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Tracheostomy Changed… Weird sleep. by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities [Translate] 10:03 AM STRAP IN 10:09 AM STRAPPED IN 10:19 AM DEPART PGH 10:47 AM ARRIVE LGH 10:50 AM REGISTERING 10:55 AM REGISTERED ... Read on »

Trach Countdown, heap of videos, loads of photos coming by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities [Translate] Alright, you know what time it is. It’s trach time, which means, time for a countdown. 11:30 AM today is when I will be g ... Read on »

My wheelchair could get harder to get upgrades for here in IL… & Veterinary emergency / WTF! by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities [Translate] Well, Medicare is making record breaking cuts on wheelchairs and rehab equipment. Now it’s Illinois Medicaid’s turn and you kno ... Read on »

SARC Dinner Club Chevy’s April 2013, Stop CISPA by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities [Translate] Welcome SARC members and all hams. I’m going to go around the table and this will be just like a net initially only we’re all here ... Read on »

Baclofen Pump CODE RED monitor post by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities [Translate] As of today my baclofen pump is now beeping and it caused a serious suicidal depressive crash this morning. I told the doctor to RE ... Read on »

A Totolly awesome dental experience by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities [Translate] Yesterday I had to go to the dentist because I had a few teeth bothering me. That dentist is Dr. Toto cause he is one of the ... Read on »

Trachlog & When Can I Change it Again by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities [Translate] STRAP IN 7:34 AM STRAPPED IN 7:39 AM DEPART PGH 7:46 AM ARRIVE LGH 8:16 AM REGISTER WAITING 8:18 AM REGISTERING 8:29 AM ... Read on »

MRILOG & Sevo Countdown for trach change. by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities [Translate] Alright, so I usually log all procedures / anesthesia stuff. Here’s the log from my Brain MRI last thursday the 11th. STRAP IN ... Read on »

Bodypoint Commercial, Bodypoint User Story & Ham radio pictures coming soon. Passed the ham test. by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities [Translate] Well I made a commerical for Bodypoint, the company that makes all my straps! I love my straps and I also love Bodypoint and the pe ... Read on »

FedEx announces merger with UPS by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities [Translate] MEMPHIS, Tenn., LEXINGTON, Ky. (AP) – FedEx Corp. (FDX) today announced along with United Parcel Service Inc. (UPS) that they w ... Read on »

Fridge moved, Videos coming, Wheelchair $ = Ham Radio = What!? by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities [Translate] Before and After Around 6:30 PM on Saturday we got all the clothes out of my closet and put them on my wheelchair and bed, ... Read on »

GED Done sort of…, Another overnight oximetry in the bag, Ham radio… Maybe, Wheelchair... by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities [Translate] Well the GED is done… sort of, I still have to do the Social Studies and Math portions and probably have to retake the constitution ... Read on »

BREAKING: Wheelchair Sale and Bad Dealers, trach countdown, new laptop coming, Emily’s... by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities [Translate] Wow, it took a long time for me to do this blog post. Nearly 4 weeks to do it! I don’t want to hear any tl:dr (too long didn’t read ... Read on »

Trach log and laptop=gonetop GED Countdown by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities [Translate] STRAP IN 9:40 AM STRAPPED IN 9:45 AM DEPART PGH 9:55 AM ARRIVE LGH 10:32 AM REGISTERING 10:38 AM REGISTERED 10:43 AM PR ... Read on »

Forgotten valentines day cards, dinner at Yu’s Chinese review by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities [Translate] Mom and dads second card front Valentines day D’oh I forgot to get the scanned images of all the valentines day cards up al ... Read on »

New iPhone, Mel1′s 5th Birthday, big news coming, Margarita day (was yesterday), Bowling... by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities

[Translate]

iPhone yay

You all are probably about to scream, TRAITOR, ANDROID TRAITOR. SHUT UP! First of all I am a media and photography buff. Obviously the iPhone is better suited for photo and music as it is integrated into iTunes. Does this mean I am giving up on my Android, no I am going hybrid, my iPhone will be a Wi-Phone, WiFi only and work with my business telephone number which is nothing but a second Google Voice account. But as far as a primary day to day device it seems like Android / TeclaShield is the best way for me to go. It is also completely switch accessible and with my degrading arm performance I’m gonna need to use switches soon, or wire into a head array.

Oh heres the unboxing video.

Mel1′s Birthday Card

Thats me snuggled up with my harness Mel1 who I sleep with really often along with my other objects carrying a spirit. Well if you look at this blog post HERE you will see that a few of the special objects in my life hold spirits and talk to me and I the same in my own way mostly primarily by snuggling up with them etc. Like Mel1 and I our primary way of communication is by touch so I snuggle up with her and sleep with her very often. Not to mention that she resides on my wheelchair so shes touched a lot. Mel1 was born on feb 18 2008 so she is 5 years old now!

