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Running for a cause: Laura Sweltz by Sara G. Patient Expert Posted in: Blog Posts in Lupus I'd like to introduce you to Laura Sweltz, an impressive young lady who is running the Marine Corps Marathon at the end of October...all in the name of lupus. I'll let h ... Read on »
LFA's Take Charge and Make a Change Video: September 2013 by Sara G. Patient Expert Posted in: Blog Posts in Lupus I had a great time at last weekend's LFA DMV "Take Charge and Make a Change" Advocacy Workshop . It was a totally different kind of seminar, and I was thrilled to participat ... Read on »
HSS Events: Honoring Lupus Heroes on 9/24 and Facebook Chat on 11/6. by Sara G. Patient Expert Posted in: Blog Posts in Lupus About two years ago, I traveled up to NYC to speak to a lupus group at the Hospital for Special Surgery . I could tell then that HSS paid special attention to their lupus ... Read on »
Lupus lifestyle accommodations - Setting myself up to succeed by Sara G. Patient Expert Posted in: Blog Posts in Lupus As I mentioned on Wednesday, the joint pain (and fatigue) that I've been experiencing recently hit a disruptive threshold , such that I decided to drastically reduce the str ... Read on »
Everyday Health takes a closer look at lupus. Thanks, Dr. Sanjay Gupta! by Sara G. Patient Expert Posted in: Blog Posts in Lupus News & Advice Health Matters With Dr. Sanjay Gupta | 2 Comments Living With Lupus It's been 12 years s ... Read on »
Lupus joint pain - my breaking point by Sara G. Patient Expert Posted in: Blog Posts in Lupus I've alluded to the joint pain that's been hanging around for several weeks now...and I can finally say I think it's on its way out. Thank goodness! It was a little touch an ... Read on »
Inserting "fun" onto the to-do list...loosley inspired by Pottery Barn by Sara G. Patient Expert Posted in: Blog Posts in Lupus I was flipping through the newest Pottery Barn catalog recently, and I noticed a wall chalkboard they have for sale. It wasn't the actual chalkboard that caught my eye, but ... Read on »
Charity of the Month - Sept-Oct-Nov 2013: Lupus Foundation of Florida by Sara G. Patient Expert Posted in: Blog Posts in Lupus A big fat thank you to The Lupus Endeavor for participating in the Pillbag Charity of the Month program all summer long! TLE is a fabulous cause , created by a fabulous gal ... Read on »
The Pillfold Winchester gets a new glamour shot! by Sara G. Patient Expert Posted in: Blog Posts in Lupus We conducted a mini-photo shoot this week, and the Pillfold Winchester updated her look! Here's a shot of the new product shots - lots of pink in this shipment of the Winche ... Read on »
Moving Day!! Lupus lesson #351: Share your plan to ask for help so you can't talk yourself out of... by Sara G. Patient Expert Posted in: Blog Posts in Lupus I just realized I never published this post on the day we moved! I'm happy to say that we're settling in and pretty much box-free, after three and 1/2 weeks in the new house ... Read on »
Lupus decisions - good tips continued by Sara G. Patient Expert Posted in: Blog Posts in Lupus Decisions. I counted 27 of them in the master bathroom the other day. Twenty-seven decisions in that little space that we made in order for the room to turn out the way it d ... Read on »
The Decision-Making process: A few helpful hints by Sara G. Patient Expert Posted in: Blog Posts in Lupus I feel like Johnny and I have been in a permanent state of decision-making for the past two years. That’s about the time we started the process of renovating our house. I th ... Read on »
Do my kids understand lupus? I'll go with "Enough for now." by Sara G. Patient Expert Posted in: Blog Posts in Lupus The word "lupus" comes up in our household a lot. I talk about it, blog about it, speak about it, and write about it. So it's fair to say that my girls are pretty familiar w ... Read on »
Another Pillbag Shout-out! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Many thanks goes out to Rhiann in the UK for her wonderful Pillbag review on her blog "My Brain Lesion and Me: Once Upon a Dizzy Spell...A Story of a girl living with a neur ... Read on »
Letting go of the clutter, but holding on to memories of lupus hairstyles past by Sara G. Patient Expert Posted in: Blog Posts in Lupus Now that we're back in our house after nine months in a rental, I've been reunited with the stuff we kept in a storage container in our driveway during the renovation. I can ... Read on »
Choosing Sleep: Rewarding in so many ways. by Sara G. Patient Expert Posted in: Blog Posts in Lupus So the decision for yesterday was this: do I take the last 30 minutes of my 2 hour dedicated "nap time" to write a blog post, or do I sleep? From the short amount of text on ... Read on »
Feeling vulnerable in the face of lupus? Me, too! by Sara G. Patient Expert Posted in: Blog Posts in Lupus My husband recently shared an inspiring article with me, and I thought I would pass along some snippets from it. The piece was written by Richard Rohr, OPM,  a  Franciscan   ... Read on »