Health knowledge made personal

Rachel M. Patient Expert

~ Japanese Australian living in South East Queensland, Australia. ~ Living with severe/moderate ME/CFS. Wheelchair user.  ~ Human Mum to a Fox Terrier.  
› Share page:

Posts

Sort by: Most recent | Name
Simmaron Neuroimmune Research Foundation: The Urgent Donation Campaign by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome This post is about my support for Simmaron Nuroimmune Research Foundation’s urgent donation campaign called “ Every $1 you invest in this project will yield $5 of C ... Read on »
Specialist Appointment: PENE by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Myalgic encephalomyelitis: International Consensus Criteria  defines PENE as; A. Postexertional neuroimmune exhaustion (PENE pen’-e): Compulsory ... Read on »
Specialist Appointment: Going Home by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I paid the fee. Since I had been told how much the initial appointment would be, I didn’t get a heart attack. Comparing to the expensive fees I paid in the past to ... Read on »
Specialist Appointment: The Meeting by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Question started immediately and Specialist was ticking off his computer screens. He didn’t ask for the questionnaire. I realised my speech was struggle and was ... Read on »
Specialist Appointment: In the Waiting Room by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome It was a great relief that I was actually in the Specialist Clinic. At the same time, degree of exhaustion started registering to my brain. I would have collapsed o ... Read on »
Specialist Appointment: Getting There by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I had a very positive Specialist appointment at end of May. After that, my whole body system has been in chaotic struggle due to post appointment PENE. I’m still in ... Read on »
One Step Forward by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome They say, stress is an enemy for immune system and ME/CFS. In fact, stress is enemy for any illness. I have been on bad flare with higher than usual low grade f ... Read on »
Breaking Down… by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome When I had the spur of moment, I made an appointment for a haircut. My hairdresser was kind, but she became cold in the last few months. So, I felt I better sta ... Read on »
Good Conversation by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I have been too unwell to participate in online social places where mass communication is happening, such as Facebook Group. These days, people don’t use email anym ... Read on »
Bad Flare Up by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome If you are wondering, I’ve been in a really bad flare up. I’m afraid the experimental home Orthostatic Intolerance (OI) test  triggered this. (So, don’t try it at h ... Read on »
Orthostatic Intolerance (OI) by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome My brother’s diagnosis of Dysautonomia got me thinking. I have obvious Dysautonomia symptoms. I strongly feel Dysautonomia is a large part of my disability. But ... Read on »
Ironic by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome My long absent brother contacted me. His voice was depressed and I could tell he was forcing himself not to cry. It gave me adrenaline surge. What is going on? ... Read on »
Depressed by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I had my last medical appointment until I need prescriptions. I started struggling in the waiting room. My body twitched, which is another sign that I’m not doi ... Read on »
Evidence That ME/CFS Is Not A Somatisation Disorder by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome This is not a new article. It was, in fact, written/published on 26 April 2009. I know when a doctor’s mind is closed, no evidence can change their mind. ME/CFS ... Read on »
Adjusting Expectations by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome This just my thinking therapy… And, I’m pretty much ranting. === I had the second meeting with the new GP. I was hoping that we could have some understandin ... Read on »
The Poker Machine Reform is Necessary for Healthier Australia by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Currently in Australia, there is a speculation going on about PM Julia Gillard might dishonour the Poker Machine Reform deal with Tasmanian Independent MP Andrew Wi ... Read on »
I’m Cursed… by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I finally gathered courage and made an appointment to see Dr AV. Today, I was nervous, but managed to show up at 4:40 pm appointment in time. The new receptionist w ... Read on »
Not All Media Publication is Good… by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome There is a news article titled ” Virus theory for chronic fatigue dismissed ” at Australian ABC News. Comparing to the past degrading or insulting articles, it seem ... Read on »
2012 by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome My neighbourhood suddenly became dead quiet around midnight. It was like everyone left and I’m the last one in the ghost town, not even a barking dog. I had a s ... Read on »
Lovely Surprise by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I’m having an intentional break from medical appointments since my GP suddenly changed. Today, one of lovely receptionists brought lovely present fo ... Read on »