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Primary Diagnosis: Cerebral Palsy

Posted Nov 09 2009 10:02pm
On Friday I received a 3-page report from the Children's Clinic about Liana's PT assessment. It was one of those day when I didn't get around to actually looking at my mail until 9pm - but when I did, I saw that on top it said "Primary Diagnosis: Cerebral Palsy." Ahhh, excuse me?! Under it, it listed several symptoms of CP, none of which Liana has, mind you. However, the rest of the report just talked about her PT session in regards to her torticollis and plagiocephaly (her misshapen head and weak neck muscles) ... which is she had been referred there for. After reading the whole 3 page letter and it describing Liana as a healthy, delightful young infant, I figured it must be a mistake - albeit a very unfortunate one. Cerebral Palsy is one of the few major risk factors that remain for the girls due to their prematurity, and therefore will remain a distant possibility until they are quite a bit older. Not to mention the fact that it is a very serious disease. So that's not an error you want to make, I'd say!
Needless to say, come Monday morning I am on the phone with the Children's Clinic asap to get this straightened out. I learn that the Physical Therapist who dictated the letter is out for the day, but no thank you, I am not interested in leaving her a voice mail and waiting until tomorrow, so yes, I will speak with the Rehab Supervisor, thank you very much. She calls me back to inform me that no, Liana does not have Cerebral Palsy, but instead of apologizing for what she called a "clerical error" I now need to fill out and mail back some amendment form to get the incorrect diagnosis deleted from her medical file. Serious, people?!
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