Health knowledge made personal

Sarah Patient Expert

Sydney, Australia
I am a SAFM to my daughters Emily 9 and Violet 4. Violet was born with a few health conditions that keep me very busy!
› Share page:

Posts

Sort by: Most recent | Name
Split Cast by Sarah Patient Expert Posted in: Blog Posts in Parenting After yet another terrible night in pain and seeing Violet's toes swell to the size of an obese person, we decided to ring her Senior Physio at the hospital and she asked us ... Read on »
Surgery by Sarah Patient Expert Posted in: Blog Posts in Parenting On Tuesday 22nd February, Violet had her long awaited and needed leg and foot surgery. She was fasted from 7am and we arrived at the hospital at 12.45pm. She finally ... Read on »
Funding Review by Sarah Patient Expert Posted in: Blog Posts in Parenting This morning we had Violet's funding review meeting. It went really well and we all agreed on the application both now and post surgery aide time. Now we await the d ... Read on »
Neurologist Appointment by Sarah Patient Expert Posted in: Blog Posts in Parenting This afternoon Violet had her Neurologist appointment. Pop a bottle of champers or whatever you all drink out there, as it has now been 1 YEAR since Violet's last sei ... Read on »
Getting so close by Sarah Patient Expert Posted in: Blog Posts in Parenting Only 12 more sleeps until surgery... This morning Violet had Pre-admission for her upcoming leg/foot surgery. We of course did the normal....chatted to the Ane ... Read on »
School may just redeem itself by Sarah Patient Expert Posted in: Blog Posts in Parenting This morning I had to drop off Violet's wheelchair to the school for the staff stairmate training. When I dropped it off to the Principal we also had a meeting about Violet ... Read on »
School Saga...part 2 by Sarah Patient Expert Posted in: Blog Posts in Parenting As planned this morning I went to see the Principal about yesterdays "situation". He started with "Violet went well at school yesterday" which I followed up with "we ... Read on »
And the butting of heads begins... by Sarah Patient Expert Posted in: Blog Posts in Parenting and it's only Day 2 of school! Well, sad to say school today was not very good at all... it started with the Principal meeting me in the carpark of the school ... Read on »
First day of Primary School! by Sarah Patient Expert Posted in: Blog Posts in Parenting Today was Violet's first day of Primary School... She had spent most of last night waking up to tell me she didn't want to go. This morning she was feeling ... Read on »
A presentation all about Violet by Sarah Patient Expert Posted in: Blog Posts in Parenting Today at Violet's primary school, the Dept of Education's Disability Itinerant Support Lady gave a presentation all about Violet and her medical and physical condi ... Read on »
The good news and the bad news by Sarah Patient Expert Posted in: Blog Posts in Parenting This morning we had Violet's pre-surgery measurements, goals for surgery, assessment and also has a review of the x-ray taken from Saturday with her Orthopaedic ... Read on »
First trip to ER for 2011 by Sarah Patient Expert Posted in: Blog Posts in Parenting Yesterday, Violet was in Emily's room playing when she started screaming and saying she couldn't walk. She was unable to weight bare and in turn walk on her hemi leg/foot. S ... Read on »
5 more sleeps!!! by Sarah Patient Expert Posted in: Blog Posts in Parenting Only 5 more sleeps until Violet starts Primary School! I am hyperventilating as I type... Next Monday she is due to go into the school for her 'Best Start ... Read on »
Moulding #4 and EUA by Sarah Patient Expert Posted in: Blog Posts in Parenting We started out the lovely task of fasting from 7am again this morning, got to love being on afternoon hospital lists...not! Arrival to hospital at 12 noon and she was under ... Read on »
Neurosurgeon Appointment by Sarah Patient Expert Posted in: Blog Posts in Parenting Today was Violet's Neurosurgical review. Looking at her CT Scan from October and feeling her shunt reservoir today, he is quite confident that her shunt is functionin ... Read on »
5 Year Shunt Anniversary and One Special Angel by Sarah Patient Expert Posted in: Blog Posts in Parenting Today is Violet’s 5 year Shunt Anniversary! Thankfully, another year has passed without the need of a shunt revision. As you all know this is something we do not take ligh ... Read on »
Things are a happening... by Sarah Patient Expert Posted in: Blog Posts in Parenting As you are aware, we are awaiting on alot of things to be ready for Violet to start Primary School in only 3 weeks time! Apart from the obvious lack of aide funding, ... Read on »
Reflecting on 2010 by Sarah Patient Expert Posted in: Blog Posts in Parenting 2010 was a big year for Violet and me...although truth be known 2011 will be even bigger... One thing I am extremely thankful for in 2010 is that Violet has only ha ... Read on »
Genetics Appointment by Sarah Patient Expert Posted in: Blog Posts in Parenting Today was our annual review in Genetics...oh the joys! This is our last official appointment for 2010! She examined Violet as per usual. As some of you may already kn ... Read on »