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World Down Syndrome Day 2011 by RK Patient Expert Posted in: Blog Posts in Down Syndrome 3-21-2011  For 3 copies of the 21st chromosome, unique to Down syndrome. In my opinion, creating some of the cutest of the cute out there. Don’t miss the video below. ... Read on »
Stringing letters [Down syndrome, fine motor skills, OT] by RK Patient Expert Posted in: Blog Posts in Down Syndrome My teachers at school are just the best. I like all of them so much. And it’s so much fun to see what new things we’re going to do everyday. Miss J had a fun new thin ... Read on »
Mommy life: Heart Day--Celebrating 4 years! by RK Patient Expert Posted in: Blog Posts in Down Syndrome Four years ago today, I handed my girl to a team of people. Basically strangers.  Their plan was to cut her perfect skin, crack her sternum, stop her heart, poke, stitch, ... Read on »
Mommy life: A peek at the future by RK Patient Expert Posted in: Blog Posts in Down Syndrome Maybe it’s because music is part of my core nature, maybe it’s because I have a daughter with Down syndrome, or maybe it’s because it’s just an inspiring story.  No matter ... Read on »
A good day to be 4 by RK Patient Expert Posted in: Blog Posts in Down Syndrome I had a great day. It was really busy and there’s lots of pictures to show you, but I’m gonna go to bed and get some rest! Happy birthday to me! Read on »
She’s Dashlyn Now! [Down syndrome, international adoption, Reece’s Rainbow] by RK Patient Expert Posted in: Blog Posts in Down Syndrome Remember how we have been waiting for Jack’s new little sister to come home?  Well she’s not home yet, but very soon!  Miss Julie and Mr. Allan got to go over to where she ... Read on »
Dress up party by RK Patient Expert Posted in: Blog Posts in Down Syndrome Today we went to PaPaw’s church for a dress up party.  There were lots of people there all dressed up in funny clothes.  Me and KiKi wore our bug dresses, and everyone tho ... Read on »
31 for 21: Education without alienation [Down syndrome, person first language] by RK Patient Expert Posted in: Blog Posts in Down Syndrome I have had the privilege of getting to know some super nifty blogger buddies “in real life” (IRL if you’re a fan of the acronyms, which I am) versus just communicating thr ... Read on »
31 for 21: 2 meals 1 day. Very good. by RK Patient Expert Posted in: Blog Posts in Down Syndrome Braska took two of her meals today orally.  What’s up? You’re just sitting there looking at the screen like nothing’s happening here.  Let’s try this again… Ah ... Read on »
31 for 21: Speaking for awareness [Down syndrome, local support group, Kiwanis] by RK Patient Expert Posted in: Blog Posts in Down Syndrome Thursday I had the privilege of speaking for the O’Fallon Kiwanis Club at their lunch meeting.  I was asked to speak to them about what our county’s community group ( StC ... Read on »
31 for 21: IEP 2010, Part 1 [Down syndrome, disability, IEP, special education] by RK Patient Expert Posted in: Blog Posts in Down Syndrome Today was IEP day.  (Individualized Education Plan—All students involved in special education have one of these.)  We moved Braska’s up a little earlier than her birthday ... Read on »
31 for 21: Beautiful Baby Braska Part 2 [Down syndrome] by RK Patient Expert Posted in: Blog Posts in Down Syndrome Here’s a few more of the finds from years ago… Spring 2008.  Pretty little bear…   These were taken the same time… I posted the one below here w ... Read on »
31 for 21: Beautiful Baby Braska Part 1 [Down syndrome] by RK Patient Expert Posted in: Blog Posts in Down Syndrome Yesterday I was looking for some pictures on my mother-in-law ’s computer, and as I was perusing her uniquely organized files, I came across some great ones. These ... Read on »
31 for 21: More about eyes [ Down syndrome, glasses, eyes, nystagmus] by RK Patient Expert Posted in: Blog Posts in Down Syndrome If you missed the previous blip about Braska’s eye appointment, you can start here .  This is gonna  be a long one, but if you’re have an interest in tots and odd vision i ... Read on »
Braska: School picture day by RK Patient Expert Posted in: Blog Posts in Down Syndrome A few weeks ago, it was picture day at school.  So we picked out a cute shirt that Grandma C got me in Montana and did my hair with my favorite big bow that my Aunt Karol ... Read on »
31 for 21: Well DUH mom! by RK Patient Expert Posted in: Blog Posts in Down Syndrome Last night we were cleaning up the living room, and the panda pillow pet-type thing that lives in the corner was returning to his home.  Braska came over to me as I was re ... Read on »
31 for 21: A special girl by RK Patient Expert Posted in: Blog Posts in Down Syndrome Last night I took Braska with me to WalMart. She loves to go shopping, and she’s always happy to sit in the cart and say hi to people or point out various items or letters ... Read on »
Me ‘n Jack: After school pictures by RK Patient Expert Posted in: Blog Posts in Down Syndrome Me and Jack aren’t in the same class this year, but our classrooms are just next door. Sometimes we get to see each other on the playground, and we always get excited abou ... Read on »
Braska: More pictures from my friend visits by RK Patient Expert Posted in: Blog Posts in Down Syndrome Remember back when I had a party weekend with lots of friends and lots of parties?  Well I have some more pictures to show you from then. Me and Jack stoo ... Read on »