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Sue J. Patient Expert

Wilmington, Delaware
I have had Chronic Fatigue Syndrome (CFS) since March 2002. Both of my sons, ages 10 and 14, have... Full Bio
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Another One Bites the Dust by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Things are looking pretty grim at our house this week. Jamie was severely crashed all weekend and is still home from school. He's spent 4 full days lying on the couch re ... Read on »
Another One Down by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Did I just say yesterday that things were starting to look up? By bedtime last night, Craig had a fever of 102, a sore throat, and congestion. Looks like he's got the sa ... Read on »
Another Week Goes By... by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I really don't have anything riveting to post, but I realized it's been a few days since I've posted anything at all. Craig ended up being out sick all week - he went bac ... Read on »
Anti-Virals and Emotional Instability by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome After my blog last week about the sudden depression that caught me off guard, an acquaintance from the immune support message boards sent me an e-mail that made me ... Read on »
Anyone use NADH? by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I saw this article on immunesupport.com about NADH supplementation and was curious if anyone else out there had tried it and found it effective? I tried it a few years ba ... Read on »
Approved for Social Security Disability by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome People keep asking me whether I have heard back yet, since my final hearing on Social Security disability back in December. Yes, my letter came in the mail a couple of w ... Read on »
Article on ME/CFS and XMRV in Nature by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Nature magazine ran a 4-page feature-length article on XMRV and the search for a cause for ME/CFS , including an in-depth interview with Dr. Judy Mikovitz.  It's a pretty g ... Read on »
Back From Vacation!! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Hi, everyone!  We arrived back home at 2 am this morning from our 3-week vacation in California.  Sorry to just sort of disappear, but I didn't want to announce on the inter ... Read on »
Back Home by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We returned home from vacation earlier this week. We had a good trip and especially enjoyed our journey out to Oklahoma, with some wonderful stops along the way. ... Read on »
Back Home by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I hope everyone had a nice holiday season. Our holidays were good but filled with unexpected challenges. I'm very glad to be back home and am looking forward to getting ba ... Read on »
Back Home Aagin by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We're back from our camping trip in NY. It was a hectic schedule, but we had a lot of fun. We spent the weekend at a lake with my extended family. It was, of course, tirin ... Read on »
Back Home! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We're back from our 3-week cross-country road trip (if you missed it, there are pictures at our trip blog ). We really had a wonderful time - I didn't want it to end!! A ... Read on »
Back on Track by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I started to feel more like myself again Monday morning and continued to do well today. I don't know if it was that day of rest (why did I wait so long to do that??) or if th ... Read on »
Back Soon (I Hope) by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I've had very limited internet access all week due to problems with my computer.  After spending many hours at the Apple Store with some great Geniuses at the Genius Bar, we ... Read on »
Back to School by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome My two boys returned to school on Monday. This is both good and bad for me. Of course, I enjoy their company, and we did a lot of fun things this summer. And aft ... Read on »
Back to the Real World by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We got home from our spring break trip at 7 pm last night, so re-entry into the real world was tough this morning!  We drove over 2700 miles, through 8 states, to Louisiana ... Read on »
Back, Safe, Home Again by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome (that's a quote from an old favorite picture book, Cars and Trucks and Things That Go by Richard Scarry) Like the Pig family in our old favorite book, we are Back, Safe, ... Read on »
Bartonella, Part 2?? by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Maybe I should have just titled this post Drowning in Medical Uncertainty Again...because that is the way I am feeling today. I took my youngest son to see our Lyme doctor i ... Read on »
Best Kids in the World! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome After another long day of cleaning, cooking, laundry, driving, picking kids up, and doctor's appointments, I plopped on the couch in exhaustion tonight (after first filling ... Read on »
Best Laid Plans by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Yesterday I wrote about making an effort to rest and recover...yeah, well, things didn't actually go as I planned yesterday! Our a/c compressor blew and shorted out the p ... Read on »