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Sue J. Patient Expert

Wilmington, Delaware
I have had Chronic Fatigue Syndrome (CFS) since March 2002. Both of my sons, ages 10 and 14, have... Full Bio
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Movie Monday 2/25 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome My son, Craig, is still pretty much incapacitated - knee surgery and a second sinus infection have triggered a severe CFS flare-up, way beyond what he usually experiences, s ... Read on »
Post-Surgery Recovery by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome My son is the one who had surgery a week ago, but both he and I have been trying to recover this week. It's been a rough month here, especially for him. Our 15-year old s ... Read on »
Happy Mardi Gras! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome It's Fat Tuesday - Happy Mardi Gras, everyone! We used to live in New Orleans, so we celebrate Mardi Gras in high style here at our house. Since CFS, we have had to s ... Read on »
Movie Monday 2/11 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We had a very busy week and weekend, culminating in our annual Mardi Gras party Saturday evening. In the old days, we'd have over 50 people here! It's a much smaller affair ... Read on »
Second Successful LDN Study for Fibromyalgia by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Great news! Stanford University has finished its second study on treating fibromyalgia with low-dose naltrexone , with very good results and no side effects reported. ... Read on »
Movie Monday 2/4 (on Tuesday) by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Oops...I seem to have missed Monday....and almost Tuesday, too! I had 4 back-to-back appointments yesterday so had no online time at all. Whew, long day. And another one tod ... Read on »
New ME/CFS Treatment: Manual Physical Therapy by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome A series of articles was recently posted on the Research 1st website (a highly recommended source for the latest news in ME/CFS research) that prompted me to tell you a bit ... Read on »
Approved for Social Security Disability by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome People keep asking me whether I have heard back yet, since my final hearing on Social Security disability back in December. Yes, my letter came in the mail a couple of w ... Read on »
Movie Monday 1/28 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome It's been a while since I wrote a Movie Monday post because I can't get my family to watch any movies with me! They have all been into various TV shows On Demand, on Amazon ... Read on »
My Health Goals for 2013 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I haven't been posting much here lately. For us, the hectic holiday season seems to last right through February. We make it through Christmas and New Year, then quickly move ... Read on »
More on Exercise and CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome For those who are interested in hearing more on the subject of safe exercise for ME/CFS patients, Jennie Spotila has once again written an excellent and comprehensive post o ... Read on »
Dr. Klimas's Exercise Program for CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome On Monday, the CDC hosted the second in a series of phone conferences with ME/CFS patients, PCOCA: Patient Centered Outreach and Communication Activity. I wasn't able to par ... Read on »
Misunderstandings and Misperceptions by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I called my mother on Monday of this week. I was feeling pretty crashed (I really shouldn't make phone calls in the afternoon, my low time of day) and perhaps a bit cranky.  ... Read on »
Movie Monday 1/7 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We had a busy week, traveling back from Oklahoma and getting back into our normal routine. So not a lot of time for movies, though we fit in two On New Year's Eve, at m ... Read on »
What CFS Patients Want Well People To Know by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome The Massachusetts CFIDS/ME and FM Association recently conducted a survey of patients about their relationships with well family and friends (and the outside world in genera ... Read on »
Looking Back at 2012 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Happy New Year! I just love the start of a new year. It feels hopeful to me, a fresh start, and I am always eager to get back to "real life" after the holiday season. ... Read on »
Movie Monday 12/31 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Happy New Year's Eve! Sorry I haven't been blogging much, but the holiday season has been hectic and exhausting. So, I will catch up on a few missed Movie Mondays today. ... Read on »
Hectic Holidays! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I am sitting alone in our family room in a completely silent house, after a week of non-stop work and utter chaos!  Ahhhh....silence and solitude. I can hardly believe it.  ... Read on »
Low Expectations by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome How's this for a cold splash of water on the face? My lawyer just called about my disability hearing tomorrow. There are 5 disability judges in Delaware, and we have ... Read on »
A Season of Hope by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I haven't had much energy left for blog writing the past two weeks, but the good news is that I have been using up all of my energy on some very worthy projects that give me ... Read on »