My wheelchair with all straps Mel1 Mel2 and Mel4

Theres really big news coming regarding my wheelchair soon, but I am not allowed to divulge that news yet. Keep your eyes on this blog as this thing will be the first place to get that news! So for now you can oogle my shiny wheelchair next to my bed. Yes see seating is all nice and shiny and silky.

Yesterday was International Margarita Day and so I celebrated by making myself a XL 28 oz margarita! Wow, you think my muscular control is crap, wait till you try me on alcohol! Skip to about 7min 15sec to see. 1 big Margarita and the bottle only said 7% alc by volume. GO FIGURE!

I’m still working on those videos from me and shawns day out bowling, I’ll probably have those done tomorrow or Monday. I have had a lot of other things going on.

Read on »

Hard Drive Hell continues, Chicago Auto Show 2013, CARES harness unboxing, bowling. by Strapples Patient Expert

Posted in: Blog Posts in Physical & Mental Disabilities

[Translate]

(Picture of me flipping drive the bird removed, bit too vulgar for some.)

You know this hard drive crap has pissed me off to the point that it’s not even worth a damn video. They will be dropping off a new drive tomorrow. Your probably wondering “What now Alin, manage to crash more heads?” the answer is a no it’s a Toshiba with what sounds like Failing or Bad Bearings wanna hear what it sounds like, hit the link there and scroll down till you see Toshiba. The drive does it on and off, and runs very hot in comparison to any other hard drive I have used. Copying 20GB of files should not push the drive to 120 degrees and make it make that sound and force me to want to wrap it in an ice pack like the picture below. Man I have lovely luck with hard drives don’t I… NOT. Boy am I glad I have Amazon around who is replacing this one at no charge and no shipping fee because it’s such a ‘young’ drive to fail so quickly. 10 bucks to ship a drive back to Toshiba kind of sucks when the drive only cost 59. That’s where being an avid Amazon customer comes into play. The drive delivered Jan 2nd and exhibited this failure sign to my awareness and loud enough for me to notice it Feb 3rd. Normal return window is 30 days from the day the order is delivered, so I was one stinking day out of it when the drive decided to start screwing with me. They were quick to sweep that under the rug and issue a return label and issue an order for a new drive.

The above picture is a lasting message to the drive I am sending back… f*** you drive! At last I got my data off of you before you totally fail!

In a way I am lucky because the drive hasn’t FAILED yet and therefore I can move all my crap to one of my spares, kind of nice to get hard drives for christmas, cause then you got two spares laying around at any given time. Well one, because one drive is my bootable clone of my machine. Whaaaateeeever.

Me with the Chicago Auto Show 2013 sign

Here it is, Chicago Auto Show 2013! It started yesterday and I got in on all the cool goodies. I got to go see the new Toyota Tundra get unveiled and also got some cool goodies. I also saw the new Ram ProMaster truck which reminds me of the old Dodge Sprinter vans. Lot’s of cool little toys I got, USB flash drives about 32GB worth of them! FOR FREE! I took a lot of video. I did an interview with Honda about their electric car concept, their Accord CNG (Compressed Natural Gas). In addition to this I interviewed the ProMaster and the Kia Soul. The weather coming home was horrible, I was up at 5 AM to get to the show and slept for about an hour in the car on the way home, my powerchair is too comfortable. There are So many videos this year I decided to make a playlist to house them all, the amount of photos is also larger than any previous auto show.

Nice and tightly adjusted. My new Special CARES harness

Moving on you see me above strapped in with a CARES harness in my IRIS, well thats not really what the CARES harness is for but I can’t afford some airline seats let alone Mom and dad would throw a cow, they aren’t furniture in their opinion. To me airline seats are probably the ultimate in exotic home theater furniture that will last forever. If it can take abuse of commercial rowdy passengers it can take the abuse of a family. But still I wanted to kinda show you how the thing works so I used my IRIS which is probably about approximately the right thickness, and width of an ultra luxury first class seat, definitely not coach. But anyway I bring without further delay the crappy unedited CARES harness unboxing and test fitting. Oh and I wanted to try it out cause you know me, if it’s a harness or strap of some sort I GOTTA MESS WITH IT! Right below there’s a video of me with my CARES harness.

Figures that something with so many straps is going to be attracting to my autism and sensory issues, how soft silky and smooth it is was really surprising so as I usually do with things I like the feel of I wrapped it around my arm and part on my lips and wherever I could feel it. So surprised at how soft the material is, oh and SHINY!

Return ticket and validation codes

OK, Moving on. In the photo above is one of my best friends Shawn holding up a ‘boarding pass’ to board our van to go home, we went bowling and had lots of fun. I took lots of photos and we will be bowling quite often. I also took some photos which this blog post will be UPDATED to reflect, I will have those out sometime tomorrow.

Whew. Alright, I need some sleep.

Strapples

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