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Thanksgiving Savings--Enjoy 10% off!! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Happy Thanksgiving! It's time to kick off the holidays, and what better way to do it than with a sale on Sara Gorman's Pillbags! Through the Thanksgiving weekend, take 10 ... Read on »
Healthline's "Best Health Blog of 2013" Nominee - Woohoo! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Somebody out there loves me! I'm humbled to say that Despite Lupus.com has been nominated for the "Best Health Blog of 2013" by the editors at Healthline.com. What an honor! ... Read on »
Reunions Gift Shop - now carrying the Pillbags! by Sara G. Patient Expert Posted in: Blog Posts in Lupus I'm thrilled to announce that the Pillbags are now gracing the shelves at Reunions Gift Shop in Alexandria, VA! This store is MORE than just a gift shop - it's a feast ... Read on »
Non-Toxic Therapy For Lupus Successfully Tested On Patients - Onward and Upward! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Exciting news in the world of lupus research! Looks like researchers at Northwestern University have made great strides in designing a new non-toxic therapy that suppresses ... Read on »
Tapering off Prednisone - Learning to be brave by Sara G. Patient Expert Posted in: Blog Posts in Lupus Tapering off prednisone does not come easily to me. My body never seems to remember how to do it, no matter how many times I've been through it! Of course, the higher th ... Read on »
HSS and S.L.E. Lupus Foundation Facebook Chat - Tonight at 5:30pm! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Hospital for Special Surgery (HSS) and S.L.E. Lupus Foundation , both of whom I've had the pleasure of working with in the past ( ... Read on »
Sticking with my Health Insurance: Lupus and I are covered! by Sara G. Patient Expert Posted in: Blog Posts in Lupus On March 31st, 2008, I published my very first blog post on Despite Lupus. It was about my victory in scoring private health insurance, despite my pre-existing condition. It ... Read on »
LFA DMV Annual Maryland Summit, Saturday, Nov 2nd. See you there! by Sara G. Patient Expert Posted in: Blog Posts in Lupus I can't believe we're almost to November! The Fall is flying by, but I hope you can find time to join me this weekend at LFA DMV's educational summit in Baltimore, MD. I'll ... Read on »
Avoiding lupus triggers, especially the ones that are oh-so-tempting when you're stuck at home! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Per Friday's post , you know what activities I tried to focus on, so that I wasn't dwelling on the fact that my rise in symptom activity was keeping me home. While it was vi ... Read on »
My fall flare report, or what I did when lupus had me housebound by Sara G. Patient Expert Posted in: Blog Posts in Lupus Because of the reappearance of my disease activity starting in August, I had to put myself on lock-down. For me, that means staying at home and doing as little as possible. ... Read on »
Post postponed: it's my bedtime by Sara G. Patient Expert Posted in: Blog Posts in Lupus I had a post all ready to go for today, but as I was putting the finishes touches on it last night, I realized I had a few more tweaks to do before it was ready. It was 10:1 ... Read on »
Double trouble: My new pillfold strategy by Sara G. Patient Expert Posted in: Blog Posts in Lupus Since the moment I sewed my first Pillfold prototype, I've used some version of the bag to hold my daily medication. I've tried out all of the fabrics to make sure they wear ... Read on »
Progress, progress, and more progress: How far I've come in this lupus flare by Sara G. Patient Expert Posted in: Blog Posts in Lupus First things first: the joint pain, swelling, and fatigue that I've been experiencing over the past couple of weeks (wait...who am I kidding? It's been the past couple of mo ... Read on »
Running for a cause: Laura Sweltz by Sara G. Patient Expert Posted in: Blog Posts in Lupus I'd like to introduce you to Laura Sweltz, an impressive young lady who is running the Marine Corps Marathon at the end of October...all in the name of lupus. I'll let h ... Read on »
LFA's Take Charge and Make a Change Video: September 2013 by Sara G. Patient Expert Posted in: Blog Posts in Lupus I had a great time at last weekend's LFA DMV "Take Charge and Make a Change" Advocacy Workshop . It was a totally different kind of seminar, and I was thrilled to participat ... Read on »
HSS Events: Honoring Lupus Heroes on 9/24 and Facebook Chat on 11/6. by Sara G. Patient Expert Posted in: Blog Posts in Lupus About two years ago, I traveled up to NYC to speak to a lupus group at the Hospital for Special Surgery . I could tell then that HSS paid special attention to their lupus ... Read on »
Lupus lifestyle accommodations - Setting myself up to succeed by Sara G. Patient Expert Posted in: Blog Posts in Lupus As I mentioned on Wednesday, the joint pain (and fatigue) that I've been experiencing recently hit a disruptive threshold , such that I decided to drastically reduce the str ... Read on »
Everyday Health takes a closer look at lupus. Thanks, Dr. Sanjay Gupta! by Sara G. Patient Expert Posted in: Blog Posts in Lupus News & Advice Health Matters With Dr. Sanjay Gupta | 2 Comments Living With Lupus It's been 12 years s ... Read on »
Lupus joint pain - my breaking point by Sara G. Patient Expert Posted in: Blog Posts in Lupus I've alluded to the joint pain that's been hanging around for several weeks now...and I can finally say I think it's on its way out. Thank goodness! It was a little touch an ... Read on »