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Sue J. Patient Expert

Wilmington, Delaware
I have had Chronic Fatigue Syndrome (CFS) since March 2002. Both of my sons, ages 10 and 14, have... Full Bio
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Quote It Saturday 7/12 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We've been back home for a few days now, though life is still very unsettled. My dad seems to have come through his cancer surgery fairly well and is recovering, though ... Read on »
One Son Recovered? by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Things have been crazy around here, with a visit to help my father-in-law sort through his house to get ready to move here and my dad having a 7-hour surgery yesterday as a ... Read on »
Busy, Stressful Times by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Hi, all. I apologize for the lack of posts here lately, so I thought I'd stop in to explain quickly. Things have been difficult and hectic around here. I've reverted to surv ... Read on »
Quote It Saturday 6/21 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Happy First Day of Summer/Summer Solstice! It's actually dark, cool, and wet here today, but we had enough hot and humid earlier this week. Last night, we went to a h ... Read on »
2014 Changes to Social Security Ruling for ME/CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I watched the CFS Advisory Committee (CFSAC)'s spring meeting earlier this week online, and one of the presentations I found most informative was about recent changes that h ... Read on »
Movie Tuesday 6/17 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Ah, I got all wrapped up in watching the CFSAC meeting online yesterday and today and didn't have time for a Movie Monday post, so here it is a day late. By the way, I learn ... Read on »
CFSAC Meeting Live Online Today and Tomorrow! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Just a reminder that the latest CFS Advisory Committee meeting is taking place today and tomorrow in Washington, DC. The meeting just started at noon today and will continue ... Read on »
Why Everyone with ME/CFS or FM Should Be Evaluated for Tick Infections by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome That's a pretty sweeping statement I made in the title to this post, isn't it? I certainly didn't start out with that point of view. I used to mentally roll my eyes at peopl ... Read on »
Hot Blooded by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Yup, that's me, but it's not nearly as sexy as it sounds in the Foreigner song. Ever since I got ME/CFS 12 years ago, I have been almost constantly too hot. I asked my OB/GY ... Read on »
Movie Monday 6/9 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Sorry I didn't post anything last week in between Movie Monday and Quote It Saturday (which I posted on Sunday!). Things have been really hectic here lately, with our colleg ... Read on »
Sunday Quote It 6/8 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome It's June already, somehow - the start of the summer, the end of the school year. And also the season of graduations!   I have chosen today's set of quotes for ... Read on »
Movie Monday 6/2 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Yup, it's Tuesday again already - I seem to be perpetually behind with everything! I didn't want to skip Movie Monday entirely, though, because we saw two good movies thi ... Read on »
Quote It Saturday 5/31 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Writer and poet Maya Angelou died this week at age 86, and the world has lost an amazing, joyful, and wise person. I only discovered Angelou's writing for myself last ye ... Read on »
CFSAC Meeting June 16-17 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome The 2014 Spring Meeting of the CFS Advisory Committee (CFSAC) will be held on Monday, June 16, 2014, from 12:00 p.m. until 5:00 p.m. (ET) and Tuesday, June 17, 2014 from 9 ... Read on »
Finding Meaning From Suffering by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome My life tends to be super-busy and hectic, but I always try to take a few minutes to myself on Sunday mornings to watch an inspirational TED talk. The one I watched this wee ... Read on »
Movie Monday 5/26 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Happy Memorial Day, everyone! I hope that you have enjoyed the holiday weekend, if you live here in the US. The extra day gave us a little breathing room for a change, allow ... Read on »
Quote It Saturday 5/24 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Several years ago, another blogger hosted a weekly meme called Quote It Saturday which I really enjoyed. Even though she stopped hosting it, I decided to restart the wee ... Read on »
Bartonella, Part 2?? by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Maybe I should have just titled this post Drowning in Medical Uncertainty Again...because that is the way I am feeling today. I took my youngest son to see our Lyme doctor i ... Read on »
Feeling Frustrated by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I am feeling down today. Just feeling worn out, tired, and sick of the same old stuff. Maybe it's the weather (rainy and dark) or maybe I'm mildly crashed from going to the ... Read on »
Movie Monday 5/19 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Yes, I am well aware that it is now Tuesday afternoon...yesterday was very frustrating, with over 400 e-mails in my inbox from the weekend. And I didn't want to miss Movie M ... Read on »