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Sue J. Patient Expert

Wilmington, Delaware
I have had Chronic Fatigue Syndrome (CFS) since March 2002. Both of my sons, ages 10 and 14, have... Full Bio
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A House of Cards by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Living with CFIDS is like living in a house of cards. For the past 7 months, I've been building my house, bigger and higher, feeling better and thinking I was finally in cont ... Read on »
A Long Journey by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We went away this weekend on a short vacation with my extended family to the Poconos where my mom and her husband have been living.  We only had to drive about 3 hours eac ... Read on »
A Long Week by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Is it really Friday? We've had a horizontal week here. Jamie and Craig and I have all been severely crashed since Monday. There must be a viral trigger behind this for it ... Read on »
A Long Week...and An Award! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Sorry I've been so silent since Tuesday. This week turned out to be packed full and pretty exhausting. Besides the busy start to the week with Mardi Gras, Ken and I had ... Read on »
A New Week by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Last week was filled with CFS's characteristic ups and downs. I crashed big-time after my trip to NJ on Tuesday and spent Wednesday entirely horizontal. I was a bit better T ... Read on »
A Plan B Day by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Well, I had to ditch Plan A today and go to Plan B.  Just one of those days. I woke up feeling quite good - no obvious symptoms - and assumed I could go ahead with my pla ... Read on »
A Season of Hope by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I haven't had much energy left for blog writing the past two weeks, but the good news is that I have been using up all of my energy on some very worthy projects that give me ... Read on »
A Surge of Energy! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Wow, I am getting so much done this week!  It is the exact opposite of last week, when exposure to Craig's cold left me feeling run-down and I got nothing done. Yin and yang ... Read on »
A Very Brief Respite by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I know I haven't been writing here much lately.  I actually haven't been writing much of anything - my CFS blog, my book blogs, certainly nothing that might actually earn me ... Read on »
A Wonderfully Relaxing Vacation by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We're back!  I am pleased to report that I managed the trip very well, felt good most days, and thoroughly enjoyed it.  I'm almost embarrassed that I was so anxious about th ... Read on »
Accepting the Gorilla in Your House by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I mentioned a close friend was recently diagnosed with MS and is struggling to accept her new life.  Today, another friend (thanks, Denise!) sent along this wonderful essay ... Read on »
Adrift by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome That's the word that describes how I've been feeling lately. Dealing with Lyme disease for the past two months brings me back to my early emotional struggles when I was first ... Read on »
Adventures in Eating: Paleo and Anti-Candida Diets by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I am way behind in writing an update here of my son Jamie and how's he doing since we made all those drastic changes to his diet, supplements, and medicines a few weeks ago. ... Read on »
Alone At Last! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome As I explained here recently, I had a mini mental breakdown last week. No big deal - just one of the occasional downs that go along with the ups in this rollercoaster life o ... Read on »
An Epiphany by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Last week, I wrote here about play and having fun, and this past weekend, I got to see for myself why these things are so important, especially in a life partly defined by ill ... Read on »
An Inspiring and Hopeful Story by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I'm still lying low, trying to wait out this crash and using most of my mental energy on actually earning some money for a change (some things are finally starting to open u ... Read on »
And She'll Have Fun, Fun, Fun.... by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome It's time for a new attitude! I need to get back to focusing on what I CAN do, instead of what I CAN'T do. I really appreciated all of the great comments you've left on ... Read on »
Another Big Weekend by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Just wanted to say a quick thank you to all of you who have commented or e-mailed me this week.  As always, you have been so wonderfully supportive, and I greatly appreciate ... Read on »
Another Exhausting Week by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I just don't have the mental energy to write a flowing, cohesive blog post tonight, so how about a rambling, disjointed one? (it just took me 10 minutes to think of "disjoin ... Read on »
Another Long Day by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Ugh...I am totally wiped out this evening.  I had my visit with the Lyme doctor in New Jersey today - almost a 2-hour drive there and back, plus I did my routine stop at the ... Read on »