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Rachel M. Patient Expert

~ Japanese Australian living in South East Queensland, Australia. ~ Living with severe/moderate ME/CFS. Wheelchair user.  ~ Human Mum to a Fox Terrier.  
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Preparing for the Awareness Day by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome For those who don’t know this yet, 12 May is International ME/CFS Awareness Day. I’ve witnessed great deal of awareness campaigns on internet and it is getting ... Read on »
Post Migraine Malaise by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I’m in a little twilight zone at the moment. I had a severe migraine attack last week. Since I had been unwell and “unwellness” was only getting worse like snow ... Read on »
Rage by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome The surgery’s waiting room was filled with patients. I settled in a chair and listened to music with earphone. Reading is challenging at the moment, so I didn’t ... Read on »
Single-Woman Syndrome by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome This year, I had rather bad “Valentine’s Day depression”. It is one of the symptoms when you have “Single-Woman Syndrome”, obviously not medical condition. I also g ... Read on »
Emotional Orphans by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I’m aware that I get highly sensitive to certain situations. However, it is not just my naiveness that doesn’t make sense in everyday living. === My next do ... Read on »
Make-Up by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I started wearing make-up. I haven’t worn it for more than 5 years, and even years before that, I only wore it a couple of time a year when I was still desperat ... Read on »
Thoughts on WikiLeaks by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Ever since I heard about WikiLeaks, something is bothering deep inside of me. Since I’m not following WikiLeaks or Julian Assange news seriously, things I talk here ... Read on »
Contingency Plan by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome One of the reasons why my area wasn’t affected by the flood is Wyaralong Dam . I didn’t know about this dam until Dr TL told me. Construction of this little dam ... Read on »
Counting Calories by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome My weight goes up and down. While my ME/CFS was severer, gaining weight wasn’t much of problem because I often lost appetite. Recently, my weight started hoveri ... Read on »
Roller Coaster Week by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I had a crash last Sunday. I couldn’t really point out the finger what actually caused it. My assumption was that it was an accumulation of slight extra everyday ex ... Read on »
Lung Function by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome My lung function continue to improve. I’m performing extraordinary PFM these days. Dr TL speculates that it could be a record for my condition. And we both agreed t ... Read on »
Busy Mind: Comfort Zone by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome When Dr TL and I were analysing my conscious and unconscious mind, we used the words, “comfort zone”, “vulnerability” and “reluctance”. I wasn’t sure if we were s ... Read on »
Busy Mind: Lobbying & ME/CFS Research by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Coincident with the change happening to my life, I had a very interesting discussion with Dr TL. He probably expected me to pursue “lobbying for ME/CFS” in 2011 ... Read on »
Busy Mind: Change by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome For quite some time, I’ve been feeling that I’m in the middle of gradual and inevitable change in my life. It feels like a flow in the universe. Nothing stays the s ... Read on »
Thoughts on Christmas Day by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome We had non-stop rain over night. It must be hard for wild birds to find food. Today, I got hundreds of them feeding frenzy. And more and more come back and wait for ... Read on »
The Second Vivid Dream by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome The second vivid dream has nothing to do with the first one. I happened to met this woman who runs a business. I know this person in Australia, and I don’t real ... Read on »
The First Vivid Dream by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I had vivid dreams that are still clearly stuck in my memory. The first vivid dream: I was visiting magnificent building which could be a school, a museum, ... Read on »
Music Therapy by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome A couple of months ago, Dr TL asked about my progress in getting a digital piano. When I was a child, I played the piano and it gave me great deal of comforts a ... Read on »
Music of Life by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Sudden silence stops the world, breeze of sound drifts as birds singing Music of life has started again. Read on »
Melatonin Update by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome The prescription melatonin showed signs that it was helping me to fall in sleep and waking up in the morning. It was amazing to be able to sleep without waiting for ... Read on »