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Sue J. Patient Expert

Wilmington, Delaware
I have had Chronic Fatigue Syndrome (CFS) since March 2002. Both of my sons, ages 10 and 14, have... Full Bio
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WEGO Post #19: 3 Tips for Caregivers by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome To celebrate National Health Blog Post Month, WEGO Health is hosting a 30 Days, 30 Posts Challenge for health-related bloggers. Each day, they have a different topic for a ... Read on »
WEGO Post #15: 3 Favorite Chronic Illness Blogs by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome To celebrate National Health Blog Post Month, WEGO Health is hosting a 30 Days, 30 Posts Challenge for health-related bloggers. Each day, they have a different topic for a ... Read on »
WEGO Post #13: How Has Illness Changed You? by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome To celebrate National Health Blog Post Month, WEGO Health is hosting a 30 Days, 30 Posts Challenge for health-related bloggers. Each day, they have a different topic for a ... Read on »
Movie Tuesday 11/12 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Too much to do yesterday with both boys at home and too achy to blog in the evening, so Movie Monday is a day late this week. I didn't want to skip it, though, because we wa ... Read on »
WEGO Post #11: How My Daily Nap Saves Me by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome To celebrate National Health Blog Post Month, WEGO Health is hosting a 30 Days, 30 Posts Challenge for health-related bloggers. Each day, they have a different topic for a ... Read on »
WEGO Post #8: Favorite Quotes by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome To celebrate National Health Blog Post Month, WEGO Health is hosting a 30 Days, 30 Posts Challenge for health-related bloggers. Each day, they have a different topic for a ... Read on »
WEGO Post #6: Mary Poppins Carpet Bag by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Did you know that November is National Health Blog Post Month? No? I didn't, either. To celebrate, WEGO Health is hosting a 30 Days, 30 Posts Challenge for healt ... Read on »
A Change of Scenery by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome  Sometimes a change of scenery can do wonders! As most of you know, I've been going through a bad period this past month, and last week was just as bad. Friday I pretty ... Read on »
Still Down and Out by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I had all sorts of plans for informative posts this week but have had another looooong week of being crashed and feeling awful every day. I did have a few good days last ... Read on »
Help Support an ME/CFS Documentary by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome A woman with severe ME has started a project to make a documentary about ME/CFS. They've already made a great start, but they need help! There are several ways that we can a ... Read on »
Movie Monday 10/21 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome As most of you already know, I was badly crashed for much of last week, continuing a two-week bad cycle, but was starting to feel better by the weekend. Feeling pretty much ... Read on »
In Search of Severely Ill, Bedridden ME/CFS Patients by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I saw this announcement in the New Jersey CFS Association's newsletter "Dr. Lapp Seeking Severely ill/disabled patients From: Hunter-Hopkins ME-Letter Sep 2013 Dr. Char ... Read on »
Slowly Coming Back to Life by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome After a severe crash that lasted over two weeks, I am slowly coming back to life and returning to "normal," whatever that means for me! I was really getting frustrated this ... Read on »
Movie Monday 10/14 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome sigh...still badly crashed, going on two weeks now. This is a bad one - perhaps the worst I've experienced in several years. I think it was triggered by exposure to my son's ... Read on »
Learning to Live with ME/CFS on Facebook! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I am severely crashed this week - my once a year, major, stuck in bed kind of crash. At least it's usually just once a year now instead of all the time like it was at the be ... Read on »
Movie Monday 10/7 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Rough week followed by a rough weekend and an even rougher Monday. I've been in bad shape lately - seems to be a typical virally-induced crash since my son had a cold/sinus ... Read on »
ME/CFS Case Definition - News and Views by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome There have been some startling and ground-breaking developments in the ME/CFS world in the past few weeks. I have postponed writing about them because I wanted to have the m ... Read on »
Giving Up, Giving In by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Giving up has a bad rap. We are taught - by our parents, by our schools, by society - to never give up, to persevere, to overcome whatever obstacles stand in your way. I hav ... Read on »
Movie Monday 9/23 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Whew, another hectic, exhausting week and busy weekend. This soccer schedule is killing me - it's the first time my son has played for his school (last fall, he made the fre ... Read on »
Young People with ME/CFS - the Long Road to Independence by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome By the time most kids hit 18, they are more than ready to leave home and get out on their own. In many cases, they've been struggling to gain independence for years already, ... Read on »