Health knowledge made personal

Raising Joey Patient Expert

Hartford, Connecticut
  I am a stay at home mom and my blog is dedicated to my 2 1/2 year old son, Joey who is blessed with a little extra chromosome called Trisomy 21 or Down syndrome and also to our little baby girl, Leah Rose, who is one year old. One of the main reasons I started... Full Bio
› Share page:

Posts

Sort by: Most recent | Name
More tummy woes by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome So we’ve had our hands full with still trying to unpack and getting settled in especially with Joey. The poor kiddo just does not adjust to change very well at all. We’re ... Read on »
Hello strangers! by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome Once again I’ve been a slacker when it comes to blogging, I’m sorry to whatever readers I have left on here! I do have a good reason for my lack of posts though… we moved ... Read on »
The last time I said it… by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome Last night while laying in bed, I thought back to all the times I used to use the word ret@rd when I was younger before I had Joey. I remember back in grade schoo ... Read on »
The kiddos by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome Just thought I would share a few new pictures of the kids that I recently took Read on »
CDSC’s Legislative Video by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome The Connecticut Down Syndrome Congress recently produced three new videos, below is the legislative one. Read on »
Thank you Johnny Knoxville!! by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome Check out this video done by Johnny Knoxville and self advocate eddie Barbanell. Both wonderful advocated for our families and spreading the word about how much it can hur ... Read on »
Our latest “adventure” by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome Sorry (once again) for the lack of posts the past month. I had all intentions of writing at least once a week but almost 4 weeks ago, I could tell Joey was coming down wit ... Read on »
Thank you John c. McGinley! by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome An article by actor John D. McGinley & fellow parent of a child who has Down syndrome. Please take a minute to read to understand why I get so upset when I hear/read one o ... Read on »
Sensory Processing by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome I’m so behind on posting updates, especially about Joey! Last week, I went to a PPT for Joey regarding the Sensory Procesing evaluation that his school sent in a specialis ... Read on »
Xmas Pics 2009 by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome Just a few weeks late but here are our pictures from our trip to Ohio for Christmas. Enjoy! Make an on-line slide show at www.OneTrueMedia.com Read on »
Poor Jo-Joe by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome Yesterday, I took Joey to an appointment with his audiologist to have the molds made for his new hearing aid. Thankfully, the audiologist’s office is in the same town that ... Read on »
Go Maddy!! by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome A fellow blogger, Barbara Curtis, who also has a son with Down syndrome, actually she has FOUR sons who have that beautiful extra chromosome, well, her daughter, Maddy was ... Read on »
The keys to life…. by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome I just love articles written by Beverly Beckham, especially her articles about her grandaughter, Lucy who has Down syndrome. This article isn’t about Lucy, but I really en ... Read on »
Merry Christmas!!! by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome To all of our readers, we wish you all a very Merry Christmas and a Happy New Year! Love, Jessica, Patrick, Joey, Leah and Aiden Read on »
Let There Be Peace on Earth by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome I posted this video last year and thought it would be good to post it again. Brings me to tears when I watch it, absolutely beautiful and moving!! Read on »
Long overdue post! by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome I want to applogize to all of my readers, I’m way overdue for an update. My mother keeps reminding me to post something on here but I’ve been so busy! Let’s see, since I las ... Read on »
CJ’s Traveling Afghan Project article! by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome CJ was one of the first bloggers who found my blog back when Joey was born! I credit CJ for getting me addicted to blogging!!! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ A ... Read on »
31 for 21, October 21st by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome Last night at Joey’s parent-teacher conference, Joey’s teacher gave me a sheet from Joey (with her help) with an update of everything he’s doing at school. —————— ... Read on »
31 for 21, October 20st by Raising Joey Patient Expert Posted in: Blog Posts in Down Syndrome Joey made the list of kiddos who have Down syndrome on parenting.com! Check out my little buddy!!! A Special Joy, Joey’s picture! Read on »