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Prednisone: Clawing my way back to 5mg by Sara G. Patient Expert Posted in: Blog Posts in Lupus I originally had this post titled "Turkey Day Disaster, a.k.a the Lupus Party Fowl". But, instead, I decided to focus on the task at hand, which is to taper off the predniso ... Read on »
Momentum lost, but health preserved. Listening to my lupus body! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Every Thursday at noon, I drop my girls off at their aunt's house for an afternoon of fun with their cousins. It's a glorious arrangement we have, my sister and I. She drops ... Read on »
Enter to win! Pillbag Give-away ends today! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Make sure to stop by the blog,  Getting Closer to Myself by midnight tonight to have a shot at a Free Pillfold! Leslie, the blog's creator, is throwing a major post-holiday ... Read on »
Good things come to those who nap : Lupus motto 2014 by Sara G. Patient Expert Posted in: Blog Posts in Lupus I woke up yesterday from a long, wintry afternoon nap, to read on Twitter that I'd been chosen as one of the Best Lupus Blogs of 2013  by Healthline.com. Wow!! I'm thrille ... Read on »
Ushering in the new year - armed with lupus knowledge by Sara G. Patient Expert Posted in: Blog Posts in Lupus Wow. 2014. We made it! The start of a new year is always a good time to reflect on the previous year's happenings - big, little, and in between. 2014 was a good year for ... Read on »
Merry Christmas and Happy New Year! by Sara G. Patient Expert Posted in: Blog Posts in Lupus From Despite Lupus Headquarters and Sara Gorman's Pillbags, we wish you all a very Merry Christmas and a very Happy New Year. We'll see you in 2014 - take care and ... Read on »
Informed, but filtered: Using the internet to HELP your lupus, not hurt it! by Sara G. Patient Expert Posted in: Blog Posts in Lupus A few months back, my girlfriend went into a doctor's appointment. The doctor asked her how things were going, she said not so well, and the doctor asked what had been happe ... Read on »
New Pillbag Charity of the Month - Michigan Lupus Foundation! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Many thanks to Lupus Foundation of Florida for being our Fall Charity of the Month, and thanks to those of you who purchased pillbags during the last few months. Know that y ... Read on »
St. Aidan's Holiday Marketplace -Dec 6 and 7 - your one-stop shopping extravaganza! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Alright, Northern Virginians - it's time to shop! Cross everyone off your Christmas list this year by stopping by the annual St. Aidan's Holiday Marketplace this Frida ... Read on »
Thanksgiving Savings--Enjoy 10% off!! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Happy Thanksgiving! It's time to kick off the holidays, and what better way to do it than with a sale on Sara Gorman's Pillbags! Through the Thanksgiving weekend, take 10 ... Read on »
Healthline's "Best Health Blog of 2013" Nominee - Woohoo! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Somebody out there loves me! I'm humbled to say that Despite Lupus.com has been nominated for the "Best Health Blog of 2013" by the editors at Healthline.com. What an honor! ... Read on »
Reunions Gift Shop - now carrying the Pillbags! by Sara G. Patient Expert Posted in: Blog Posts in Lupus I'm thrilled to announce that the Pillbags are now gracing the shelves at Reunions Gift Shop in Alexandria, VA! This store is MORE than just a gift shop - it's a feast ... Read on »
Non-Toxic Therapy For Lupus Successfully Tested On Patients - Onward and Upward! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Exciting news in the world of lupus research! Looks like researchers at Northwestern University have made great strides in designing a new non-toxic therapy that suppresses ... Read on »
Tapering off Prednisone - Learning to be brave by Sara G. Patient Expert Posted in: Blog Posts in Lupus Tapering off prednisone does not come easily to me. My body never seems to remember how to do it, no matter how many times I've been through it! Of course, the higher th ... Read on »
HSS and S.L.E. Lupus Foundation Facebook Chat - Tonight at 5:30pm! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Hospital for Special Surgery (HSS) and S.L.E. Lupus Foundation , both of whom I've had the pleasure of working with in the past ( ... Read on »
Sticking with my Health Insurance: Lupus and I are covered! by Sara G. Patient Expert Posted in: Blog Posts in Lupus On March 31st, 2008, I published my very first blog post on Despite Lupus. It was about my victory in scoring private health insurance, despite my pre-existing condition. It ... Read on »
LFA DMV Annual Maryland Summit, Saturday, Nov 2nd. See you there! by Sara G. Patient Expert Posted in: Blog Posts in Lupus I can't believe we're almost to November! The Fall is flying by, but I hope you can find time to join me this weekend at LFA DMV's educational summit in Baltimore, MD. I'll ... Read on »
Avoiding lupus triggers, especially the ones that are oh-so-tempting when you're stuck at home! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Per Friday's post , you know what activities I tried to focus on, so that I wasn't dwelling on the fact that my rise in symptom activity was keeping me home. While it was vi ... Read on »
My fall flare report, or what I did when lupus had me housebound by Sara G. Patient Expert Posted in: Blog Posts in Lupus Because of the reappearance of my disease activity starting in August, I had to put myself on lock-down. For me, that means staying at home and doing as little as possible. ... Read on »
Post postponed: it's my bedtime by Sara G. Patient Expert Posted in: Blog Posts in Lupus I had a post all ready to go for today, but as I was putting the finishes touches on it last night, I realized I had a few more tweaks to do before it was ready. It was 10:1 ... Read on »