High Expectations Versus Low Expectations For The Mentally Ill
Posted Jun 17 2011 5:58pm
Thank you for your comments on my last blog entry. I really appreciate them.
Last week I saw my therapist and I read aloud my most recent blog entry. Her main response was that I was a "high functioning" schizophrenia sufferer and that my route to recovery is not the way for everyone, especially those who have very negative voices. I know my way is not the way for everyone. Everyone of my friends who suffer from mental illness have their own unique perspectives, but I question the routine practice of separating those of us with acute psychosis from those of us who are in some form of recovery from psychosis. I remember when I was in acute psychosis and couldn't read, write, watch television, follow a conversation or contribute to a conversation because I was so consumed with my voices, delusions and paranoia, certainly not "high functioning" at that point. Then again, I have heard that there are schizophrenia sufferers who are both acutely symptomatic and functioning adequately in the world. My basic idea is that schizophrenia and related illnesses go through stages, a pre-psychotic stage into often an acutely psychotic stage into the beginning of several recovery stages, if you are fortunate enough to survive the acute stage. Within the recovery stage there is still room for relapse, which is why, for most of us, we need to reality check regularly, especially with a therapist and/or a support group. By simply stating that schizophrenia progresses through stages shows that it is a dynamic, flowing pattern that is not static. If this model of schizophrenia were scientifically accepted, it would offer hope to people who are severely ill, as well as those who struggle through the recovery stages.
I know that there are people who are severely ill and greatly incapacitated, but I don't believe that they are unreachable and I don't believe that they should be treated as if their condition is permanent and irreversible. I actually believe that there should be a support group system in place in hospitals and in local communities that generally follow the sponsor system of 12 step groups. What this would mean is that people who have crossed over into the recovery stages of severe mental illness would sponsor or be a special friend to someone who was still in acute psychosis or in the very early stages of recovery. The sponsor, based on his or her life experience with psychosis, becomes a guide gently leading the way towards recovery attitudes and behaviors. It's a simple, beautiful system of community spirit in action, one I wish I had in my community. As it stands, I get most of my support from my online friends who blog about their illnesses; the problem with that is that I don't get to meet people in my offline community, nor do I get the opportunity to be a sponsor to someone. And so I write in this blog hoping that someone who is acutely ill will stumble onto it and maybe get something from it. Maybe they'll stop looking at themselves as if they have an incurable "brain disease" with no cure and dismal prospects.
I see those of us who are creative enough to start writing blogs about our illnesses as in the "high functioning" spectrum. Perhaps my perspective is skewed by this. I have not been around people when they've been going through acute psychosis; I've only been around myself. The people that I've met online through blogging and support forums strike me as intelligent and creative. I've puzzled over this. Why do all these people suffering from serious mental illness seem, in a lot of ways, exceptional rather than mentally and creatively low functioning? I think it is because they crossed a line in their illness which gradually led them into the recovery stages. Part of recovery is reaching out to others. The computer is an ideal vehicle for mentally wounded people to express themselves and support each other, though I still think face to face meetings are very important as well. But who doesn't really get heard? The people in acute psychosis who don't gravitate towards blogging and online and offline support groups. The people who remain isolated in their delusions and paranoia. The people isolated in hospitals, restrained with no computer access. Because I live in a rural community with no mental health support groups, I don't get to see and interact with acutely ill people and those that I interact with online give me a lot of hope that people can recover. And yet, my therapist almost dismisses me as "high functioning" and different from other more seriously ill people in hospitals. I contend that most people who are "high functioning" were at some point "low functioning" and because of that there is an unbreakable bond between those who are acutely ill and those who are in recovery, a bond that should be encouraged to grow through interaction and not separation. I have had the thought several times that I would like to go to a local psych unit and tell my story to the inmates, but that's as far as I go. What I really need is for there to be community action that sets up support groups as well as brings people who are in recovery into the hospital system to give hope to those still caught inside their illnesses.
I can respect health professionals who have not suffered from mental illness up to a point, but I still say that those of us who have been through severe mental illness are a way underused resource to the mental health community. My therapist was a bit upset trying to press her point that I was different from those who had to be hospitalized. She said she knew because she had worked on psychiatric units and had seen people in the midst of acute psychosis. I think her view of illness is flawed precisely because she has not lived through acute illness. I know more about what a catatonic person is going through than she does, even though I have not been catatonic. I know more about being a raving lunatic because I have been one. My therapist is a good woman and a decent therapist but I trust my own experience and intuition more. I told her that I thought it was time that health care professionals raise the bar on mental illness. Low expectations produce poor results whereas higher expectations give a mentally ill person hope and goals to aim for gradually, over time. Fewer and fewer mentally ill people are staying long term in hospitals. Now they are back in their communities (if they are not homeless) which is why community services are so important. Reintegration into society, however minimal, is a goal in itself and it is possible. Asserting that a chunk of mentally ill people are too sick to get well is not a good enough solution anymore.