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Rebecca .. Patient Expert

Helena, Montana
Three months after my first child was born, I was diagnosed with sarcoidosis, an autoimmune disease. Although sarcoidosis spontaneously remits in many cases, I developed a chronic form of the disease in multiple organs-- my brain, heart, lungs, liver, cranial nerves, lymph nodes, and bones.... Full Bio
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Facebook and Chronic Town

When you live in Chronic Town, Facebook can be a dangerous site to visit. I’m not talking about Facebook’s experiments on emotions, or its...

Vacation From Chronic Town

It’s been a while since I’ve written. I took a vacation from Chronic Town. No, I wasn’t cured of my sarcoidosis, but for a few weeks I was...

Tired Beyond Words

I am so tired. I’ve tried sitting down a few times to write a new post, or at least to respond to the insightful comments I received after my...

The Hunger Games

I’ve lost 76 pounds. Only 24 more pounds to go, and I’ll be back to my weight when I was first diagnosed with sarcoidosis and started on high...


Yesterday I felt as though I had wasps in my brain. I had at least dozen tasks on my mental to-do list, buzzing around and crashing into each...

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