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Stephanie

I'm a 37 year old Mom to four boys and two girls. My youngest son was born with Down Syndrome and the many medical issues that come along with it. My lil man has congenital heart disease, lung disease, GI problems. He's survived heart failure, open heart surgery, a diaphragmatic hernia that... Full Bio
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We'll be back...

I wanted to write a post just to let everyone who has been following that we are still here. Lately, I guess I just haven't had the...

Finally a Reprieve

Today we decided that enough was enough. We took the kids and headed out for something we rarely get to do anymore. We had a day of...

I am soooo tired....

That about sums up how I feel right now. To add insult to injury, last night we were told by the case investigator that "C" also has a broken...

What Now?

Well, true to form I am well behind, but not that I've forgotten. Not by a long shot. I'm still needing to upload all those warm, happy holiday...

Two Years Ago Today...

January 19th 2008, at 11:22am, his heart stopped beating.. and our world would never be the same. Julian Michael Avery 5/12/03 -...

Latest Activity

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Stephanie posted Still here... Dec 29 2009
Stephanie posted We did it. Dec 21 2009
Stephanie posted Here we go..... Dec 16 2009
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