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Talking lupus symptoms with your kids. I tend to share, so that they share back! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Earlier this summer, I realized it was time to renew my passport, which involved getting a new passport photo.  It was due to expire at the end of September, so the timing w ... Read on »
Rock, Paper, Cocktails! 2014: Monday, Sept 29th, Old Town Alexandria. See you there! by Sara G. Patient Expert Posted in: Blog Posts in Lupus I'm pleased to be supporting the cause once again by participating in the annual Rock, Paper, Cocktai ... Read on »
Introducing the New Pillbag Runway Series: Fall 2014 #pillorganizersrock by Sara G. Patient Expert Posted in: Blog Posts in Lupus New Season. New Colors. New Pillfolds! This fall, I'm excited to launch a new line of Pillbags – the Pillbag Runway Series. With the Pillbag Runway Series, we’ll ... Read on »
Book Review: "The Lupus Encyclopedia", by Dr. Donald E. Thomas Jr. by Sara G. Patient Expert Posted in: Blog Posts in Lupus Since the LFA DMV's Annual Maryland Summit is tomorrow, I thought it would be a perfect time to share my glowing review of Dr. Donald Thomas' new book, “The Lupus Encycloped ... Read on »
"Switching off" autoimmunity. Can you imagine the possibilities for lupus!?! by Sara G. Patient Expert Posted in: Blog Posts in Lupus An exciting break though in the world of auto-immune diseases! I'm pleased to share the following articles with you - both sent to me by a couple of lupus friends. I was gid ... Read on »
Lupus: knowledge is power; sleep is prodigious! by Sara G. Patient Expert Posted in: Blog Posts in Lupus "If at first you don't succeed...maybe you shouldn't try again. At least not for awhile." Remember how I was going to try a little mid-afternoon experiment last week, to ... Read on »
Finding flexibility in a lupus lifestyle. How far can you go? by Sara G. Patient Expert Posted in: Blog Posts in Lupus "To push, or not to push, that is the question." At least, that seems like it's the question. I've been feeling absolutely, positively fabulous lately. No swelling, no ex ... Read on »
Your chance to support a great cause - VEDA t-shirts are calling your name! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Remember my friend Marissa over at Abledis.com ? She did the fantastic 12-12-12  Project, asking me to participate as one of the  featured project members . She did the ... Read on »
The Traveling Pillfold - Finding a soul mate at the zoo! by Sara G. Patient Expert Posted in: Blog Posts in Lupus The girls and I traveled to Indiana last week to visit grandma and grandpa - and we decided to pay a visit to our furry friends at the Indianapolis Zoo while we were there. ... Read on »
Celebrities with lupus: the list keeps growing! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Check out one of  the latest list of celebritie s who have bravely come forward to talk about the fact that they have lupus. Thanks to each one of them for revealing that th ... Read on »
Which doctor to consult? Learning how to manage lupus symptoms and get results! by Sara G. Patient Expert Posted in: Blog Posts in Lupus My rheumatologist is good at a lot of things. He manages my lupus care tremendously well. He’s proactive in his treatment, aggressive, but not overzealous when it comes to ... Read on »
#pillfoldtrending #bordeauxthenewtopseller #thankyourosie by Sara G. Patient Expert Posted in: Blog Posts in Lupus Just a wee bit excited about Rosie O'Donnell talking up my pillbags on Twitter. She took great photos of her Bordeaux Pillfold . Don't her meds look oh-so-stylish in there? ... Read on »
Paving the way for a good spa experience - lupus in tow. by Sara G. Patient Expert Posted in: Blog Posts in Lupus Setting myself up to succeed - what a valuable tool for making life with lupus easier! Over the years, I've been amazed at how many opportunities I have as a patient to make ... Read on »
Lupus treatment: Being open to change by Sara G. Patient Expert Posted in: Blog Posts in Lupus My daughter Deirdre is five going on 15. She is a precocious little lady - and makes me earn my parenting badge on a weekly basis. Of course, I love her dearly, and ... Read on »
The way a prednisone taper is SUPPOSED to work. by Sara G. Patient Expert Posted in: Blog Posts in Lupus Mention the phrase "taper off prednsione", and my body instantly tenses up. I know I've written about my attempts (some failed, some successful) to taper off steroids in the ... Read on »
Sticking with the minis: Hair clips to the rescue! by Sara G. Patient Expert Posted in: Blog Posts in Lupus These little guys have been lifesavers over the past few months! As strands continue to fall from my head, I've been trying to style my hair as little as possible. That ... Read on »
Upcoming Fibromyalgia Seminar: In Lombard, Illinois? I hope you can make it! by Sara G. Patient Expert Posted in: Blog Posts in Lupus    Would you like to learn more about managing fibromyalgia? Attend a free  “Get Educated”  presentation on: “Why I Hurt: The Truth Behind Fibromyalgia" ... Read on »
Looking worn and in need of a pick-me-up? The Lovely Blog to the rescue! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Chalk it up to the big birthday I had last month, or this latest bout of hair loss, but my skin has been feeling old. And looking old. And I was in need of a pickup. So w ... Read on »
Gauging the success of my lupus nap: Letting the numbers talk. by Sara G. Patient Expert Posted in: Blog Posts in Lupus If you can believe it, I've been taking almost a 2-hour nap every afternoon for the past 11 years. It's become a part of my daily routine that I cannot, will not, and do not ... Read on »
Napping on the road makes for a great day, despite lupus! by Sara G. Patient Expert Posted in: Blog Posts in Lupus About a week ago, my sister whisked me away for a day at the spa for my birthday. It was fabulous! We relaxed, we spa'ed, and we ate great food. And we'd do it again tomorro ... Read on »