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Rachel M. Patient Expert

~ Japanese Australian living in South East Queensland, Australia. ~ Living with severe/moderate ME/CFS. Wheelchair user.  ~ Human Mum to a Fox Terrier.  
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Lovely Surprise by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I’m having an intentional break from medical appointments since my GP suddenly changed. Today, one of lovely receptionists brought lovely present fo ... Read on »
Bond Uni Research – The Last Blood Collection by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Despite it’s summer in Australia, the weather has been raining, overcast and cool. It’s actually cold for me. But, when I need to go out, it is a blessing as summer ... Read on »
CPD Giving Medical Information about ME/CFS for Australian GPs by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Today, I learnt what process is involved to give a CPD giving seminars for Medical Practitioners. Therefor, such seminar about ME/CFS won’t happen for a very long t ... Read on »
Poem by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Nothing Gold Can Stay Robert Frost (1923) ~ * ~ Nature’s first green is gold Her hardest hue to hold. Her early leaf’s a flower; But only so a ... Read on »
Thoughts by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome This is just my thinking therapy. === I decided to have an intentional break from medical appointments. I need to cool my head before working on the new car ... Read on »
No Hope (yet…) by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I had the first appointment with Dr AV today since the rushed change over of treating doctor. He didn’t have the talk with Dr TL as he promised. Instead, he wan ... Read on »
Nightmare by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I’m still in the shock. I started to cry a little, but it wasn’t the cry of processing what happened. I know the real cry will come someday when the grieving proces ... Read on »
Shock by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I lost the caring & knowledgeable GP… I’m still in shock. I’m very confused. And, I’m in shock. I don’t think I absorbed the news yet. When I start taking it, i ... Read on »
Value of Life by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome As Australia Zoo named the 15th of November as Steve Irwin Day and engaged in media promotions, there were talks about Steve Irwin ‘s life and death. His death ... Read on »
A Little Plan by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome When things are going tough, seeing someone genuinely cares about me helps a lot. Once again, my assumption that there is nothing for me was not quite right. I ... Read on »
In the Darkness by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I crashed in the waiting room again. It was a bad one. Frustration and upset made tears welled in my eyes. While lying in the dark room, my body twitched and shiver ... Read on »
Feeling Slightly Better by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I’m feeling slightly better… I’m saying it with caution because I don’t want to jinx it. *keeping fingers crossed* I’m still in the bad payback or PEN-E. Al ... Read on »
Cried by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Loneliness is winning. Had uncontrollable cry, which didn’t make me feel any better… Nobody can help me. It has to be me who change the situation and do ... Read on »
Nutritional Supplements for ME by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I allowed myself to try nutritional supplements this year. Since money is very tight, I’m not sure if I could afford them continuously. At the end of this year, I h ... Read on »
The First Day of Spring by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome It’s nice to feel spring in the air. Despite of asthma flare due to pollen and dust in the messy spring wind, I like it when the air is getting warmer. On t ... Read on »
Magic by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome When I’m not well, getting prescription refilled becomes huge task that occupies in my mind all the time. When I’m not well, I cannot take wheelchair out from m ... Read on »
Layperson’s Assumption by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Layperson’s assumption should be used with caution. That is a lesson I’m learning at the moment. The biopsy result was good and I don’t need to worry about the ... Read on »
Push It for ME Research – 11 Sep 2011 by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome My friend Rachel G aka RachelCreative has organised Push It for ME Research . (Also her blog post at ChronicallyME ) Push It is a 10k fundraising wheelchair p ... Read on »
Skin Biopsy by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Recently, Dr TL noticed that the brown mark on my face is getting darker. It used to be one, but recently spread into two. So, the shape is changing as well. I rega ... Read on »
Research Blood Collection by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome On Wednesday morning, I went to the Logan Hospital for Bond Uni ME/CFS Research blood collection. Dr TL authorised Ambulance Transport for me about a month ago. ... Read on »