Health knowledge made personal

rettmom Patient Expert

Angola, Indiana
I am the mother of a beautiful little girl who has Rett Syndrome and a sweet little boy who has Down Syndrome.
› Share page:

Posts

Sort by: Most recent | Name
NEW BLOG ADDRESS by rettmom Patient Expert Posted in: Blog Posts in Children's Health Hey Everybody...... I have combined the kiddos blogs - be sure to stop over to www.specialmommyx2.com and keep up with us there :) Love & Hugs, Kelly Read on »
Garden of Hope for Rett Syndrome by rettmom Patient Expert Posted in: Blog Posts in Children's Health Garden of Hope for Rett Syndrome from Girl Power 2 Cure on Vimeo . Hey Blog readers.....have you been wondering how YOU might be able to get involved with raising s ... Read on »
We are SOOOOO ready for SPRING ... by rettmom Patient Expert Posted in: Blog Posts in Children's Health We are SOOOOO ready for SPRING around here!We LOVE it when we can get outside for some fresh air....plus my walk to the mail box is SO much better when Brookie can join me! ... Read on »
KPC Family Magazine article by rettmom Patient Expert Posted in: Blog Posts in Children's Health I wanted to share our magazine cover photo and article with all of you! I seriously have two of the cutest kids ever, don't ya think?!?! Click HERE to read the article! Read on »
The Disney Princess 1/2 Marathon (running for Rett Syndrome!) by rettmom Patient Expert Posted in: Blog Posts in Children's Health I DID IT!!! I completed my very first 1/2 Marathon!!! I have to admit, I was not sure I could tackle this goal - but when Girl Power 2 Cure decided to have a team and raise ... Read on »
the famous purple card ;) by rettmom Patient Expert Posted in: Blog Posts in Children's Health GUESS WHO has one of these amazing purple cards?? Dr. OZ! A friend and fellow Rett mommy met him last week while he was taping a news segment and she gave give him one ... Read on »
Friends; my daughter has some of the best! by rettmom Patient Expert Posted in: Blog Posts in Children's Health Often as a special needs mom it is not the feeding tube, seizures, wheelchairs and such that I spend my time worrying about. It is the other "life" things like will my d ... Read on »
Surgery Date by rettmom Patient Expert Posted in: Blog Posts in Children's Health Many of you remember me posting THIS picture of Brooklyn's hip. Well - surgery has been scheduled. We will be over in Chicago on April 3rd for the day doing pre-op, regis ... Read on »
My reason to run by rettmom Patient Expert Posted in: Blog Posts in Children's Health I have lots and lots of pictures to share of my 1/2 marathon weekend. I am still recovering so that post will have to wait. I do however want to post this one now. Because ... Read on »
A birthday blessing by rettmom Patient Expert Posted in: Blog Posts in Children's Health Do you know how sometime you come across a kid that you know is going to make a difference in this word? You know....a young man that has so much heart, so much compassion ... Read on »
A little Girl Power by rettmom Patient Expert Posted in: Blog Posts in Children's Health Brookie and I were sporting our Girl Power shirts yesterday. I had the opportunity to hand out flyers at my church to let people know about Rett Syndrome and my upcoming 1 ... Read on »
Bdubs!!! by rettmom Patient Expert Posted in: Blog Posts in Children's Health JOIN US next Wednesday at Buffalo Wild Wings!! Click on the picture to print out the flyer to take with you on Wednesday! Read on »
Professor Adrian Bird by rettmom Patient Expert Posted in: Blog Posts in Children's Health Professor Adrian Bird needs no introduction to anyone who follows Rett Syndrome research. His list of accomplishments includes discovering the MeCP2 protein, developing mult ... Read on »
Brookie Update by rettmom Patient Expert Posted in: Blog Posts in Children's Health Quick little update on Brookie Bean. She had her sleep study last night. She was a rock star - I wish I would have thought to take a picture of her - I have NO IDEA how sh ... Read on »
I'm running the Disney Princess Half Marathon......now stop laughing and read this post ;) by rettmom Patient Expert Posted in: Blog Posts in Children's Health Kristin, me, and Emilie - getting ready for our snow angels :) "psyching" ourselves up! snow angels for our Rett Angel Brooklyn silliness - we gotta be crazy to be ... Read on »
Brooklyn's Hip by rettmom Patient Expert Posted in: Blog Posts in Children's Health We met with an Orthopedic Surgery team yesterday at Chicago's Shriner's Children's Hospital. First, I have to say I LOVE that place and everyone there - they were amazing ... Read on »
Field Trip! by rettmom Patient Expert Posted in: Blog Posts in Children's Health Brooklyn's class has been saving their pennies for TODAY! They took all of their change into the bank and then used that money to buy goodies to take to our local animal she ... Read on »
"living with" by rettmom Patient Expert Posted in: Blog Posts in Children's Health AdaptiveMall.com is an amazing site filled with all kinds of adaptive equipment which is life changing for girls like Brooklyn! They also have a section of their site call ... Read on »
2011 Christmas Play by rettmom Patient Expert Posted in: Blog Posts in Children's Health Brooklyn and mommy before the play - we were SO PUMPED that she ended up having a great afternoon as was able to go after our morning was filled with seizures - thank you al ... Read on »
Neurologist Update by rettmom Patient Expert Posted in: Blog Posts in Children's Health I am happy to say that I truly liked the new neurologist. (an answer to PRAYER!) He wants to review the 72 hour video eeg for himself (instead of just relying on her fo ... Read on »