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Sarah Patient Expert

Sydney, Australia
I am a SAFM to my daughters Emily 9 and Violet 4. Violet was born with a few health conditions that keep me very busy!
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Abdominal MRI by Sarah Patient Expert Posted in: Blog Posts in Parenting Today is my birthday and what better way to spend it than at The Children's Hospital...not! Sadly this is the date they booked her MRI and I was not willing to q ... Read on »
Abdominal MRI Results by Sarah Patient Expert Posted in: Blog Posts in Parenting We received the abdominal MRI results and there are no masses or lesions seen on her kidneys and all her other organs look good. Such a relief! It did reveal she has ... Read on »
Alison & RPA by Sarah Patient Expert Posted in: Blog Posts in Parenting Since joining Essential Baby forums a few years ago, as I have mentioned I have met lots of lovely ladies of children with special needs, one of these ladies...Alison I have a ... Read on »
An entry on Mum by Sarah Patient Expert Posted in: Blog Posts in Parenting I went to the GP last Thursday and it was mainly to get referrals for Violet for her specialists etc. While there I was telling the Dr I had been having migraines over my ... Read on »
An Open Letter to All Professionals by Sarah Patient Expert Posted in: Blog Posts in Parenting I friend of mine in Melbourne found this great post recently and decided to post it on her daughter's blog Ellie's Story the other day and I am so glad she did! I de ... Read on »
And the butting of heads begins... by Sarah Patient Expert Posted in: Blog Posts in Parenting and it's only Day 2 of school! Well, sad to say school today was not very good at all... it started with the Principal meeting me in the carpark of the school ... Read on »
Another Milestone by Sarah Patient Expert Posted in: Blog Posts in Parenting On Sunday, Violet finally started pulling herself up to a standing position on our lounges. It's amazing to see her do it, as she is only doing it with her left arm. St ... Read on »
Another School Visit by Sarah Patient Expert Posted in: Blog Posts in Parenting Today, Dave and I had an appointment with the principal of our local school. I went with a huge A4 size page of questions. I think he was a little worried when he ask ... Read on »
Another setback by Sarah Patient Expert Posted in: Blog Posts in Parenting Today I decided to contact the hospital as Violet is still on morphine after 3 weeks and valium for her muscle spasms and I have been very worried as she is still in so much ... Read on »
Another Setback by Sarah Patient Expert Posted in: Blog Posts in Parenting Violet had her swab result come back from Tuesday and it wasn't great news. She has another Staph infection. A heavy growth of two strains of Staphylococcus Aureus is ... Read on »
Another Therapy by Sarah Patient Expert Posted in: Blog Posts in Parenting We now have a more medical term for Violet's right hand side not moving as much as her left. It's called Hemiplegia. Hemiplegia is a form of Spastic Cerebral Palsy whic ... Read on »
Anzac Day by Sarah Patient Expert Posted in: Blog Posts in Parenting Today Emily and I were up bright and early to attend the Dawn Service for Anzac Day . Sorry about the poor quality photo of this as only had my mobile with me ... Read on »
Appointments here we come! by Sarah Patient Expert Posted in: Blog Posts in Parenting For the past 3 months since my operation I have definitely struggled with no way to get around due to being unable to drive for those 3 months. Well, on 30th August I can sta ... Read on »
Are you for real? by Sarah Patient Expert Posted in: Blog Posts in Parenting Friday afternoon, Violet came home from school saturated in Pi$s. She has NEVER done this since being toilet trained unless she was having a seizure/post Bo ... Read on »
At a loose end by Sarah Patient Expert Posted in: Blog Posts in Parenting Just don't know what to do about Violet's daily headache situation. It's been getting worse recently. She goes to sleep with them and wakes during the night numerous times ... Read on »
At Last... by Sarah Patient Expert Posted in: Blog Posts in Parenting In the last week, Violet has finally learnt how to get from lying on the floor to sitting up on her own! She still can not do it on her right hand side, but after all this ... Read on »
Audiology Review by Sarah Patient Expert Posted in: Blog Posts in Parenting Violet had her audiology review this morning and her hearing has improved slightly, this is mainly due to the pressure in her right ear going down. She still has Eust ... Read on »
Being Different... by Sarah Patient Expert Posted in: Blog Posts in Parenting I always knew the day would come when Violet would realise she was different to other kids, but I really didn't expect it to happen at 3 years old. For the past few month ... Read on »