Rachel M.'s Posts - Wellsphere

Rant by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome Yes, this is another rant. It needs to get out from my system. It is really hard to cope when I have nobody to talk to in person. So, you probably don’t want to ... Read on »

New ME/CFS Study – Volunteers Needed by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome National Centre for Neuroimmunology and Emerging Diseases (NCNED) on the Gold Coast, Queensland, Australia is looking for participants for the next ME/CFS biomedica ... Read on »

“Life” is Possible Again by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome The distressful situation in last year made me feel I couldn’t keep going anymore. Now that I have a knowledgeable treating GP & ME/CFS specialist and Anglicare ... Read on »

Appointment While Collapsed & POTS Diagnosis by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome Note: This is my personal account on the occasion. It is possible that my understandings or impression were wrong. Please don’t make judgement based on this post. ... Read on »

Transport Stress by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome On the medical appointment day, I was a little shocked to see the driver arrived with a van/mini bus, not a passenger car. Since the first two transport support ... Read on »

Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome I personally believe that a patient should try to be an expert of his/her own illness. Having said that, I found it is a real challenge with ME/CFS. Unlike ... Read on »

Tilt Table Test by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome Note: This is my personal account on the occasion. It is possible that my understandings or impression were wrong. Please don’t make judgement based on this post. ... Read on »

Cardiologist Appointment by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome Note: This is my personal account on the occasion. It is possible that my understandings or impression were wrong. Please don’t make judgement based on this post. ... Read on »

Transport Support by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome Since the last medical appointment, I’m receiving outing/errands assistant from Anglicare. It has reduced my stress level significantly. When I’m not well enough to ... Read on »

Alison Hunter Memorial Foundation (AHMF) Flow Cytometer Appeal by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome My local fellow MEite, Sarah shared a very interesting information that Dr Don Staines’ medical hypothesis of CFS as Vasoactive Neuropeptides Autoimmunity could be ... Read on »

Follow Up Appointment & DHEA by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome I received a phone call from a friendly nurse from ME Specialist’s clinic that Dr GD wants to discuss about the blood test result with me. She understood my difficu ... Read on »

Transport Misery by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome It doesn’t matter how hard I try and how careful I am, there are people who treat me I’m a pest. For the follow up Specialist meeting, I had to have another tra ... Read on »

Simmaron Neuroimmune Research Foundation: The Urgent Donation Campaign by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome This post is about my support for Simmaron Nuroimmune Research Foundation’s urgent donation campaign called “ Every $1 you invest in this project will yield $5 of C ... Read on »

Specialist Appointment: PENE by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome Myalgic encephalomyelitis: International Consensus Criteria defines PENE as; A. Postexertional neuroimmune exhaustion (PENE pen’-e): Compulsory ... Read on »

Specialist Appointment: Going Home by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome I paid the fee. Since I had been told how much the initial appointment would be, I didn’t get a heart attack. Comparing to the expensive fees I paid in the past to ... Read on »

Specialist Appointment: The Meeting by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome Question started immediately and Specialist was ticking off his computer screens. He didn’t ask for the questionnaire. I realised my speech was struggle and was ... Read on »

Specialist Appointment: In the Waiting Room by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome It was a great relief that I was actually in the Specialist Clinic. At the same time, degree of exhaustion started registering to my brain. I would have collapsed o ... Read on »

Specialist Appointment: Getting There by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome I had a very positive Specialist appointment at end of May. After that, my whole body system has been in chaotic struggle due to post appointment PENE. I’m still in ... Read on »

One Step Forward by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome They say, stress is an enemy for immune system and ME/CFS. In fact, stress is enemy for any illness. I have been on bad flare with higher than usual low grade f ... Read on »

Breaking Down… by Rachel M. Patient Expert

Posted in: Blog Posts in Chronic Fatigue Syndrome When I had the spur of moment, I made an appointment for a haircut. My hairdresser was kind, but she became cold in the last few months. So, I felt I better sta ... Read on »

Rachel M.

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