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Sarah Patient Expert

California
I was recently diagnosed from MRI with what appeared to be a low grade astrocytoma brain tumor but when I had my craniotomy and it was sent to pathology, it was discovered it was a Ganglioglioma brain tumor. This is my story...
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1 week until my op... by Sarah Patient Expert Posted in: Blog Posts in Cancer Well, had a great time with my friend from Adelaide and it sure did help distract me from thinking too much. This week I am still busy finalising things for Violet and ou ... Read on »
1 Year Ago Today... by Sarah Patient Expert Posted in: Blog Posts in Cancer my world came crashing down, the day my Doctor rang me to tell me my diagnosis was a low grade astrocytoma brain tumor. The immediate thought for me was not for mys ... Read on »
1 year since surgery by Sarah Patient Expert Posted in: Blog Posts in Cancer The 1st of June it was 1 year since my Craniotomy and Resection of my Tumor. It's weird really in some ways it feels it was ages ago and other days it feels like it ... Read on »
1st Opinion Neurosurgeon Appointment by Sarah Patient Expert Posted in: Blog Posts in Cancer Well, today I finally got to speak to a Neurosurgeon in person! I was very nervous! Alot of my questions are still unanswered as he is still unsure exactly what type and sub-t ... Read on »
1st Opinion Neurosurgeon Follow-up Appointment by Sarah Patient Expert Posted in: Blog Posts in Cancer Just got home from 1st Opinion Neurosurgeon Follow-up Appointment. He said the EEG showed no Epilepsy activity, so that is great! PET Scan says that from the test th ... Read on »
2 weeks until my op... by Sarah Patient Expert Posted in: Blog Posts in Cancer Well, I have been coping reasonably well while waiting for my operation... I try very hard not to dwell on everything. I don’t want to think about it everyday, but natura ... Read on »
2 years by Sarah Patient Expert Posted in: Blog Posts in Cancer Can't believe it has been 2 years since my initial diagnosis of a brain tumor and very soon 2 years since having my cranioptomy and resection. I have my next MRI in ... Read on »
2nd Opinion Neurosurgeon Appointment by Sarah Patient Expert Posted in: Blog Posts in Cancer This afternoon I had my 2nd Opinion Neurosurgeon Appointment. He was very informative about tumors. He also said that it had been there for some years now. He is unsure w ... Read on »
3rd Opinion Neurosurgeon Appointment by Sarah Patient Expert Posted in: Blog Posts in Cancer With Emily staying at a friend's house last night, we decided to stay the night in North Sydney with Violet before my appointment today, as we just didn't feel like competing ... Read on »
4 weeks to go! by Sarah Patient Expert Posted in: Blog Posts in Cancer With 2 months since my op, I have 4 weeks left today until I can drive again! I hope I remain seizure free in that time so I can get back on track with my life. I sure ap ... Read on »
6 months since diagnosis and 1st NOgIN Meeting by Sarah Patient Expert Posted in: Blog Posts in Cancer Today marks 6 months since being diagnosed. Tonight I attended my first Nogin meeting for Brain Tumor Patients at Westmead Private Hospital from 7-9pm. Tonight's subje ... Read on »
And the winning tender is.... by Sarah Patient Expert Posted in: Blog Posts in Cancer I know the title of this post may seem a little odd, but it's exactly what it has felt like the past few weeks seeking Neurosurgical opinions. It's seriously like asking them ... Read on »
Appointments by Sarah Patient Expert Posted in: Blog Posts in Cancer Well I have been a very busy girl organising and chasing up appointments for myself...which feels quite strange as I am normally doing that for Violet. I have 1st Neuro A ... Read on »
Best Mum in the World by Sarah Patient Expert Posted in: Blog Posts in Cancer I am yet to tell Emily about my current health crisis, as I really don't know how she will cope after all we have been through as a family with Violet. She has already had to ... Read on »
Birthday by Sarah Patient Expert Posted in: Blog Posts in Cancer Today is my 33rd Birthday! I woke to girls very eager to give me my presents. We then set off for breakfast. I had my fave...Eggs Benedict and the gi ... Read on »
Birthday by Sarah Patient Expert Posted in: Blog Posts in Cancer Today is my 32nd Birthday. I know birthdays always mean a lot to people, but since my diagnosis I think now each year will feel that extra bit special to me. After having ... Read on »
Confessions... by Sarah Patient Expert Posted in: Blog Posts in Cancer I have been meaning to blog about this for a few weeks now. It is a little embarrassing to admit and it reminds me I don't seem to be quite the same since my surgery... ... Read on »
CT Scan & Neurosurgeon Appointment by Sarah Patient Expert Posted in: Blog Posts in Cancer This afternoon went to have another post op CT scan. I then waited for the scans and report and took them to my Neuro appt. He is very pleased with how I am recovering. H ... Read on »
Cure For Life Foundation by Sarah Patient Expert Posted in: Blog Posts in Cancer I remember watching this video when it was first televised just 1 year ago and thinking how powerful it was. Then 1 year later having a brain tumor myself, makes me want to sh ... Read on »
Dear Epilepsy... by Sarah Patient Expert Posted in: Blog Posts in Cancer I hate you! Last weekend, I woke up and made myself a coffee and laid down on the couch. Next thing I knew was I woke up with paramedics around me. I was confused ... Read on »