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Sarah Patient Expert

Sydney, Australia
I am a SAFM to my daughters Emily 9 and Violet 4. Violet was born with a few health conditions that keep me very busy!
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Botox Clinic by Sarah Patient Expert Posted in: Blog Posts in Parenting Today Violet had Botox Clinic. This was the first time in a long time for her arm/elbow/hand as we have been concentrating on her leg/foot for so long, so she cou ... Read on »
Side Effects by Sarah Patient Expert Posted in: Blog Posts in Parenting Seems I may have left off a major side effect for the new med, cognitive effects! Well, not sure what it is about the second night of Violet taking her new meds but last ... Read on »
Neurologist Appointment by Sarah Patient Expert Posted in: Blog Posts in Parenting Neurologist appointment today found us checking over Violet's shunt from a hit to her head yesterday from a soccer ball at school that hit her right next to her shunt. All s ... Read on »
Tooth Fairy by Sarah Patient Expert Posted in: Blog Posts in Parenting Yesterday, after a couple of wobbly months...Violet's bottom tooth finally fell out on its own. She would not let a soul touch it and preferred to let it come out on its ... Read on »
Thank you Better Start Funding by Sarah Patient Expert Posted in: Blog Posts in Parenting On Friday we finally accessed some of Violet's Better Start funding for private physio. Just as the last private physio back when she was much younger, this physio too al ... Read on »
Opthamologist Appointment by Sarah Patient Expert Posted in: Blog Posts in Parenting Asked Emily today if she wanted to get out of school early and come with Violet and I to the hospital, she then asked what clinic we were going to and I said the eye clinic ... Read on »
Update by Sarah Patient Expert Posted in: Blog Posts in Parenting Last Friday while I was at TAFE, I received a phone call from the school to say Violet's eye had stated bleeding everywhere again. So, I left TAFE to collect her and on doin ... Read on »
One of my worst fears by Sarah Patient Expert Posted in: Blog Posts in Parenting Yesterday afternoon I arrived earlier to the school and was in the office when Violet's teacher happened to see me there and say hello as she went back to the class. Not ... Read on »
Physio Update by Sarah Patient Expert Posted in: Blog Posts in Parenting Physio from the hospital rang today to make appointment for Violet's hydrotherapy which she is starting next Wednesday. She will also be filming her walking with and without ... Read on »
Orthopaedic Surgeon Appointment by Sarah Patient Expert Posted in: Blog Posts in Parenting Orthopaedic surgeon review this morning. She had some more weight baring x-rays today as this is the first time she has been able to stand for them post op. Surgeon is st ... Read on »
Short lived by Sarah Patient Expert Posted in: Blog Posts in Parenting Well, not long after posting that we were starting Violet on her new med endep for her headaches, on Friday night Violet had a seizure. This was her first one in 18 months a ... Read on »
Here we go by Sarah Patient Expert Posted in: Blog Posts in Parenting Well, I have made the decison finally to medicate Violet for her daily headaches. She started on Amitriptyline/Endep tonight. They want her to take the dose at night as ... Read on »
Overcorrection? by Sarah Patient Expert Posted in: Blog Posts in Parenting Some of the goals of the surgery were to provide Violet with a straighter, flatter foot position, bring her heal down, no more foot drop and help her foot stop rolling out a ... Read on »
She says by Sarah Patient Expert Posted in: Blog Posts in Parenting Two of my favourite things Violet has said to me lately: "I just wanna keep you forever" "your my cute adult" Read on »
Orthopaedic Surgery by Sarah Patient Expert Posted in: Blog Posts in Parenting ***WARNING TO THOSE WITH WEAK STOMACHS, HAS PHOTOS OF PRESSURE ULCERS*** Make a video - it's fun, easy and free! www.onetruemedia.com Read on »
Neurologist Appointment by Sarah Patient Expert Posted in: Blog Posts in Parenting Violet's Neurologist is very keen to start her on Amitriptyline/Endep for her daily headaches. He required an ECG before she starts the meds, which to me...ring ... Read on »
A nice surprise by Sarah Patient Expert Posted in: Blog Posts in Parenting A few months ago now, I put a request into Quilts 4 Kids for Violet. She was very surprised to receive her quilt on Monday! Couldn't have come at a better tim ... Read on »
Spoke too soon by Sarah Patient Expert Posted in: Blog Posts in Parenting Well, seems Violet's pressure sore is still active and since having her padding in her AFO removed last Thursday it has started to flare up again. She has been walking but i ... Read on »
Orthopaedic Surgeon Appointment by Sarah Patient Expert Posted in: Blog Posts in Parenting This morning we were back into the swing of appointments after nearly 3 weeks off! First she had her Orthopaedic review and he was so pleased to confirm now that aft ... Read on »