Health knowledge made personal

Stephanie

Blog: http://thelifeandtimesofawomanonamission.blogspot.com/
I'm a 37 year old Mom to four boys and two girls. My youngest son was born with Down Syndrome and the many medical issues that come along with it. My lil man has congenital heart disease, lung disease, GI problems. He's survived heart failure, open heart surgery, a diaphragmatic hernia that... Full Bio
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We'll be back... by Stephanie Posted in: Blog Posts in Down Syndrome I wanted to write a post just to let everyone who has been following that we are still here. Lately, I guess I just haven't had the inspiration to blog. I have been on ... Read on »
Finally a Reprieve by Stephanie Posted in: Blog Posts in Down Syndrome Today we decided that enough was enough. We took the kids and headed out for something we rarely get to do anymore. We had a day of adventure. Lately money had been very ... Read on »
I am soooo tired.... by Stephanie Posted in: Blog Posts in Down Syndrome That about sums up how I feel right now. To add insult to injury, last night we were told by the case investigator that "C" also has a broken arm. Could it get any worse ... Read on »
What Now? by Stephanie Posted in: Blog Posts in Down Syndrome Well, true to form I am well behind, but not that I've forgotten. Not by a long shot. I'm still needing to upload all those warm, happy holiday photos. It's just that as to ... Read on »
Two Years Ago Today... by Stephanie Posted in: Blog Posts in Down Syndrome January 19th 2008, at 11:22am, his heart stopped beating.. and our world would never be the same. Julian Michael Avery 5/12/03 - 1/19/08 Rest In Peace King Julian ... Read on »
Seriously, we're still alive... by Stephanie Posted in: Blog Posts in Down Syndrome I feel badly that I've been neglecting the blog these past weeks. First it started with my being horribly sick. Fortunately that's finally coming to an end, and thankfully, ... Read on »
Succumbing to the crud... by Stephanie Posted in: Blog Posts in Down Syndrome Still here... still very much sick... I'm not exactly sure what I'm fighting off, but a lack of medical insurance isn't helping the process any. So for now I'm continuing ... Read on »
Still here... by Stephanie Posted in: Blog Posts in Down Syndrome Sorry I've been neglecting my poor blog lately. Ever since Christmas Eve I've been fighting some kind of relentless monster bug. The kids had a pretty good Christmas overal ... Read on »
We did it. by Stephanie Posted in: Blog Posts in Down Syndrome Well the EEG excitement is over for now. We had a super wonderful night last night trying to keep V from getting too much sleep. That combined with not being able to eat ... Read on »
One Down... by Stephanie Posted in: Blog Posts in Down Syndrome Neuro went well today, besides the hour and a half we had to wait for our appointment. In the end we did find that although the wait was excessive, the doctor seems to be ve ... Read on »
Here we go..... by Stephanie Posted in: Blog Posts in Down Syndrome We saw endochrinology on Monday, according to Dr. J his growth hormone levels and binding proteins are both at the very low end of normal. She was very impressed that h ... Read on »
It's like starting over... by Stephanie Posted in: Blog Posts in Down Syndrome First I want to thank you all for your kind words regarding my last post. To be honest I wasn't sure I should post about it. I've gotten so used to keeping it a private matt ... Read on »
Bear with me... by Stephanie Posted in: Blog Posts in Down Syndrome I'm kind of going out on a limb here, emotionally what I'm about to write has been a very difficult subject. Not one I have openly discussed. Partly because my journey with ... Read on »
Pictures!!! by Stephanie Posted in: Blog Posts in Down Syndrome I finally did it! I uploaded the Thanksgiving pictures!!! The first one is the best homemade mango salsa EVER.. the pies in the background turned out pretty darned good too. ... Read on »
Need some advice. by Stephanie Posted in: Blog Posts in Down Syndrome So I've been a little sidetracked the past week or two trying to get over the crud I can't seem to shake, so when V started feeling kind of down I figured it was the sam ... Read on »
I haven't forgotten... by Stephanie Posted in: Blog Posts in Down Syndrome Sorry I haven't posted our Thanksgiving pics yet. I still haven't uploaded them from my camera. Everyone here is still feeling crummy, I can't wait till this passes. Every ... Read on »
Not so bad after all... who knew??? by Stephanie Posted in: Blog Posts in Down Syndrome Happy Thanksgiving everyone, we hope you all had a fabulous holiday. To be honest I was really nervous that today wouldn't go well. This side of our family is notorious for ... Read on »
Moving in the right direction... by Stephanie Posted in: Blog Posts in Down Syndrome Well, today has brought some ups and downs, but for the most part everyone seems to be feeling at least a little better. Ryan's prednisone is finished (thank God), I love ... Read on »
And the snots go marching... by Stephanie Posted in: Blog Posts in Down Syndrome Right to the next unsuspecting munchkin. That's right, my little guy is wheezing and sputtering. Huffing like a friggin freight train going uphill, and that's w ... Read on »
The doctor calls it "phlegm" but to me it's still just snot. by Stephanie Posted in: Blog Posts in Down Syndrome How's that for a lead in??? Well it's happened. My ONE healthy kid is no more. A few months ago Ryan started with a nagging night time cough. Lately it' ... Read on »
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