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Sarah Patient Expert

Sydney, Australia
I am a SAFM to my daughters Emily 9 and Violet 4. Violet was born with a few health conditions that keep me very busy!
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Shunt Blockage by Sarah Patient Expert Posted in: Blog Posts in Parenting Little Violet has been in hospital since Friday after not being well at all since Wednesday. She has been vomiting,  extremely lethargic and not eating. She has had lots of ... Read on »
Botox Clinic by Sarah Patient Expert Posted in: Blog Posts in Parenting This morning Violet had Botox Clinic. Today she again had her elbow/arm/hand targeted and for the first time she had injections to her hamstrings. I have to let yo ... Read on »
Ending weaning by Sarah Patient Expert Posted in: Blog Posts in Parenting Well Violet is into her final week of weaning off Epilim and you will be glad to hear all is going well still and the best news is that she hasn't had a headache for the pas ... Read on »
Dental & Orthotist Appointments by Sarah Patient Expert Posted in: Blog Posts in Parenting This morning Violet had her dental review and all went well besides having to hold her down for the examination. She will have an x-ray of her teeth at her next GA hopefully ... Read on »
Update by Sarah Patient Expert Posted in: Blog Posts in Parenting Today Violet finished Term 1 of Year 1. She took part in the Easter Hat Parade again but this year was extra special as this time last year she was in her wheelchair, so ... Read on »
Orthotist Appointment by Sarah Patient Expert Posted in: Blog Posts in Parenting Finally have Violet's new AFO and UCBL. That said, she came home today from school with a massive blister on the side of her heel, seems the AFO has too much room and is ... Read on »
Neurologist and Neurosurgeon Appointments by Sarah Patient Expert 1 Comment Posted in: Blog Posts in Parenting Yesterday Violet had her Neurologist review. We again discussed Violet's chronic daily headaches and I asked him if he thought it may in fact be her epilepsy medicati ... Read on »
At a loose end by Sarah Patient Expert Posted in: Blog Posts in Parenting Just don't know what to do about Violet's daily headache situation. It's been getting worse recently. She goes to sleep with them and wakes during the night numerous times ... Read on »
ICP Monitoring by Sarah Patient Expert Posted in: Blog Posts in Parenting On Monday, Violet was admitted for her ICP monitoring. Arrived at 6.45am and she was taken in at 8am. Neuro met with us before surgery to advise that unless Violet ha ... Read on »
Pre-Admission by Sarah Patient Expert Posted in: Blog Posts in Parenting This morning Violet had her pre-admission for her ICP monitoring on Monday. Operation side of it will take 1 hour and monitoring up to 48 hours. Then from there on dep ... Read on »
Cerebral Palsy Clinic by Sarah Patient Expert Posted in: Blog Posts in Parenting This afternoon Violet had her Cerebral Palsy Clinic review. Weight 32.7kg's Height 130cm They are very happy with her recent Botox results in her arm/hand. They are h ... Read on »
Keep Updated by Sarah Patient Expert Posted in: Blog Posts in Parenting I finally decided activate a Facebook page for Violet's blog so I can keep everyone updated. Makes it very hard when in hospital to blog (especially from a phone) so figured ... Read on »
ICP Monitoring by Sarah Patient Expert Posted in: Blog Posts in Parenting We received the date for Violet's admission for her ICP monitoring. 2 weeks from today, the 13th February. So glad to have the date so I can now organise what needs to be ... Read on »
More Genetic Research by Sarah Patient Expert Posted in: Blog Posts in Parenting Over the years Violet has been part of numerous genetic research overseas and here. Last night we received a call from Violet's geneticist to ask if we would like to t ... Read on »
Neurosurgeon Appointment by Sarah Patient Expert Posted in: Blog Posts in Parenting After a nice 4 weeks off appointments and therapies, we are back into it for 2012. Today Violet had her neurosurgical review. As her headaches are ongoing and still da ... Read on »
6 Year Shunt Anniversary by Sarah Patient Expert Posted in: Blog Posts in Parenting Today is Violet's 6 year shunt anniversary. After another devastating year hearing of more children losing their lives to failing shunts, I am again thankful Violet ... Read on »
2011 by Sarah Patient Expert Posted in: Blog Posts in Parenting Well, hard to believe we have made it through this year! It has been one bitch of a year.  This time last year we were gearing up for Violet's first orthopaedic s ... Read on »
Genetics Appointment by Sarah Patient Expert Posted in: Blog Posts in Parenting This morning Violet had her annual genetics review. Sadly another visit that revealed no answers as to why Violet is Violet. The search continues and I am thankful ... Read on »
Tantrum City by Sarah Patient Expert Posted in: Blog Posts in Parenting Well, where do I start this post...the title explains alot of what is going on. After a few years now of Violet being defiant, oppositional and even at times aggressive, ... Read on »
Orthopaedic Surgeon Appointment by Sarah Patient Expert Posted in: Blog Posts in Parenting This morning Violet had another orthopaedic surgeon review. He wants to do further surgery alot sooner than we had expected. He decided today it would involve a tibial ... Read on »