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Rachel M. Patient Expert

~ Japanese Australian living in South East Queensland, Australia. ~ Living with severe/moderate ME/CFS. Wheelchair user.  ~ Human Mum to a Fox Terrier.  
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“Life” is Possible Again by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome The distressful situation in last year made me feel I couldn’t keep going anymore. Now that I have a knowledgeable treating GP & ME/CFS specialist and Anglicare ... Read on »
2012 by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome My neighbourhood suddenly became dead quiet around midnight. It was like everyone left and I’m the last one in the ghost town, not even a barking dog. I had a s ... Read on »
9 am with David & Kim: Interview Greg Page on OI by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Although I cannot write much at the moment, I just wanted to share a segment of “9am with David & Kim” at (Australian) Channel 10. I will respond to kind comments you le ... Read on »
9 am with David & Kim: Interview Greg Page on OI by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Although I cannot write much at the moment, I just wanted to share a segment of “9am with David & Kim” at (Australian) Channel 10. I will respond to kind comments you le ... Read on »
A Day at Hospital Transit Centre by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome The Neurologist appointment was at 12:00 pm on Wednesday. I was once again glad that my GP had organised the Ambulance Transport for me. For abou ... Read on »
A Gift from Universe by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I am a very lucky person. This may sound odd to you…, because my life is in such a mess, my life has been unfairly tough on me, my life is still a struggle, my life ... Read on »
A Gift of Friendship by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I have received a heart warming gift from an artist friend Nina. It is a painting of The Reluctant Goddess. If you click on the link, you will know the story behind t ... Read on »
A Little Girl at the Waiting Room by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome A little girl was very curious about me and my wheelchair. She asked questions that any little child would ask. Her very strict mother ordered not to bother me or the li ... Read on »
A Little Plan by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome When things are going tough, seeing someone genuinely cares about me helps a lot. Once again, my assumption that there is nothing for me was not quite right. I ... Read on »
A001: Parents by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome In Japanese culture, or in any other culture, there is a solid law that nobody should breach. Honour and respect your parents. People causally ask each other ab ... Read on »
A002: Father by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome As far as I can remember, my grandfather held a title of a mayor of a tiny village. I didn’t see him working as a mayor, though. He had an emotionless face with frown. H ... Read on »
A003: Mother by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome My maternal grandparents lived in poverty. Grandfather had some kind of health problem and often in bed in their living/bed room. Occasionally, he got up and went to ... Read on »
A004: Brother by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Under the different circumstances, my brother and I could have been strongly bonded siblings. He is 5 years younger than me. I still remember the day when he came bac ... Read on »
A005: Sister by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I do not have a fond memory about my sister. She was my nightmare and caused lots of stress and pain through my childhood and adulthood. She is two years youn ... Read on »
About a Person I’m Supposed to Call Father by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Maybe because his wife lived in Japan and loves everything Japanese, or maybe, he is just trying to find out my medical history, my doctor asks about my childhood. He wa ... Read on »
Accepting the Reality… by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Accepting the reality… Although, it feels more like surrendering to the reality. The reality of living with severe ME… I honestly thought it is not that bad… I ... Read on »
Accident by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome   Recently, my friendZariihad her first appointment with Dr TL, and she was busy getting all the tests done while attending other demanding personal errands. The way ... Read on »
Accident by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome   Recently, my friend Zarii had her first appointment with Dr TL, and she was busy getting all the tests done while attending other demanding personal errands. The wa ... Read on »
Accidental Lobbyist by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Dr TL asked if I have received a letter from local MP or Health Minister regarding to the email I sent. Apart from the delayed acknowledgement letter from the loc ... Read on »
Adjusting Expectations by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome This just my thinking therapy… And, I’m pretty much ranting. === I had the second meeting with the new GP. I was hoping that we could have some understandin ... Read on »