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SimonLevsMama

Our son, Simon Lev , became suddenly ill when he was 4 months old and was diagnosed with Heart Failure due to a disease called Cardiomyopathy. We spent 4 months in the ICU with him and endured MANY ups and downs since that fateful day. Since August 1, 2008, we have faced a decision about a heart... Full Bio
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Unanswered questions

When we go quiet on the blog, it’s usually for one of two reasons: 1) things are really good or 2) things are really hard.  Unfortunately,...

Termites

Someone recently asked me how Laura and I were doing and I couldn’t find the words to articulate exactly how hard things feel right now. ...

New York New York!!

 Our New York Trip from January We landed softly... only to brave the harsh cold winter Simon was enjoying some black ice...

Toothless!

Sorry we're such slackers over here.   Had an amazing trip to NYC for a week (will try to get pics up soon) and then fell right back into crazy,...

Sun and Moon....and Bow.

This morning we learned of another baby that passed from Cardiomyopathy. It felt like a punch to the chest joined with a weight pulling you down...

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SimonLevsMama updated their profile. May 26 2010
SimonLevsMama joined Wellsphere. May 26 2010
SimonLevsMama is a Health Blogger. � Check out their blog posts May 26 2010
SimonLevsMama is a Health Blogger. � Check out their blog posts May 26 2010
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