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S.L.E. Lupus Foundation Webinar - June 26th. Be sure to tune in! by Sara G. Patient Expert Posted in: Blog Posts in Lupus The S.L.E. Lupus Foundation has a great webinar coming up next week you won't want to miss!  It's called "Everyday Living with Lupus: Be Proactive", and will take place ... Read on »
The lupus drug of choice: Plaquenil Guidelines Revisted by Sara G. Patient Expert Posted in: Blog Posts in Lupus As a follow up to my recent post about my visit to the opthomalgist for an ERG , I thought I'd offer a link to the revised guidelines for Plaquenil toxicity (i.e. when and h ... Read on »
Pillfold Lifestyle: The Sebastian by Sara G. Patient Expert Posted in: Blog Posts in Lupus Add a cute white tee, and you have the perfect outfit for summer travel, complete with a stylish Pillbag! The Pillfold Sebastian , one of our most popular designs , p ... Read on »
S.L.E.Lupus Foundation's Night for the Fight - Tuesday, June 10th in NYC by Sara G. Patient Expert Posted in: Blog Posts in Lupus Click here for more details about this upcoming event in NYC! Read on »
ALR's Glossary of lupus terms--I love it! by Sara G. Patient Expert Posted in: Blog Posts in Lupus I just came upon this interactive, multi-media glossary of lupus terms , provided by the Alliance for Lupus Research , and I think it's fabulous!  All too often ... Read on »
Despite Lupus' Spring Speaking Tour 2014: LFA Indiana - Indianapolis by Sara G. Patient Expert Posted in: Blog Posts in Lupus One of the last stops on the DL Spring tour will be one of my favorites - my home state of Indiana. The LFA Indiana Chapter has always been so good to me, welcoming me back ... Read on »
Despite Lupus' 2014 Spring Speaking Tour - LFA D.C Maryland Virginia by Sara G. Patient Expert Posted in: Blog Posts in Lupus The next stop on my Spring Speaking Tour - Washington D.C.! I'm pleased to be working with the LFA DMV once again, this time speaking at one of the breakout sessions at the ... Read on »
Commit two "shoulds" to the circular file...and watch your lupus anxiety melt away! by Sara G. Patient Expert Posted in: Blog Posts in Lupus I have a confession to make. Those tasks I blogged about a few weeks ag o, the ones that I was going to tackle with fervor once my prednisone kicked in? Well, they have yet ... Read on »
Despite Lupus' 2014 Spring Speaking Tour - Lupus Foundation of New England by Sara G. Patient Expert Posted in: Blog Posts in Lupus April has arrived, and I'm looking forward to kicking off my Spring Speaking Tour! I'm going to be busy, but my travel plans have been carefully (read: painstakingly) arrang ... Read on »
A pitch for 3-month supply medications. The numbers don't lie! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Are you ready to hear some astounding prescription drug figures?  I recently started CellCept again, after an almost seven-year hiatus. (After several years of pl ... Read on »
Pillfold Lifestyle: The Trocadero by Sara G. Patient Expert Posted in: Blog Posts in Lupus Combined with a dash of color and a pair of fun kitten heels, the Pillfold Trocadero  is the perfect complement to a stylish, on-the-go lifestyle! This is just how the ... Read on »
Andre Agassi's "Open" : A good read, and his hair travails revealed! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Based on a recommendation, I recently read "Open" by Andre Agassi , which I thoroughly enjoyed. I've never been a huge tennis fan, but I often watched Agassi's matches alo ... Read on »
What's a Pillpouch, and how does it work? Pillpouch how-to video to the rescue! by Sara G. Patient Expert Posted in: Blog Posts in Lupus I also thought I'd include a picture of another sad, little bag I used to use to corral my pill bottles, pre-Pillpouch. This old toiletry bag had seen better days. It wa ... Read on »
Lupus hair loss: playing it safe or living in fear? by Sara G. Patient Expert Posted in: Blog Posts in Lupus As many of you know, I am no stranger to lupus hair loss. I've actually lost my hair multiple times due to my illness. Some bouts I would categorize as drastic hair loss, ot ... Read on »
Take a Nap! (At least Michelle Petri says so) by Sara G. Patient Expert Posted in: Blog Posts in Lupus Dr. Michelle Petri, one of the most formidable lupus doctors in the world, says that because of lupus fatigue, you may need to take a nap in the afternoon. She says if your ... Read on »
A lupus moment - letting the tears come (and go) as needed. by Sara G. Patient Expert Posted in: Blog Posts in Lupus Some days with lupus just seem tougher than others: mornings that seem to last a lifetime, hours that never end. Minutes that seem more unbearable with each second that goes ... Read on »
Lupus lymph node - a biopsy fire-drill by Sara G. Patient Expert Posted in: Blog Posts in Lupus A little over a week ago, I recounted the details of my most recent doctor's appointment . To my relief, he put me on CellCept, changed up my prednisone, and altered my plaq ... Read on »
New Lupus Dutch Documentary - "I used to dance" by lupus patient Femke Kramer by Sara G. Patient Expert Posted in: Blog Posts in Lupus Lupus is about to take New York by storm. The world premiere of the dutch documentary "I used to dance", a powerful film about living with lupus, will take place on March ... Read on »
Lupus Recovery Mode: The value of doing nothing by Sara G. Patient Expert Posted in: Blog Posts in Lupus In my book, Despite Lupus, there's a section about learning to compromise, a must when it comes to living well with lupus, in my opinion. Specifically, I talk about the ab ... Read on »