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Sara ..

I was diagnosed in January of 2001 with systemic lupus at the age of 26. Determined not to let a chronic illness dictate my plans for the future, I refused to admit that my busy lifestyle and indomitable attitude were hindering my chances for a long, productive life. After four years of running my... Full Bio
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'Tis the season for giving...so free copies of Despite Lupus it is! by Sara .. Posted in: Blog Posts in Lupus A few weeks ago, the print shop I use for my books made a small mistake. I ordered a new run of Despite Lupus books, so I would have plenty of copies on hand for the holiday ... Read on »
The rules of the lupus game - Coulda done it later, Woulda done it better, Shoulda rested instead! by Sara .. Posted in: Blog Posts in Lupus This time of year always puts my daily afternoon nap to the test. With dozens of things to get done, and just four (make that now three) short weeks to do them in, I a ... Read on »
Living Well with Lupus: An Iterative process by Sara .. Posted in: Blog Posts in Lupus I'm still learning.  I'm still learning how to take care of myself. I'm still learning how to make good decisions.  And I'm still learning how to ask for help.  But I ... Read on »
Solving my lupus sleeping dilemma the only way I know how: via a spreadsheet! by Sara .. Posted in: Blog Posts in Lupus It's time to break out the chronic control spreadsheet . (Silent squeal of joy!) As many of you know, I find great value (and solace) in tracking various aspects of my di ... Read on »
The First Hair Cut after Hair Loss: The AFTER by Sara .. Posted in: Blog Posts in Lupus When I was eight years old, my older sister took me up the street to our “hair dresser” (the older lady who cut hair out of her house), to get my bangs trimmed, at the req ... Read on »
Lupus fatigue: How to respond when your kids have heard it a thousand times by Sara .. Posted in: Blog Posts in Lupus This summer, the girls and I were creatures of habit. Every other weekday, we'd drive over to the pool around 11am. We'd swim a little, eat a little, and swim a little more. ... Read on »
Lupus hair loss: making the most of the moss by Sara .. Posted in: Blog Posts in Lupus I am thrilled to say that the hair I've lost due to last year's flare is growing back. Hurray! I have a very nice layer of hair all over my head - a layer that I affect ... Read on »
LFA DMV Lupus Summit in Baltimore, MD - Saturday, Sept 13th - don't miss it! by Sara .. Posted in: Blog Posts in Lupus Looking forward to setting up shop at the upcoming LFA DMV Annual Maryland Summit on Saturday, Sept 13th! The Pillbags will be there - looking bright and cheery as usual, an ... Read on »
Mid-summer stock is here: the Pillbags are in full force! by Sara .. Posted in: Blog Posts in Lupus I'm happy to announce that my mid-summer inventory has arrived, putting the popular Amelia and Bordeaux Pillfolds back on the shelves. Hooray! You can also find the li ... Read on »
The instinct to "do" - a lupus liability for sure. by Sara .. Posted in: Blog Posts in Lupus It's hard to teach this old dog new tricks. Or rather, it's hard to keep a "doer" from doing. A few weeks ago, I had a case of poison ivy. It wasn't awful, but it was bad ... Read on »
Something's Gotta Give! by Sara .. Posted in: Blog Posts in Lupus Oops! I've been short on time this week! No Johnny (he's traveling) + no babysitter (she's on vacation) = no blog posts. Check back in a few days, though. I hope to be squar ... Read on »
ERG test: Advancements in eye exams to test for plaquenil toxitity right around the corner! by Sara .. Posted in: Blog Posts in Lupus As far as tests go, the ERG is not one of my favorites. The ERG, or Electroretinography , is one of those tests that seems to last way too long and comes up way too fast. Wh ... Read on »
Promoting the eye mask - it does wonders! by Sara .. Posted in: Blog Posts in Lupus I am truly amazed at how much better I nap when I'm wearing an eye mask. It's as though I'm able to enter the deepest sleep possible within minutes of falling asleep, maxi ... Read on »
Choosing wisely: putting our lupus needs first. by Sara .. Posted in: Blog Posts in Lupus Several weeks ago, I found myself feeling a bit faint during Sunday mass. It was no surprise - it was Palm Sunday (the Sunday before Easter), and the gospel reading (during ... Read on »
Lupus hair loss - satin pillowcase, anyone? by Sara .. Posted in: Blog Posts in Lupus Well, it's arrived. The hair loss I was expecting over the winter is officially here. I have now entered my fifth round of hair loss since I was diagnosed with lupus alm ... Read on »
Following my lupus instinct - knowing when too much is enough. by Sara .. Posted in: Blog Posts in Lupus About a month ago, I flew up to Boston to participate in Lupus Foundation of New England's Annual Symposium . I was looking forward to the event, and had worked closely with ... Read on »
LFA's Youth Lupus Experience - 6/7/14 in Indianapolis. What an event! by Sara .. Posted in: Blog Posts in Lupus The Indiana Chapter of the LFA is hosting an upcoming youth event that sounds too good to pass up! The event, Purple for a Purpose Youth Experience, is designed specifi ... Read on »
Hosting my book club - a chance to chart my lupus progress! by Sara .. Posted in: Blog Posts in Lupus A few nights ago, I hosted my book club (a group of 6-7 ladies) for our monthly meeting. I hadn't hosted since last September, and what a difference seven months makes! T ... Read on »
Experiencing lupus hair loss? Turn to a pet in your time of need! by Sara .. Posted in: Blog Posts in Lupus Having a lovable, furry friend in the household has proven time and again to be good for our health. They can lower our stress levels, help stave off feelings of lonelines ... Read on »
Mail-order prescriptions: Update #1 on Cellcept by Sara .. Posted in: Blog Posts in Lupus A few weeks ago, I blogged about the incredible savings I was going to see by ordering  my Cellcept prescription in a 3-month supply . The numbers were astounding to me - $4 ... Read on »