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Inspiring Despite Herself by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) This sparkly young lady passed away recently. I don’t know much about her; I saw her TED talk a while ago and was very impressed. In her memory, here it is: ... Read on »
AWKWARD! by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) One of the (many) things that suck about being in a wheelchair is the awkward wheelchair hug. Someone comes to the house for dinner, and it’s hugs all around. Then they co ... Read on »
Who am us, anyway? by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) “We’re one of you.” “And you’re one of us.” “I think.” “Maybe.” “Possibly.” A small bit of Firesign Theater. Some few elite of you might recognise the ... Read on »
Hope for the rest of us by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I have one of those Google Alerts set up to notify me when any news gets posted on any of several MS related topics. I always get a little excited when a headline touting ... Read on »
The earth must still be turning. by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) The solar system’s continued rotation is assured, because my birthday is approaching again. I’ve never been one of those to fret and agonize about getting another year old ... Read on »
Where is my brain? by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) How sad or scary is is when you can’t even remember your neurologists name? I know it’s in there somewhere…. Read on »
Where is my brain? by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) How sad or scary is is when you can’t even remember your neurologists name? I know it’s in there somewhere…. Read on »
Celebrity Wheelchair Challenge by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I came across this in the feed from an MS Facebook group. A British production company took three celebrities, put them in wheelchairs, strapped their legs together so the ... Read on »
Doing the Insurance Dance by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Inspired by Mitch over at Enjoying The Ride , here’s my crazy insurance story. Granted, this is a completely “ first world problem ,” but I was surprised (though maybe I s ... Read on »
It Takes One to Be One by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) My dear wife, knowing my hangup with the notion of the vast lack of disabled people in movies and on TV – and by that I mean actual disabled people, not muggles playing di ... Read on »
NSFW by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Not Safe For the World. I have recently re-discovered dancing, if I may be so bold as to call it that. More like spazzing around while holding onto the edge of a sturdy pi ... Read on »
I Was Here by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) One section from the deeply moving When I Walk , a film made by a film-maker who was diagnosed with primary progressive MS, the most devastating kind, was his wife talking ... Read on »
Getting around. by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Not, of course, as yet available in the US, and if it were, I would be willing to bet that Medicare wouldn’t give it the time of day, but I still want one. The Firely, by ... Read on »
HEALED by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) No, not me. HEALED is a new documentary about a musician who’s life was dramically changed by MS. I’m hoping I can find it on my local PBS station. I think it is interesti ... Read on »
Housecleaning, Spoons, and a Must-See Film. by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) We recently hired a woman to come twice a month to clean our house. While it is probably long overdue, it leaves me with some mixed feelings. There is a lot tied up with m ... Read on »
New push-pull wheelchair by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Procubed LLC built a better wheelchair . They say the average manual wheelchair driver puts in 3,000-4,000 strokes per day, which can take a huge toll on the shoulders, e ... Read on »
Regain your independence! by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) A couple of new products. The Wet Room System is a great concept that solves multiple issues, and can bring independence and safety back to the bathroom. Should become ... Read on »
Seeing MS by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) The Seeing MS Project tasked 9 photographers to work with people with MS to attempt to capture one symptom in a photograph. The aim was to make the invisible symptoms visi ... Read on »
The Gift of the Wheelchair by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) A nice little video from the New York Times. I think their emphasis was more on the couple’s relationship, which is indeed sweet and supportive. But I was more impressed w ... Read on »
The Protocol by stephen harris Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) It’s been about 10 weeks since I started following the Wahls Protocol . When I first heard about this dietary program, it seemed nearly impossible – no sugar, no dairy, no ... Read on »