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SimonLevsMama

Our son, Simon Lev , became suddenly ill when he was 4 months old and was diagnosed with Heart Failure due to a disease called Cardiomyopathy. We spent 4 months in the ICU with him and endured MANY ups and downs since that fateful day. Since August 1, 2008, we have faced a decision about a heart... Full Bio
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Addendum to SIX!

Every time I think about Simon turning 6, I feel a pang of sadness deep in my heart.  It surprises me each time. It's a very strange experience...

Six!!

I'm thinking..."How Cool Is This?!!" Magic! Thank you for the Balloon Sword. Do you want to marry me?! This is just...

A Little Broken

I'm alone in the house. Simon is with his Aunties. Jaime is at a workshop all weekend. And the computer has been calling to me. It's been...

Cha-cha-cha-cha-CHANGES

We sent it back.  We sent the pump back to the insurance company.  We were terrified and excited and sort of stunned that it was already time,...

Finish line in sight but still out of reach

It hasn't happened that often but every once in a while someone will tell me "Welcome Back! Congratulations! I'm so excited that he's eating...

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SimonLevsMama updated their profile. May 26 2010
SimonLevsMama joined Wellsphere. May 26 2010
SimonLevsMama is a Health Blogger. � Check out their blog posts May 26 2010
SimonLevsMama is a Health Blogger. � Check out their blog posts May 26 2010
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