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Sue J. Patient Expert

Wilmington, Delaware
I have had Chronic Fatigue Syndrome (CFS) since March 2002. Both of my sons, ages 10 and 14, have... Full Bio
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Best Laid Plans by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Yesterday I wrote about making an effort to rest and recover...yeah, well, things didn't actually go as I planned yesterday! Our a/c compressor blew and shorted out the p ... Read on »
Big News in the CFS World by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome You've probably already heard about this, but just in case... Yesterday, the results of a recent CFS study were announced that found a certain virus in 67% of 101 CFS pat ... Read on »
BIG NEWS: Jamie Has Bartonella! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Wow, I am completely stunned, in shock.  I was freaking out Friday night!  I discovered that Jamie has Bartonella, a tick-borne infection (sometimes called a Lyme co-infecti ... Read on »
Big News: I Am Lyme-Free! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome One of the many things keeping me busy this week was our monthly trek up to our Lyme doctor in New Jersey yesterday.  The first thing I said to the doctor during my part of ... Read on »
Birds of a Feather by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I had the most remarkable lunch today.  Well, the salmon sandwich was excellent, but I'm actually referring to the company.  I coordinated a lunch with a bunch of moms in ou ... Read on »
Bitterness, Resentment, and Forgiveness by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome With all that's been going on with my son's worsened medical problems, plus all the usual challenges of my own, things have been tough for me lately. I have been feeling eve ... Read on »
Blessings by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Better day today - feeling OK, boys and I got groceries, got an estimate on a new blower motor for the A/C/furnace that is half what the first one was - all good. I reali ... Read on »
Blogging Break by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Just a quick note to let you know I've decided to take a brief break from blogging for the rest of this week. I had a really rough day yesterday, with several incidents t ... Read on »
Bristish Study Floods Media with Harmful Advice for ME/CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I subscribe to Yahoo! Alerts and my Inbox this morning was flooded with new articles on treating ME/CFS.  Every single one of them refers to the recent British PACE trials w ... Read on »
Busy, busy! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I haven't had much time for blogging in the flurry of activity lately. I had two major consulting assignments to finish. Fortunately, it was work I could do from ... Read on »
Busy, Stressful Times by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Hi, all. I apologize for the lack of posts here lately, so I thought I'd stop in to explain quickly. Things have been difficult and hectic around here. I've reverted to surv ... Read on »
Cabin Fever by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I'm BORED. My two boys have been home sick all week - Craig seemed to have the nasty virus that's been making the rounds here lately and Jamie was badly ... Read on »
Camping Season! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome With this unusually warm March, we were able to go camping this weekend - just a brief 24-hour getaway, but it did us all a lot of good.  It had been a full year since we' ... Read on »
Cancer Drug May Help ME/CFS Patients by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Just wanted to take a moment to tell you about some very exciting news.  A recent study in Norway showed that a drug used to treat cancer, Rituximab, improved symptoms in 10 ... Read on »
CBS Covers Latest ME/CFS Research on The Early Show by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Wow, CBS is just rockin' the ME/CFS media world this week! First the CBS Evening News with Katie Couric did a spot on the new research showing unique proteins in the spin ... Read on »
Celebrities with ME/CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Erica Verrillo, a wonderful journalist with ME/CFS who writes about our illness, has written a new article for ProHealth called 10 Celebrities with ME/CFS . I found it inter ... Read on »
CFIDS and School - Resources by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We've had a rough few weeks here, with at least one of our boys home sick almost every single day. Craig had a couple of minor crashes or maybe viruses (hard to ... Read on »
CFS and Family by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We're back home after a very successful 5-day trip back home to Rochester for Thanksgiving. We have a lot of extended family there, plus many of my old friends, ... Read on »
CFS and Lyme by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I'm pleased to report that I'm feeling better than I expected to at this point. We had a very nice weekend with my mom and her husband, played lots of games, and enjoyed the ... Read on »
CFS and Valcyte by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Over the past few months, I've received dozens of e-mails from all over the world, asking me about Valcyte. I've gotten the impression that most of these people ha ... Read on »