Health knowledge made personal

Sue J. Patient Expert

Wilmington, Delaware
I have had Chronic Fatigue Syndrome (CFS) since March 2002. Both of my sons, ages 10 and 14, have... Full Bio
› Share page:

Posts

Sort by: Most recent | Name
Imunovir Update and Inosine by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I have been struggling a bit lately because of a shortage of Imunovir, an immune-modulating medication that helps me quite a bit, so I thought I'd give a brief update here a ... Read on »
The Methylation Cycle: Central to ME/CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I sat down to write a post about vitamin B12 supplements for people with ME/CFS and how much they have helped my son and I. I soon realized, however, that I couldn’t expl ... Read on »
PET Imaging May Provide Diagnostic Test for ME/CFS by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome An exciting new research study published in Science Daily shows that PET functional imaging may be a useful diagnostic tool for ME/CFS in the future. It was a small study - ... Read on »
Movie Monday 4/7 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Our college son was home on spring break all last week. He's been doing pretty well, thanks to the drastic changes we made to medications, supplements, and diet two months a ... Read on »
Movie Monday 3/31 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Finally got our power back! It was out most of the day today, due to high winds, but came back on just barely in time for me to make dinner (my older son and I were starving ... Read on »
Learning to Live with ME/CFS Now on Twitter! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Yes, I have finally joined Twitter...kicking and screaming and dragging my feet! I swore I would never do this - just because I am already doing more things than I have time ... Read on »
Movie Monday 3/24 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome As I posted last week, I got away for a mini "me retreat"for a couple of days. I didn't feel great while I was away, so I rested and enjoyed the lack of responsibilities. I ... Read on »
Alone At Last! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome As I explained here recently, I had a mini mental breakdown last week. No big deal - just one of the occasional downs that go along with the ups in this rollercoaster life o ... Read on »
Movie Monday 3/17 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Happy St. Patrick's Day! Things have been so busy these last weeks that I skipped a Movie Monday (or two maybe?).  I've barely had any time at all for writing blog posts ... Read on »
Bitterness, Resentment, and Forgiveness by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome With all that's been going on with my son's worsened medical problems, plus all the usual challenges of my own, things have been tough for me lately. I have been feeling eve ... Read on »
To-Do List Blues by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Imagine some blues music playing in the background... I'm just feeling frustrated this week - here it is Thursday afternoon, and I feel like I have done NOTHING at all th ... Read on »
Happy Mardi Gras 2014!! by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Happy Mardi Gras! Today is the final day of the 2014 Mardi Gras season, which is a reason to celebrate! We used to live in New Orleans, so this is one of our favorite hol ... Read on »
Adventures in Eating: Paleo and Anti-Candida Diets by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I am way behind in writing an update here of my son Jamie and how's he doing since we made all those drastic changes to his diet, supplements, and medicines a few weeks ago. ... Read on »
Movie Monday 2/24 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome We had a busy week last week, but the good news is that everyone is doing pretty well health-wise! My time has still been filled with medical related to-dos, but I do hope t ... Read on »
Movie Monday 2/17 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Finally - I have a little time to write a Movie Monday post! We've seen a few movies the past couple of weeks. Two weeks ago, with both sons at home (and lots of snow day ... Read on »
Extreme Yeast Battles & Timing of Supplements by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I wrote previously here about our - both my older son and I - recent battles with yeast overgrowth . I am doing much better now, as I mentioned in my recent post on our suga ... Read on »
The Sugar-Free Life by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome As I explained here recently, my 19-year old son and I have both been battling yeast overgrowth . For me, it's a matter of past treatment for Lyme (finished 2 years ago!) st ... Read on »
WEGO Health Activist Award Nomination by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I was very honored to hear last month that this blog had been nominated for a WEGO Health Activist Best in Show Award! Unfortunately, between my own challenges a ... Read on »
Movie Monday 2/3 by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome Another very busy, somewhat overwhelming week. Son #1 is still home from college for winter break - had a few good days last week and then crashed badly again. Son #2 was ho ... Read on »
I Used to Have a Social Life... by Sue J. Patient ExpertHealth Maven Posted in: Blog Posts in Chronic Fatigue Syndrome I went to a party last night! Nothing super-exciting, just a retirement party for colleagues that my husband was hosting for two friends from his group who are retiring. The ... Read on »