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Rebecca .. Patient Expert

Helena, Montana
Three months after my first child was born, I was diagnosed with sarcoidosis, an autoimmune disease. Although sarcoidosis spontaneously remits in many cases, I developed a chronic form of the disease in multiple organs-- my brain, heart, lungs, liver, cranial nerves, lymph nodes, and bones.... Full Bio
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Facebook and Chronic Town

When you live in Chronic Town, Facebook can be a dangerous site to visit. I’m not talking about Facebook’s experiments on emotions, or its...

Vacation From Chronic Town

It’s been a while since I’ve written. I took a vacation from Chronic Town. No, I wasn’t cured of my sarcoidosis, but for a few weeks I was...

Tired Beyond Words

I am so tired. I’ve tried sitting down a few times to write a new post, or at least to respond to the insightful comments I received after my...

The Hunger Games

I’ve lost 76 pounds. Only 24 more pounds to go, and I’ll be back to my weight when I was first diagnosed with sarcoidosis and started on high...


Yesterday I felt as though I had wasps in my brain. I had at least dozen tasks on my mental to-do list, buzzing around and crashing into each...

Latest Activity

Rebecca .. posted Tummy Talk Nov 19 2009
Rebecca .. posted Being on the Other Side Nov 19 2009
Rebecca .. posted One Not-So-Small Step Nov 19 2009
Rebecca .. posted News Nov 19 2009
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