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Rayne Mazur Patient Expert

Bellevue, Nebraska
My name is Rayne Mazur. I have had Crohn's disease since adolescence.  Along with the usual digestive problems, fistulas, skin rashes, aches and pains I have also experienced neurological damage, serious vitamin and iron deficiencies and have recently been diagnosed with a Hurthle cell mass... Full Bio
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Where I've Been by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health Nowhere actually. I've been here.  In the house.  Watching everything crumble around me.  I've tried writing, I've tried reaching out, I've tried to do so much but I jus ... Read on »
Zelda the Unhappy Zombie by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health My first attempt at a somewhat sculpted crocheted doll.  The instructions were a bit unclear.  One memorable line said, "Cut hair 'T' inches long." How long is 'T'?  I was ... Read on »
Grim Reaper of Rats by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health This morning I found a message from Becca in my email.  It said, "Make this for MEEEEEE!!!". I might be mistaken on the number of E's.  The message also included a picture o ... Read on »
It's a Mystery by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health I love a good mystery story.  I don't care if it's set in 14th century London, modern day Chicago or futuristic Nemo City on Mars.  What matters to me is the story.  Valuabl ... Read on »
Don't Know My Own Mind by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health Click to see full size Sometimes I feel adrift and have absolutely no direction.  Just kinda hanging there by strings waiting for someone to come up with a ... Read on »
The Princess Pages by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health Click on image to see full size. When I was a little girl I really wanted to be a princess.  I wanted my own castle, my own prince charming, a few minions, ... Read on »
Apparently the Only Way I Can Do Things is The Hard Way by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health Some Days.... (click to see full-size) I have restarted my Paisley Rain website so many times I've lost count.  I have designed and redesigned, added c ... Read on »
A Little More Raynification by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health I had wanted to try some paper mache.  I went to the store to get the paste mix and not having done paper mache before I grabbed something called Fast Mache.  Upon arriving ... Read on »
Cow Evolution and a Snow Discussion by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health It's snowing again.  People might think that since I currently live in Nebraska that isn't such a big deal.  There are people out there who believe that Nebraska is actually ... Read on »
Continuing With the 'Beautifying' by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health I have been adding little touches here and there, trying to make things a bit warmer, a bit more human and a bit prettier.  Last week I decided to work on the archway leadin ... Read on »
Tiny Little Circles by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health On Monday I had to go through some more medical tests.  Painful tests.  I had been scheduled for them a while ago but they canceled and rescheduled and then I had to cancel ... Read on »
Squirrel Ingenuity by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health If the ground is too hard to dig...  Then, hide your nuts in the tree! Read on »
A Simple Thing That Can Be Very Scary by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health Sometimes it is hard to stay connected.  I think this is true whether you are autistic or not.  Sometimes the world just becomes too heavy and scary and I have to step away ... Read on »
Completed Corner by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health About a week ago I came to the realization that the corner with my super-comfy, wonderful chair that I spend a whole lot of time in was rather dismal.   1. Jar ... Read on »
Augustus and an Important Health Message by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health For over a month now I've been getting sicker and weaker and weaker and sicker and having all sorts of problems.  I knew inflammation from the Crohn's had gone to my brain s ... Read on »
Unconscious Mutterings by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health This weeks Unconscious Mutterings #400 Hop on over to LunaNina.com and join in the fun. Return :: Escape Alarms :: Shattered mornings State :: of being, of ... Read on »
My Little Muse by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health Can you see her? Hint: Look for the ears. Here she is! This is little Heart, one of my fost ... Read on »
Rough Seas Ahead by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health Done freehand with pencil and sepia micron while sitting in my chair watching tons of British mystery shows on Netflix. Have to spend the day at the hospi ... Read on »
Found My Passion by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health My very first three little books. I've been in art school for over a year now.  This is my third semester at AAU, before that I was at AI.   I've known ... Read on »
To Hell With the Horse, I'm Just Gonna Walk From Now On by Rayne Mazur Patient Expert Posted in: Blog Posts in Digestive Health As many of you know, I have Crohn's.  There are good days, and there are bad days.  Lately, there have been mostly bad days.  I found out recently that Crohn's can do so ... Read on »