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Looking back blues by Sara G. Patient Expert Posted in: Blog Posts in Lupus I was recently looking through some old photos - from high school, college, and even my first few years out of school - and I was shocked. Those outfits! And that hair! Who in ... Read on »
New LFA Video on Lupus Treatments by Sara G. Patient Expert Posted in: Blog Posts in Lupus This is definitely worth watching...and here's the link for a few other videos the LFA just put together. Enjoy! Read on »
May the force be with you by Sara G. Patient Expert Posted in: Blog Posts in Lupus My apologies for the belated Halloween pictures from Deirdre's 2 nd annual spooky holiday. She, of course, was a big hit as Princess Leia...and her dad and I were in heaven wa ... Read on »
Bittersweet: A tribute to Ursula Williams by Sara G. Patient Expert Posted in: Blog Posts in Lupus Most of us have a handful of teachers or professors who have made a significant impact on us at one time or another during our academic careers. I certainly had a couple at No ... Read on »
Passing the torch by Sara G. Patient Expert Posted in: Blog Posts in Lupus In the past, I've blogged about the fact that I can get a bit, shall we say, obsessive about uncovering the causes of my lupus symptoms. It's been awhile (thank goodness!) sin ... Read on »
I'm off to the Golden Dome! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Despite Lupus is hitting the road again - back to the cornfields of Indiana. Not for another hometown visit this time. Rather, I'll be touching down in lovely South Bend, IN, ... Read on »
Have thoughts about "Despite Lupus"? by Sara G. Patient Expert Posted in: Blog Posts in Lupus Chime in on the book discussion taking place this month on Shelfari. Sponsored by My Life Works Today, be sure to log on to Shelfari and see what others are saying about the b ... Read on »
Movin' and Groovin' - Guest blogger by Sara G. Patient Expert Posted in: Blog Posts in Lupus I'm pleased to welcome guest blogger Suzanna Adams, Physical Therapist from the OSU (Ohio State University) Medical Center. Suzanna works in the Out-Patient Rehabilitation Ser ... Read on »
Benlysta update - good news all around! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Here's the latest in lupus drug research news: Human Genome Sciences announced that its drug BENLYSTA™ (belimumab) met its primary endpoint in BLISS-76, the second and ... Read on »
What are customers saying about the book "Despite Lupus"? by Sara G. Patient Expert Posted in: Blog Posts in Lupus Find out by clicking on our new and improved "Reviews and Feedback" menu category at the top of the website. You'll still find reviews from doctors, LFA, ALR (Allian ... Read on »
Skinny pens – my new pet peeve by Sara G. Patient Expert Posted in: Blog Posts in Lupus I have a renewed appreciation for Good Grip products. I’ve always known how handy they can be when my arthritic hands are throbbing and in pain, but now I’m thinki ... Read on »
Educate yourself - help your doctor help you. by Sara G. Patient Expert Posted in: Blog Posts in Lupus Here's a snippet from a great article my friend sent me from CNN Health. Click here to read the entire piece. It's a good one! **** "Women's health problems doctors stil ... Read on »
Mirror, Mirror, on the wall by Sara G. Patient Expert Posted in: Blog Posts in Lupus Just a few weeks ago, I had the chance to connect with a blog reader over the phone. She was a 4-year veteran of lupus, a successful entrepreneur, and doing her best to stay p ... Read on »
The end of an era – and a good one, at that. by Sara G. Patient Expert Posted in: Blog Posts in Lupus Today’s post was supposed to be about what I really do when my babysitter, Leticia, arrives every afternoon. I’ve mentioned a sampling of activities in previous po ... Read on »
Decisions, decisions: A question of immunosuppresants by Sara G. Patient Expert Posted in: Blog Posts in Lupus I’m currently reading “How We Decide”, by Jonah Lehrer, author of “Proust was a Neuroscientist.” It’s the book of the month for my book clu ... Read on »
Are you being fair? by Sara G. Patient Expert Posted in: Blog Posts in Lupus Years ago, when I was still working full-time, an employee gave me feedback on my performance as a manager. The one thing that stuck with me is that she appreciated the fact t ... Read on »
A supportive spouse speaks out by Sara G. Patient Expert Posted in: Blog Posts in Lupus Check out the great spouse tips featured in a recent Guideposts article, from a husband whose wife had cancer. Tailored ever so slightly, they apply to any spouse, friend or f ... Read on »
Turning back the clock! by Sara G. Patient Expert Posted in: Blog Posts in Lupus Growing up in central Indiana, I never had the pleasure of adjusting my clock during daylight savings, since Indiana was one of those crazy states that never changed time duri ... Read on »
Pics of the Princess by Sara G. Patient Expert Posted in: Blog Posts in Lupus Deirdre had two birthday parties over the past few days - one on her actual birthday and another for family who came in town for the weekend. She's officially a year old...and ... Read on »
Question of the Day by Sara G. Patient Expert Posted in: Blog Posts in Lupus Someone recently asked me if I still struggle with fatigue due to lupus. My immediate response? "No." Then I thought about it, and realized I should actually answer, ... Read on »