Sue J.'s Posts - Wellsphere

Jamie's Slow, Gradual Improvement by Sue J. Patient Expert

People's HealthBlogger Awards 2009 - Best 100 Winner!

Posted in: Blog Posts in Chronic Fatigue Syndrome I feel like I jinxed myself earlier this week by posting about how great I was feeling! I am now badly crashed, in bed, with sore throat and aches. I don't think it's anyt ... Read on »

Dr. Konynenburg's Simplified Methylation Protocol by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome This is Rich Van Konynenburg's latest Simplified Methylation Protocol, last revised on March 30, 2011 SIMPLIFIED TREATMENT APPROACH FOR LIFTING THE PARTIAL MET ... Read on »

A Surge of Energy! by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome Wow, I am getting so much done this week! It is the exact opposite of last week, when exposure to Craig's cold left me feeling run-down and I got nothing done. Yin and yang ... Read on »

CFSAC Meeting Scheduled for June 13 - 14 by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome The US Department of Health and Human Services has announced dates for the "spring" meeting. The details are reprinted below. They are not yet accepting requests for pub ... Read on »

Looking for Feedback on Word Verification by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome Hi, all - I have noticed lately that Blogger's word verification has become more difficult (and presumably more secure). I don't really have cognitive problems most of t ... Read on »

New CFS Brain Study Shows Reduced Activity by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome My Yahoo Alerts e-mail this morning was filled with articles and postings on a brand-new CFS study just released (but not yet published) by the CDC (believe it or not!). He ... Read on »

Big News: I Am Lyme-Free! by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome One of the many things keeping me busy this week was our monthly trek up to our Lyme doctor in New Jersey yesterday. The first thing I said to the doctor during my part of ... Read on »

Sign Up for CFSAC Notification by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome No, I haven't fallen off the face of the earth! Sorry for the long silence - we were away on spring break last week, and this week is just insanely busy. I promise to catc ... Read on »

Speak Up About ME - Early Onset ME/CFS by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome I wanted to tell you about the latest awareness efforts from Speak Up About ME, a group started by the mother of two teen boys with severe ME/CFS to help bring more attentio ... Read on »

Movie Monday 4/2 by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome What a week. Jamie made it into school a few times, so that was good. But Craig is still on crutches for his injured knee (we are still waiting for the results of his MRI) ... Read on »

Movie Monday 3/26 by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome Whew...another rollercoaster week here! First, the good news: Jamie has been steadily improving after months of being severely debilitated. He went to 1-3 classes a day 3 ... Read on »

Quote It Saturday 3/24 by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome Ah, the weekend. We were camping last weekend- which was wonderful - but it left us without our usual catch-up, clean-up time on the weekend. So, the house is a mess a ... Read on »

Example School Accommodations for Kids with CFS by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome In the first part of this post on school accommodations forkids with ME/CFS, fibromyalgia, POTS, and related illnesses, I explained somebasics: 504 Plans, IEPs, finding a ... Read on »

School Accommodations for Kids with CFS and Related Illnesses by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome First, a bit of background for those who may not be regularreaders of this blog. We have twosons, now ages 17 and 14, who have had ME/CFS since they were 10 and 6 ... Read on »

Camping Season! by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome With this unusually warm March, we were able to go camping this weekend - just a brief 24-hour getaway, but it did us all a lot of good. It had been a full year since we' ... Read on »

10 Years by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome March 16 already? Huh. Since 2002, March 1 has been a significant day for me, the anniversary of when I got sick. I am usually very aware of that date each year, feeling ... Read on »

Movie Monday 3/12 by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome Ah, another week gone by with just a single blog post. Sorry I have been so quiet lately - I have been 100% focused on taking care of my son. Last week, I even began tryin ... Read on »

Movie Monday 3/5 by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome Well, with so many crash days (weeks?) lately, I missed several Movie Mondays here, though we have watched quite a few movies, trying to keep our spirits up. So, first a ve ... Read on »

Quote It Saturday 3/3 by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome It's been a very long time since I've posted a Quote It Saturday post; I am usually too busy on weekends for any blogging, but I am feeling rather crashed today and deci ... Read on »

A Very Brief Respite by Sue J. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome I know I haven't been writing here much lately. I actually haven't been writing much of anything - my CFS blog, my book blogs, certainly nothing that might actually earn me ... Read on »

Sue J.

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