 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Whew - a long and difficult week here - school ended on Thursday for our 15-year old son, and he had knee surgery on Friday. I knew it would be a long day for all of us, but ... Read on »
Movie Monday 6/3 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Another week gone by without much blog posting - so sorry for that! Things were crazy busy here last week. My oldest son came home from college (victorious after a great fre ... Read on »
Movie Monday 5/27 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Happy Memorial Day to everyone in the U.S.! I've been thinking a lot today about my grandfather, my uncle, and my great-uncles, who all served in the military at various tim ... Read on »