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Primary Progressive Multiple Sclerosis

Posted Oct 10 2008 2:10pm

I have had the dubious honor of working with MS clients in the past , but none so amazing as my new client Bob who has one of the worst forms of MS known as Primary Progressive MS. Aside from his disease he is the most positive upbeat warm hearted guy I have ever met. I can easily get attached to him, and always look forward to working with him.

Primary Progressive Multiple Sclerosis is a rare form of MS which is progressive from the start. It affect approximately 13% of the MS population. With PPMS, nerve function deteriorates steadily, although at different rates for individuals. In Bobs case the initial onset of leg weakness and dragging occurred in 1996, by 2000 he was a Tetraplegic. Bob has seen many physicians all over the US who have told him he has a single lesion on the spinal cord at C-7. Moreover he would never regain function of upper or lower extremities. I beg to differ.

I have been working with Bob for over one month now, and it has been an enlightening experience. I have seen many signs and glimpses of hope. After numerous sessions of flexibility enhancement, Bob has begin to fire up his legs. He can do a bilateral supine leg press equivalent of approximately 50 pounds of thrust. I have had him do 3 sets of 15 reps on each leg over the past 2 weeks and leg strength has improved exponentially. Moreover calf and ankle fasiculation has improved remarkably.

Perplexing as this may seem, I believe Bob has a good chance of coming around. Somethings medical science just cannot explain. I am glad I can be part of this metamorphosis. He has a great attitude and never looks back at the negative. He always smiles, cracks jokes and is a wonderful historian.

I don’t know what to think in terms of Bob’s diagnosis. MS usually is represented by multiple lesions, not just one. A quadriplegic doesn’t move his legs, nor has the strength that Bob displays. I am excited for him, and plan on giving him my best. I will keep you updated on Bob’s progress.

For more information on how medical exercise therapy and personal fitness training can enhance the quality of your life contact us at or visit our “Award Winning” website at

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