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Do my kids understand lupus? I'll go with "Enough for now." by Sara G. Patient Expert Posted in: Blog Posts in Lupus The word "lupus" comes up in our household a lot. I talk about it, blog about it, speak about it, and write about it. So it's fair to say that my girls are pretty familiar w ... Read on »
Another Pillbag Shout-out! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Many thanks goes out to Rhiann in the UK for her wonderful Pillbag review on her blog "My Brain Lesion and Me: Once Upon a Dizzy Spell...A Story of a girl living with a neur ... Read on »
Letting go of the clutter, but holding on to memories of lupus hairstyles past by Sara G. Patient Expert Posted in: Blog Posts in Lupus Now that we're back in our house after nine months in a rental, I've been reunited with the stuff we kept in a storage container in our driveway during the renovation. I can ... Read on »
Choosing Sleep: Rewarding in so many ways. by Sara G. Patient Expert Posted in: Blog Posts in Lupus So the decision for yesterday was this: do I take the last 30 minutes of my 2 hour dedicated "nap time" to write a blog post, or do I sleep? From the short amount of text on ... Read on »
Feeling vulnerable in the face of lupus? Me, too! by Sara G. Patient Expert Posted in: Blog Posts in Lupus My husband recently shared an inspiring article with me, and I thought I would pass along some snippets from it. The piece was written by Richard Rohr, OPM,  a  Franciscan   ... Read on »
Barn Door Installed!! Woohoo!! by Sara G. Patient Expert Posted in: Blog Posts in Lupus   In the meantime, hope to see you locals at  The Friday Affair at Hollin Hall today.  The Pillfold Trocadero has made a surprising surge this week in website sales. ... Read on »
Hanging my "Help Wanted" sign...where people can see it. by Sara G. Patient Expert Posted in: Blog Posts in Lupus A few days ago, my fabulous 17-year old babysitter kindly offered to help me with my move. She said she could pack boxes, watch the kids, or whatever we needed her to do. Sh ... Read on »
Brave new face - a new resource for lupus patients by Sara G. Patient Expert Posted in: Blog Posts in Lupus GlaxoSmithKline (the guys who brought us Benlysta) just launched a new campaign to assist lupus patients prepare for and communicate during their doctors' appointments. Th ... Read on »
Another Friday Affair at Hollin Hall: 7/26 from 12-4pm. by Sara G. Patient Expert Posted in: Blog Posts in Lupus I'm excited to participate in another Friday Affair at Hollin Hall , set for next Friday, July 26th. Last month's event brought a wonderful array of vendors and cu ... Read on »
Take a survey and raise some lupus dough!! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Got lupus? Take this survey ! My local chapter of the Lupus Foundation of America will receive a $20 donation for every qualified survey completed. I just took it, and it ... Read on »
Sunday: Truly a day of rest for this lupus gal by Sara G. Patient Expert Posted in: Blog Posts in Lupus A couple of years ago, Johnny and I came up with a brilliant idea. Instead of returning from vacation  late on Sunday night, we chose to arrive home by noon, giving ourselve ... Read on »
Back from vacation...almost. by Sara G. Patient Expert Posted in: Blog Posts in Lupus I was out on vacation last week, enjoying the wonderful surf and sand in Ocean City, NJ. What a week! We're home, and settling back in, but I'm still on blogging vaca ... Read on »
Making life with lupus better, one hassle at a time. by Sara G. Patient Expert Posted in: Blog Posts in Lupus One day a few weeks ago, as I was falling asleep during my afternoon nap, I made a little wish. It went something like this: "Someday, I wish that I could to take a nap when ... Read on »
Being late equals being anxious. But now I've seen the light... by Sara G. Patient Expert Posted in: Blog Posts in Lupus A few months ago, my sister and I took our annual weekend getaway with our girlfriends. The trip was fabulous, as it always is, but it was the start of the trip that really ... Read on »
The origin of the Pillbags by Sara G. Patient Expert Posted in: Blog Posts in Lupus In the beginning, there was a Pillbox. A small, dainty, Parisian-inspired metal pillbox, just big enough for my mid-day doses of medication. One of my best friends fro ... Read on »
Choosing Wisely: Putting my health above an agenda...again. by Sara G. Patient Expert Posted in: Blog Posts in Lupus Per my post at the end of May , I thought I owed you a follow up to my Lupus Awareness Month to-do's . Why not take a moment to publicly celebrate a couple of  "cross-offs"? ... Read on »
Summer Pillbag Sale: Save 15% and tote your pills in style! by Sara G. Patient Expert Posted in: Blog Posts in Lupus The summer is heating up, and vacations are right around the corner. How about toting your medications in style this time? No plastic allowed! Now through Sunday, Jul ... Read on »
39 big ones logged for this lupite by Sara G. Patient Expert Posted in: Blog Posts in Lupus Well, I made it. I'm 39 today. Woohoo! I certainly have a lot to celebrate and be thankful for - a wonderful family, good health, a thriving business that I love ( my car ... Read on »