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Sue J. Patient Expert

Wilmington, Delaware
I have had Chronic Fatigue Syndrome (CFS) since March 2002. Both of my sons, ages 10 and 14, have... Full Bio
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D-ribose? by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Has anyone tried taking D-ribose supplements? I've read about this natural sugar supplement for improving energy in CFS and fibromyalgia from several different sources. ... Read on »
Delusions by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Still too sick to be on the computer for more than a moment or two but just had to share this hilarious blog post from Cranky Fibro Girl .  Loved this!!  Boy, do I ever need ... Read on »
Detailed Explanation of the New Retroviral-CFS Study by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome The CFIDS Association's Kimberly McClearly has posted an excellent, detailed explanation of the new retrovirus-CFS study that was published yesterday.  McClearly describes t ... Read on »
Disappointed, Again by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I had a great plan for today. First, this week is supposed to be my Anti-Procrastination/Catch-up Week - I decided on Sunday to set aside this week to get all the things don ... Read on »
Do You Play? by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome A few weeks ago, I heard a program on NPR about the importance of play, and its message really got me thinking. The guest on the program has written a book about play, and he ... Read on »
Down Again by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I finally got Craig back to school and back on his feet, and on Thursday I felt really good for the first time in two weeks. Then, last night, I kept waking up ... Read on »
Down Again by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I finally got Craig back to school and back on his feet, and on Thursday I felt really good for the first time in two weeks. Then, last night, I kept waking up with my throat ... Read on »
Down But Not Out by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Ah, not much energy for writing today - just a quick update.  After two straight weeks of good days (yes, two weeks!), I finally had a down day today.  Both of my kids have ... Read on »
Down for the Count by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Still struggling with the same crash. Two weeks now - that's pretty unusual for me and hopefully not the start of a trend. My Mom came to visit for a few days this week. ... Read on »
Dr. Klimas's Exercise Program for CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome On Monday, the CDC hosted the second in a series of phone conferences with ME/CFS patients, PCOCA: Patient Centered Outreach and Communication Activity. I wasn't able to par ... Read on »
Dr. Konynenburg's Simplified Methylation Protocol by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome This is Rich Van Konynenburg's latest Simplified Methylation Protocol, last revised on March 30, 2011 SIMPLIFIED TREATMENT APPROACH FOR LIFTING THE PARTIAL MET ... Read on »
Dr. Mikovitz's Recent XMRV Presentation by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Fellow CFS and Lyme blogger Lannie in the Lymelight recently posted an excellent summary of Dr. Mikovitz's latest XMRV presentation in California last weekend.  And here is ... Read on »
Dr. Oz Redeems Himself! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I just finished watching the new CFS segment on the Dr. Oz Show, featuring Dr. Donnica Moore. Hurray! They finally got it right (mostly). He started with an in-depth look ... Read on »
Dr. Rowe's OI Article by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Hurray!  A friend just e-mailed me a link to Dr. Rowe's OI article, that I mentioned in all my previous posts on OI.  This link is a downloadable pdf file , and the article ... Read on »
Drowning by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I hate to sound like a broken record, but I'm feeling horribly overwhelmed again. It seems that lately I just vacillate between being crashed and incapacitated and then feeli ... Read on »
Eleven Years Ago Today by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Eleven years ago today, I woke up with an incredibly sore throat, feeling achy all over, and thought I had caught a virus. You all know how that story ends. It is still a ... Read on »
Emergency Call for Female ME/CFS Patient in Indianapolis by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Spent my day messing around with another computer problem - I can't send e-mails now!  Must be a side effect of rebuilding my system yesterday.  So, not much time for a post ... Read on »
Emerging From My Cave... by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Hello?  Anyone out there?  (blink, blink)  Wow, its bright out here... I am slowing coming back to life after being completely incapacitated for the past week.  It rarely ... Read on »
Emotional Cost of the Disability Process by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I am in the final stages of my final shot at getting Social Security Disability.  I have had ME/CFS for 10 years, applied to Social Security several years ago, and have alre ... Read on »
Example School Accommodations for Kids with CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome In the first part of this post on school accommodations forkids with ME/CFS, fibromyalgia, POTS, and related illnesses, I explained somebasics: 504 Plans, IEPs, finding a ... Read on »