Health knowledge made personal

Sue J. Patient Expert

Wilmington, Delaware
I have had Chronic Fatigue Syndrome (CFS) since March 2002. Both of my sons, ages 10 and 14, have... Full Bio
› Share page:

Posts

Sort by: Most recent | Name
What Would YOU Like to Name Our Illness? by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome What's in a name? A lot, as those of us saddled with the moniker Chronic Fatigue Syndrome have learned the hard way. As you've probably heard, a new name has been propose ... Read on »
Shopping Strategies for ME/CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I undertook a big shopping expedition today to Target and Trader Joe's. The two stores are about a 25 minute drive away from us, so I only get up there once every 6-8 we ... Read on »
Movie Monday 2/23 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We had a busy weekend, with snow days (actually, school was closed for COLD, not snow) tacked on and a houseful of teen boys most of the time, but my husband and I did find ... Read on »
Weekly Inspiration: Never, Ever Give Up by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Sorry that it's been a few weeks since I've posted a Weekly Inspiration post - crashes, family stuff, big news in the ME/CFS world - you know how it goes. Best laid plans an ... Read on »
Survey on Access & Quality of Healthcare for ME/CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Leonard Jason, renowned ME/CFS researcher at DePaul University is conducting an online survey of ME/CFS patients on their access to healthcare and the quality of that care , ... Read on »
Opinions & Editorials on the New Name & Criteria by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Unless you've been offline for the past week or perhaps living in a cave in the Himalayas, you have probably seen at least some of the flurry of editorials and opinions abou ... Read on »
NYC Study Recruiting Patients by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome The Solve ME/CFS Initiative is helping to recruit study participants for the Pain & Fatigue Study Center at Mt Sinai Beth Israel in New York City. They are conducting a s ... Read on »
BIG NEWS: New Name, New Criteria! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Well, friends and fellow sufferers, the good news is that we no longer have ME/CFS. The bad news is that we now have SEID: Systemic Exertion Intolerance Disease. The IOM ... Read on »
Movie Monday 2/9 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Our college son who'd been home sick for the past two months moved back to his apartment last week! Woohoo!! Besides being thrilled for him, my husband and I were also glad ... Read on »
New ME/CFS Diagnostic Criteria Being Announced Tomorrow by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Tomorrow, February 10, 2015, the IOM will release the Report on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome at 11am ET. The event will be ... Read on »
Opportunity to Share Your Story by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome If you became ill with ME/CFS as a child or teen and are now an adult, the Tymes Trust in the UK would like to hear your story. They are compiling an anthology of stories ... Read on »
Getting Back to "Normal" by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Well, not real normal, but we are getting back to our own version of normal! I explained last week that we now know our college son's 2-month long couch-bound relapse was ... Read on »
Living with Uncertainty by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Living with ME/CFS means living with uncertainty. This crazy illness is often characterized by ups and downs in seemingly random patterns. As someone wh ... Read on »
Movie Monday 1/26 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Well, my college son is STILL home sick, sick wiped out from mono in November. Spring semester starts in 2 weeks, so the count-down is on! He is determined to be ready to mo ... Read on »
My ME/CFS Improvements in 2014 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I can't believe it's almost the end of January already! Things have been very busy here, my college son is still home and incapacitated by mono that hit in November, and I a ... Read on »
Movie Monday 1/19 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Sorry I didn't write on the blog all last week. I had something scheduled every single day (a situation I try to avoid) so was out running around constantly, just getting ho ... Read on »
Weekly Inspiration: How and Why to Forgive by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I have been struggling a lot lately with forgiveness in my personal life. Despite wanting to let things go, I know that I am holding onto a lot of old hurts and resentments, ... Read on »
Movie Monday 1/5 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Last week, I wrote about all the scary movies my son and I watched while my husband was out of town. This past week was Thriller Week! My younger son was out of town, so my ... Read on »
New Heart Rate Monitor by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome My favorite Christmas gift this season was a surprise - my husband gave me a new heart rate monitor, a Mio Alpha, that works without a chest strap! I wondered whether these ... Read on »
Movie Monday 12/29 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Hope you are enjoying the holiday season! This is going to be an oddly timed Movie Monday - no holiday-themed movies for us the past two weeks, but my son and I binged on sc ... Read on »