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SimonLevsMama

Our son, Simon Lev , became suddenly ill when he was 4 months old and was diagnosed with Heart Failure due to a disease called Cardiomyopathy. We spent 4 months in the ICU with him and endured MANY ups and downs since that fateful day. Since August 1, 2008, we have faced a decision about a heart... Full Bio
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Sun and Moon....and Bow.

This morning we learned of another baby that passed from Cardiomyopathy. It felt like a punch to the chest joined with a weight pulling you down...

Do You See What I See?

Most nights when I am putting Simon to bed, there comes this moment. We begin with him lying on his back and me to his right lying on my side....

Mind The Gap

I cannot begin to tell you why this image that comes to mind, but what happened last night felt like getting slapped across the face with a big,...

A Year

A year. Today marks a full year of Simon getting 100% of his nutrients by mouth. It's an incredible accomplishment and Laura and I...

Fuming

I am so angry. I'm furious. I'm fucking tired of the world not being ready for my kid (our kids, kids who don't fit the mold, young humans in...

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SimonLevsMama updated their profile. May 26 2010
SimonLevsMama joined Wellsphere. May 26 2010
SimonLevsMama is a Health Blogger. � Check out their blog posts May 26 2010
SimonLevsMama is a Health Blogger. � Check out their blog posts May 26 2010
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