Stephanie B.'s Posts

CHD Awareness Day 1 by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome Today marks our 5th Congenital Heart Defects Awareness Week. 5 years ago today we were 8 days out from Aiden's first open heart surgery for Tetralogy of Fallot and a complet ... Read on »

Alopecia Areata by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome A few months ago, I took Aiden to Dr. ENT and his wife happens to be a dermatologist. And I asked about her. She wasn't accepting new patients at the time and was only worki ... Read on »

Are Kids With Down Syndrome on the Road to Extinction? by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome Are Kids With Down Syndrome on the Road to Extinction? Read on »

Happy Thanksgiving! by Stephanie B. Patient Expert

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Shake Rattle and Roll by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome November is starting off with a bang. Thursday, we left the house at 5am for ear tube surgery. Aiden was the first one of the day. The intake nurse mentioned us staying the ... Read on »

Get It Down: 31 for 21 (Day 31) by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome A Fitting end to Down syndrome Awareness Month....stolen and altered: When you were but a tiny speck deep within my womb, something happened to your cells as life began to ... Read on »

Get It Down: 31 for 21 (Day 16) by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome Today was our Buddy Walk Day. OMGosh! It was hot! 90*+ temperatures and a ton of people. But it was fun. This year, a few things were different. Instead of being at one o ... Read on »

Get It Down: 31 for 21 (Day 13) by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome TEN COMMANDMENTS for PARENTS of CHILDREN with SPECIAL NEEDS. Author Unknown Take one day at a time, and take that day positively. You don’t have control over the ... Read on »

Get It Down:31 for 21 (Day 12) by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome I am honestly so bad at this posting every day. LOL! The day started off taking Aiden to school and setting up an "All About Aiden Class" for his typical kindergarten pee ... Read on »

Get It Down, 31 for 21 (Day 8) by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome Crap, skipped another couple days. Aiden is feeling much better the last few days. He is eating and drinking his normal amounts, however french fries have become one of h ... Read on »

Get It Down: 31 for 21 (Day 5) by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome Oops, skipped a few days. Sunday, Monday and Tuesday we were not the happiest and healthiest bunch of bananas. Aiden has been producing a ton of snot and well, that is appar ... Read on »

Get It Down: 31 for 21 (Day 2) by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome "The doctor who discovered Down Syndrome many years ago was Dr. John Langdon Down. I really wish that his name was Dr. Up so that today, Down Syndrome could ... Read on »

Get It Down: 31 for 21 (Day 1) by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome Here it is again, the 5th Annual Get It Down: 31 for 21 for Down syndrome awareness hosted by Trisha at Unringing the Bell . Incentive to update the blog on a more routine b ... Read on »

Answers to Questions by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome Does Aiden not like school? How long is he at school. I am so worried about kindergarten next year. Aiden DOES indeed like school, he just doesn't like the drop off part. ... Read on »

Good Days, Bad Days by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome I haven't been blogging much, I just really haven't felt like it. There is a lot going on in Aiden's world. I take Aiden to school every morning. We live within walking ... Read on »

Fundraising by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome All summer long, I've seen posts on Facebook for fundraising for this that or the other. International adoptions, car washes for sending kids to camp, MiniLaps for the Littl ... Read on »

Check Up, AAI and Panels by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome Aiden had his 5 year check up today with Dr. Pediatrician. He did pretty well up until she wanted to look in his ears and mouth. He bit the tongue depressor in half trying t ... Read on »

Birthdays by Stephanie B. Patient Expert

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The Big K by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome Aiden started kindergarten on August 11th. We went to the "Meet Your Teacher" Day the day before school started. He had not been in the building since May, but he remembered ... Read on »

A Back to School Prayer For Moms by Stephanie B. Patient Expert

Posted in: Blog Posts in Down Syndrome The Back to School Prayer -- powered by flowgo.com Read on »

Stephanie B.

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