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Rachel M.
Top HealthBlogger
for the
Chronic Fatigue Syndrome Community
Blog:
http://bluecoffeemug.wordpress.com/
~ Japanese Australian living in South East Queensland, Australia. ~ Living with severe/moderate ME/CFS. Wheelchair user. ~ Human Mum to a Fox Terrier.
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Rant
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Rachel M.
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Chronic Fatigue Syndrome
Yes, this is another rant. It needs to get out from my system. It is really hard to cope when I have nobody to talk to in person. So, you probably don’t want to ...
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New ME/CFS Study – Volunteers Needed
by
Rachel M.
Posted in:
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Chronic Fatigue Syndrome
National Centre for Neuroimmunology and Emerging Diseases (NCNED) on the Gold Coast, Queensland, Australia is looking for participants for the next ME/CFS biomedica ...
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“Life” is Possible Again
by
Rachel M.
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The distressful situation in last year made me feel I couldn’t keep going anymore. Now that I have a knowledgeable treating GP & ME/CFS specialist and Anglicare ...
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Appointment While Collapsed & POTS Diagnosis
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Rachel M.
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Note: This is my personal account on the occasion. It is possible that my understandings or impression were wrong. Please don’t make judgement based on this post. ...
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Transport Stress
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Rachel M.
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On the medical appointment day, I was a little shocked to see the driver arrived with a van/mini bus, not a passenger car. Since the first two transport support ...
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Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition
by
Rachel M.
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Chronic Fatigue Syndrome
I personally believe that a patient should try to be an expert of his/her own illness. Having said that, I found it is a real challenge with ME/CFS. Unlike ...
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Tilt Table Test
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Rachel M.
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Note: This is my personal account on the occasion. It is possible that my understandings or impression were wrong. Please don’t make judgement based on this post. ...
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Cardiologist Appointment
by
Rachel M.
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Chronic Fatigue Syndrome
Note: This is my personal account on the occasion. It is possible that my understandings or impression were wrong. Please don’t make judgement based on this post. ...
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Transport Support
by
Rachel M.
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Chronic Fatigue Syndrome
Since the last medical appointment, I’m receiving outing/errands assistant from Anglicare. It has reduced my stress level significantly. When I’m not well enough to ...
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Alison Hunter Memorial Foundation (AHMF) Flow Cytometer Appeal
by
Rachel M.
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Chronic Fatigue Syndrome
My local fellow MEite, Sarah shared a very interesting information that Dr Don Staines’ medical hypothesis of CFS as Vasoactive Neuropeptides Autoimmunity could be ...
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Follow Up Appointment & DHEA
by
Rachel M.
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I received a phone call from a friendly nurse from ME Specialist’s clinic that Dr GD wants to discuss about the blood test result with me. She understood my difficu ...
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Transport Misery
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Rachel M.
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It doesn’t matter how hard I try and how careful I am, there are people who treat me I’m a pest. For the follow up Specialist meeting, I had to have another tra ...
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Simmaron Neuroimmune Research Foundation: The Urgent Donation Campaign
by
Rachel M.
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This post is about my support for Simmaron Nuroimmune Research Foundation’s urgent donation campaign called “ Every $1 you invest in this project will yield $5 of C ...
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Specialist Appointment: PENE
by
Rachel M.
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Myalgic encephalomyelitis: International Consensus Criteria defines PENE as; A. Postexertional neuroimmune exhaustion (PENE pen’-e): Compulsory ...
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Specialist Appointment: Going Home
by
Rachel M.
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I paid the fee. Since I had been told how much the initial appointment would be, I didn’t get a heart attack. Comparing to the expensive fees I paid in the past to ...
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Specialist Appointment: The Meeting
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Rachel M.
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Question started immediately and Specialist was ticking off his computer screens. He didn’t ask for the questionnaire. I realised my speech was struggle and was ...
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Specialist Appointment: In the Waiting Room
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Rachel M.
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It was a great relief that I was actually in the Specialist Clinic. At the same time, degree of exhaustion started registering to my brain. I would have collapsed o ...
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Specialist Appointment: Getting There
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Rachel M.
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I had a very positive Specialist appointment at end of May. After that, my whole body system has been in chaotic struggle due to post appointment PENE. I’m still in ...
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One Step Forward
by
Rachel M.
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Chronic Fatigue Syndrome
They say, stress is an enemy for immune system and ME/CFS. In fact, stress is enemy for any illness. I have been on bad flare with higher than usual low grade f ...
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Breaking Down…
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Rachel M.
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When I had the spur of moment, I made an appointment for a haircut. My hairdresser was kind, but she became cold in the last few months. So, I felt I better sta ...
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