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Sue J. Patient Expert

Wilmington, Delaware
I have had Chronic Fatigue Syndrome (CFS) since March 2002. Both of my sons, ages 10 and 14, have... Full Bio
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Coming Back to Life by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome As you can see from this photo, many of the trees here are still mostly bare, but this one tree in our neighborhood is in full bloom, a sign that things are coming back to ... Read on »
Comprehensive ME/CFS Research Initiative at Stanford by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Cort Johnson has done it again - written a fascinating, complete overview on his blog of a critical initiative going on in the ME/CFS world. You can read the full article he ... Read on »
Contribute to ME/CFS Research While Shopping! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome With the holiday shopping season fast approaching, remember you can contribute to ME/CFS research WHILE doing your online shopping! Since getting sick almost 13 years ago ... Read on »
Corrections: XMRV Presentation by Dr. Mikovitz by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome It has been brought to my attention that I incorrectly implied in my conference notes yesterday that Dr. Mikovitz "discovered" XMRV.  She was not, in fact, the first researc ... Read on »
Craig has a 504 Plan!! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Sorry I haven't posted much this week.  Ken was out of town for most of it, so I've been on double-duty, including the early shift, getting up at 6 am each morning, with hec ... Read on »
Crash! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Whew, it's been a long dry spell for my blog. I've been sick for the past week and a half. I guess I picked up whatever my oldest son had Halloween week. I wa ... Read on »
Crazy Week by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Today was supposed to be my day of rest to get ready for a crazy week, but I've had non-stop computer problems all day! This means that quick, simple tasks have turned into l ... Read on »
D-ribose? by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Has anyone tried taking D-ribose supplements? I've read about this natural sugar supplement for improving energy in CFS and fibromyalgia from several different sources. ... Read on »
Delusions by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Still too sick to be on the computer for more than a moment or two but just had to share this hilarious blog post from Cranky Fibro Girl .  Loved this!!  Boy, do I ever need ... Read on »
Depression in ME/CFS - Emotional or Physical? by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Image: jeffreymasson.wordpress.com Despite the lovely holiday weekend I spent relaxing with my husband, I felt worse and worse as the weekend went on. By M ... Read on »
Detailed Explanation of the New Retroviral-CFS Study by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome The CFIDS Association's Kimberly McClearly has posted an excellent, detailed explanation of the new retrovirus-CFS study that was published yesterday.  McClearly describes t ... Read on »
Disappointed, Again by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I had a great plan for today. First, this week is supposed to be my Anti-Procrastination/Catch-up Week - I decided on Sunday to set aside this week to get all the things don ... Read on »
Do You Play? by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome A few weeks ago, I heard a program on NPR about the importance of play, and its message really got me thinking. The guest on the program has written a book about play, and he ... Read on »
Double Your Donation - One More Week Only! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I meant to write this post over a week ago, but I've had my hands full here. This time of year is always extra-busy when you have kids, but with a high school ju ... Read on »
Down Again by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I finally got Craig back to school and back on his feet, and on Thursday I felt really good for the first time in two weeks. Then, last night, I kept waking up ... Read on »
Down Again by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I finally got Craig back to school and back on his feet, and on Thursday I felt really good for the first time in two weeks. Then, last night, I kept waking up with my throat ... Read on »
Down But Not Out by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Ah, not much energy for writing today - just a quick update.  After two straight weeks of good days (yes, two weeks!), I finally had a down day today.  Both of my kids have ... Read on »
Down for the Count by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Still struggling with the same crash. Two weeks now - that's pretty unusual for me and hopefully not the start of a trend. My Mom came to visit for a few days this week. ... Read on »
Dr. Klimas's Exercise Program for CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome On Monday, the CDC hosted the second in a series of phone conferences with ME/CFS patients, PCOCA: Patient Centered Outreach and Communication Activity. I wasn't able to par ... Read on »
Dr. Konynenburg's Simplified Methylation Protocol by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome This is Rich Van Konynenburg's latest Simplified Methylation Protocol, last revised on March 30, 2011 SIMPLIFIED TREATMENT APPROACH FOR LIFTING THE PARTIAL MET ... Read on »