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Sarah Patient Expert

Sydney, Australia
I am a SAFM to my daughters Emily 9 and Violet 4. Violet was born with a few health conditions that keep me very busy!
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Violet turns 6 by Sarah Patient Expert Posted in: Blog Posts in Parenting Well, Violet's first 'real' birthday party went so well. Here are a few photos from the day, including her lovely fairy: I am a lit ... Read on »
A Break by Sarah Patient Expert Posted in: Blog Posts in Parenting You may have noticed the past few weeks there hasn't been many blog posts from us. Well, the good news is that as Violet's ulcer is improving so much we haven't been ... Read on »
Take a look at this by Sarah Patient Expert Posted in: Blog Posts in Parenting Just check out how fantastic Violet's ulcer is healing now! In fact it's now so good I am going to post the photo directly to her blog! So here it is: ... Read on »
Headaches by Sarah Patient Expert Posted in: Blog Posts in Parenting It has now been well over a year of constant headaches for Violet. Over the past 2 weeks, they have started to become unbearable for her. I have been up with Violet at night ... Read on »
Ocularist Appointment by Sarah Patient Expert Posted in: Blog Posts in Parenting This morning we finally picked up Violet's new scleral shell. Looks great and Violet wore it to school today! She hasn't worn a shell for such a long time as she h ... Read on »
Paediatrician Appointment by Sarah Patient Expert Posted in: Blog Posts in Parenting After a long time of not actually seeing Violet's Paed, today we finally did! She weighed in at 30.4kg's today. Just a check up really and to organise for th ... Read on »
Abdominal MRI Results by Sarah Patient Expert Posted in: Blog Posts in Parenting We received the abdominal MRI results and there are no masses or lesions seen on her kidneys and all her other organs look good. Such a relief! It did reveal she has ... Read on »
Update by Sarah Patient Expert Posted in: Blog Posts in Parenting Violet was scheduled to have her Ocularist appointment today but he had to postpone until next Thursday which worked out well for us as she had another appointment at the ho ... Read on »
Abdominal MRI by Sarah Patient Expert Posted in: Blog Posts in Parenting Today is my birthday and what better way to spend it than at The Children's Hospital...not! Sadly this is the date they booked her MRI and I was not willing to q ... Read on »
Update by Sarah Patient Expert Posted in: Blog Posts in Parenting We were back to the orthopaedic surgeon yesterday to again use some more silver nitrate on Violet's pressure ulcer. I asked him the likelihood of this silver nitrate a ... Read on »
Update by Sarah Patient Expert Posted in: Blog Posts in Parenting On Thursday at Violet's rehab review, surgeon decided to cancel the surgical closure of her pressure ulcer that was scheduled for Friday. Surgeon feels surgery may still nee ... Read on »
Another Setback by Sarah Patient Expert Posted in: Blog Posts in Parenting Violet had her swab result come back from Tuesday and it wasn't great news. She has another Staph infection. A heavy growth of two strains of Staphylococcus Aureus is ... Read on »
Update by Sarah Patient Expert Posted in: Blog Posts in Parenting Well after 3 sleepless nights of Violet being in pain with her foot and after using Panadol and Nurofen and then resorting to Morphine last night and it still not helping he ... Read on »
Friends Fundraising by Sarah Patient Expert Posted in: Blog Posts in Parenting Some of the lovely families I have met online the past few years who have children with varying medical conditions and disabilities are busy fundraising at the moment for or ... Read on »
Update by Sarah Patient Expert Posted in: Blog Posts in Parenting This morning we had a review of Violet's pressure ulcer. Seems the silver dressings are now keeping her ulcer too moist and there was again alot of slough on the woun ... Read on »
Neurologist Appointment by Sarah Patient Expert Posted in: Blog Posts in Parenting This afternoon Violet had her Neurology review. Neurologist still concerned about her daily headaches. She has also been very tired lately, to the point where I have ... Read on »
Update by Sarah Patient Expert Posted in: Blog Posts in Parenting Yesterday Violet had another review to check on her pressure ulcer at the hospital. Silver dressings are working very very well, which is great news. If only they had ... Read on »
Update by Sarah Patient Expert Posted in: Blog Posts in Parenting After spending the past week emailing photos to the Children's Hospital so they could monitor Violet's ulcer without us coming in all the time. This morning we went to have ... Read on »
Budding Artist Perhaps by Sarah Patient Expert Posted in: Blog Posts in Parenting As I mentioned in a post back in April, Violet submitted artwork representing her school to the local Hawkesbury Show for the "Students with Disabilities" class. Was so ... Read on »