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Rachel M. Patient Expert

~ Japanese Australian living in South East Queensland, Australia. ~ Living with severe ME/CFS.... Full Bio
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A Little Girl at the Waiting Room by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome A little girl was very curious about me and my wheelchair. She asked questions that any little child would ask. Her very strict mother ordered not to bother me or the little g ... Read on »
Stressful Dream & Sweet Dream by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I had these dreams probably Monday or Tuesday while I was suffering the bad case of migraine.The first one was stressful. I was going to the medical appointment, and two women ... Read on »
Prejudice against Tertiary Educated People by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome During the last medical appointment, we had an interesting discussion about prejudice against tertiary educated people.Before I talk about it, I wanted to make it clear that I ... Read on »
Spiriva by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Dr TL proudly told me he finally got the sample Spiriva for me.Since the request for the sample didn’t get answered, he put on Samurai armour and swiftly marched into ev ... Read on »
Shocking Migraine by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome On Sunday afternoon, I suddenly got shocking migraine with nausea.I had to lie down immediately, then I was paralysed with heavy fatigue, weakness and severe pain & na ... Read on »
K001: Tue, 14/11/06 by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome On Tuesday, the 14 th of November 2006, I moved into women’s shelter.Last two years (or three years), I tried to write something about it. Writing is my therapy. It help ... Read on »
Not Broken by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Dr TL asked me if there are some new ME/CFS news (that he needs to know). At the moment, I notice more political and activism news than medical.As far as I noticed, there is o ... Read on »
Simple Dream by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome My friends Rachel and Ashy have recently posted thoughts provoking entries. Anybody who is living with ME/CFS can relate to their thoughts/feelings. They expressed their feeli ... Read on »
River by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Life goes on like river flowsThings are changing at nobody’s faultWhen you need me again,you will find meBecause our souls have connected once beforeMy dear friend,Your ... Read on »
Ear Infection by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Clinic was busy, which doesn’t bother me at all. I was the second from the last. Dr TL came to my wheelchair, he greeted me with “Konnichiwa” with confidence ... Read on »
COPD by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome I had a very trying day on Saturday. I felt my heart and lungs were under strain. My lungs felt as if they were made of heavy and thick concrete. My heart had to work extra ha ... Read on »
Guardian Angel by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome As I mentioned in the previous rant post, I had encountered a racist in the waiting room. Her subtle yet very clear attitude made me feel I was filthy and inappropriate. Usual ... Read on »
Racist by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome They don’t tell you who they are. But you know when you meet one. My next door neighbour is one, too. There are many in my suburb.I had one at the waiting room today.I ... Read on »
Counselling by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Dr TL commented I looked well, but noticed I moved very slow. I informed him that I had really really bad flare up. My balance was bad when I stepped up on the scale. He exten ... Read on »
Life Stories at Waiting Room by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome A young man walked in and asked if he could see a doctor. Receptionist refused first as it was already after the closing time. Then he mentioned something. She asked Dr TL and ... Read on »
Strange Dream by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome During the really bad flare up, I had another strange dream that stayed in my mind vividly.It started in a city apartment. (Somehow, it reminded me of old apartment in France. ... Read on »
Cognitive Problem & Depression by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Monday meeting was very different. The appointment time was earlier than usual. There was different receptionist. And Dr TL was very professional.While I was talking to him, I ... Read on »
Thoughts on Australian Primary Healthcare by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome In Australia, Health Minister is pushing nurses to take up doctors’ role without medical degree and training. She is trying to implement healthcare system without doctor ... Read on »
Chat about XMRV by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome During the medical appointment, we briefly chat about XMRV.After the Tsunami of emotion of XMRV discovery, there is Tsunami of questions all over the world now. The New York T ... Read on »
Brain Crash by Rachel M. Patient Expert Posted in: Blog Posts in Chronic Fatigue Syndrome Last Tuesday, I became Zombie again.I was still struggling on Wednesday, but I didn’t want to miss the medical appointment. When I’m struggling this badly, lonelin ... Read on »