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Romelette L. Patient Expert

San Francisco, California
29 year old mom and wife who have been diagnosed with lupus since 2002. at the course of having lupus, i got operated in the lungs due to pleurisy, suffered pulmonary embolism and cyst in the ovary. but now i am in remission.
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Feb 18 2013 by jensagala
I started writing again and reading stories like what you shared. I really touches my heart. I hope everything went fine on your end.
 
May 17 2010 by Rose

hello Ms. Romelette

 Im searching about LUPUS altenative Medicine , my sister told me about lupussurvivor she is a nurse in Manila and she tellling about the medicine that found near in Mother Ignacia ABS street.. but i can't find it. Im Rose 37, 2005 when i found out i have SLE starting only in joint pain and fever.. 

 
Mar 02 2010 by jimadamik

Hi Romelette,

Learning from instructor is  good , but you can learn some begining movements and Tai Chi excersises from DVD. I teach Tai Chi AND Qigong . Qigong is more for health improvement. If I can help you find DVD's please contact me. You also might go to YouTube.com and search for Qigong or Tai Chi and watch the FREE video's there.

IN PEACE!

Jim Adamik ( www.av-taichi-qigong.com )

 
Dec 15 2008 by tricia
i just registered just to send this message to you but if you ever will reply back you could reach me thru tricia.tancioco@gmail.com
 
Dec 15 2008 by tricia
hi! i just chanced upon your blog because of  my desire to find a really nice 2009 planner and then i saw your blog entries about lupus. the glee turned into sadness for my mom died because of the disease. it wasn't detected early for we do not have good nephros in the philippines (the ones we've encountered also has limited knowledge about lupus.) it still pains me whenever i think of how my mom lost the battle, but eventhough i don't know you, i would like to congratulate you that you're in remission and i really wish you'd be in a better condition soon. :)